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Hello all,
Once again Im trying to find advice... I'm so completely and utterly confused about this all. Yesterday I had a seizure at my college after not feeling well all day. No one knew what to do and that thought frightens me. I have a "seizure diary" i keep in my book bag, but apparently that didnt help. Finally one of my friends called 911.But Now I feel like Im being judged by my peers, like im not normal. They always used to joke about stuff like that and now it seems like they're scared of me or like Im made of glass that could break at any moment! I know its a scary thing, but its not like I can help it and I dont have an aura. I'm so down and scared and don't ever want to go back to that class. I deserve to be treated the same as everyone else! I'm not any different! Does anyone have any advice as how to deal with peers that just dont understand or how to help myself in that situation? I'm not sure what else to do but drop out (which i dont want to do), but I feel like I'm out of options. Thanks for any advice!
Recent Comments on this Discussion
I have been through the exact same thing you hvae been through, it sucks at first, but once you realize there is nothing you can do about it, it makes it easier. I told all of my friends when they met me that I had epilepsy and what to do if I had one around them. I didn't want to do it at first, but I knew they should know in case something happened. I was scared about what they might say and how they might treat me, but they don't see me differently. They just worry about me more, but at least I know they care and that they're there for me. Your friends are probably the same. They just need to get over the initial reaction first. Your not different than anyone else. Don't drop the class because of this. I know how hard it is, but you seem strong and someone who is able to get through it. I hope this helps a little
Maybe if you get a medical bracelet that will let people know whats going on whether you're at school or anywhere else away from home.One time I was at a mall and people got so freaked out the hospital security held me in "custody" until they found my mom(4 hours later).
I am right now considering going to college for web design.There are alot of adjustments I have to make.But that doesn't mean I'm not normal.If people can't accept me because I have seizures they are not really "friends" and the ones who do stick by should see past the seizures and treat you like they would treat any other friend.
Forgive me for being long-winded; I tend to be – just ask my students in class as their trying to pack up their books at the end of class and I’m still yacking away. But I just hate to see a student in distress, so I have to write something.
College is an eye-opening time for a lot of kids – they come from their insular homes or high school environments and they come into contact with folks and phenomena that they’ve never seen before. I remember in college being freaked out when I saw a dorm mate have a nervous breakdown and completely lose it. Another time I had a classmate who was shot dead in a robbery. And I had to deal with all of this when I was dealing with my own stuff. I got a bit snoot full of what life is really like.
Now as I stand on the other side of the classroom, I see that happening a lot. Students freaking out when one of their classmates has something happen that they’ve never seen before. I also see students dealing with chronic medical issues, struggling with that as they struggle with class work and struggle with emotional issues as well.
Every student is different – but they’re all the same in that they have to deal with something – whether it be family stuff, emotional stuff, or medical stuff. (Even the students who look “normal” aren’t really - just scratch the surface and you’ll find something big they’re dealing with.) So absolutely you deserve to be treated like everyone else! The fact that your struggle is visible and physical only makes it *seem* different.
Your friends are probably still in shock – that’s a natural human reaction. If they’re good people, they’ll come around and relax when they realize you’re not going to be dropping every ten seconds. You’ve opened their eyes to a different struggle than they have seen before; it may take them a little while to process it.
I know it sucks having to be the one who seems so different. When I first started having seizures (just partial ones – but I yell, which is terribly embarrassing), my coworkers, my student assistants, and the students in my classes freaked. Sometimes the students in my classes still stare at me like I have 5 arms, which makes me feel like a freak. Sometimes I just space out because I’m spacey or I’m thinking about something and people start freaking. I hate being the “weak” one who has to be watched after. But I think, too, I’ve helped coworkers when they’ve had migraines, or other problems, and I realize that we all need help at some point or another.
Make sure your friends know what to do in case of a seizure. Are you in the US? If so, have you registered with disability services? Sometimes it seems it’s easier to hand a professor a confidential document stating that you have seizures and what they should do. It’s never happened to me (I’ve had students with lots of other illnesses, though) but one of my colleagues has a young lady in one of her class who gave my colleague a notice from OD stating that she had seizures and what she should do. Lo and behold, she had a seizure in class, but the prof knew what to do, kept everyone calm, took care of business and acted like it was no big deal. That’s the way profs should be!
And above all, do not drop out! It’s tough having to be an ambassador for epilepsy – I know that well.
And thanks for bringing this up – I really want to have an Epilepsy Awareness Week at our college, and every time I hear about another student struggling, I want to do it even more.
Many hugs and strength
Steph
I noticed that you are a teacher. Being that you are epileptic as well, I would like to know your opinions on something from both an epileptic's and educator's point of view. Did the side effects of your AED's have any impact on your studying/memory issues? If so, how did you overcome them? I have noticed some memory enhancement & speed reading products such as "Eye Q". Do you have any opinions on these? Do you believe that it is possible for people with E to improve their "comprehension" issues by using studying techniques used by ADHD patients?
Prior to my soph. year in HS, I was an honor role student who played both in band and multiple sports. I also took guitar lessons and had a part time job. Needless to say, I had a rather busy schedual. After a change in my Rx, all of that changed. I was even accused by educators of "not trying hard enough". This was before the internet becoming mainstream so I had to take my specialists word for it, "I have not heard of that (your symptoms) problem". That's why I find this forum more truthful and direct versus listening to "political responses" from your physician as opposed to simply answering your questions.
It's very frustrating knowing that my GPA does not reflect my true intelligence. Do you have any imput that would help those of us who have comprehension/memory retention issues?
Steven
Steph,
It makes me feel a little better hearing this from a teacher with Epilepsy. And your advice is very helpful! I dont think our school has anything close to an epilepsy awareness week, but I agree there should be! Maybe I should look into getting one started, or at least a support groups, becuase I know Im not the only one in my school with his issue. I have an appt monday to meet with out disability rep, so maybe they will be able to help. Unfortuanately, ALOT of people at my school are very close minded and judgemental so I have a feeling that any progress is going to be long and hard road. None the less I'm going to do it. I'm so sorry that you have to deal with it infront of your students, Im sure that would be very challanging, but the fact that you still keep teaching is amazing. Amongst all the criticism you keep on. Thank you so much for your advice you offered! Your more help then you realize
"BEING DISABLED IS IN YOUR MIND.... IF YOU DON'T MIND, YOU'RE NOT DISABLED!"
Hello Ladybug. Sorry about the hard time you are having with this situation. All of us who have epilepsy deal with or have dealt with situations like this at one time or another, in one form or another. One thing that I found in my life with seizures is that people are afraid when they see something as terrifying as a seizure. I am soon to be 44 years old and have had seizures since I was 12 and have only seen a person have a seizure once. I also have seen one of my epilepsy.com buddies have one online as he was helping others to understand and study "E". Of all the years of me having them, I didn't truly realize the fear and panic family and friends felt until I was a witness myself. All I knew is how bad and alone I felt after one because no could understand. Well, the more I shared about my epilepsy with them ( also tell them not to panic, not to stick anything in your mouth to prevent tongue-biting, to keep you from injury and allow it to pass) the safer I am and the more comfortble we all are. Remember that "You Are Normal." This is something that is not about that. You are a whole person. Don't drop your class because of anyone who does not or may not understand cause for all those who don't, there are others who do. One step at a time; one day at a time; just keep going. Don't forget that excess stress leads to breakthrough seizures and get enough sleep. College itself can be enough stress. Love yourself and email me if you need me, Brenda aka lilseizures P.S.- You have options, sometimes some seem tougher than others; You are tougher than you think!