New - Does anyone get tired after absence seizures?
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UPDATED: Thu, 11/20/2008 - 7:50am
Bloody...
Anyone on Lamictal AND Keppra?
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Just come back from seeing my doctor (not 100% happy with how the appointment went, and was basically told despite my last EEG being 13 years ago, which they have lost the results to, it's gonna be hard to get me another one because of restrictions put on referals due to funding! I'm in the UK, incidentally), and I have been put on Keppra as well as my current med, Lamictal.
I'm on 150mg Lamictal in the morning, and 100mg at night. And we're starting off the dose of Keppra slowly, obviously.
So...my question is to anyone taking both - how do you find it? What about side effects? Lamictal, for me, contrarily, has increased my appetite, and I'm deathly scared of Keppra adding to this.
Any input would be fab. Thanks guys!
By Bloody... at Thu, 11/20/2008 - 7:50am | 88 views | 11 comments
Topic: Medication Issues
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Recent Comments on this Discussion
Jamie Crowell hi, bloody Iam on not only keppra and lamictal but also felbatol also have the vagal nerve stimulator. All this and i am
still having seizures. I have been on 18 different meds and am currently on 2200mg of felbatol 400mg of lamictal and 1500mg of
keppra in the morning 1200mg of felbatol 400mg of lamictal and 1250mg of keppra in the afternoon 600mg of felbatol 400mg of
lamictal and 1000mg of keppra at night. the lamictal and keppra are o.k. but the high amount of felbatol gives me insomnia so i
don't go to bed until midnight and even then i still have trouble sleeping. altogether i take 23 pills a day. I am happy to say that i have not had a grandmal seizure in over 2 years. I have small seizures that will only last a few seconds but i some times become
incontinent when i have them. Hopefully i will someday be able to get them under control.
Hi Bloody,
I am also on both Lamictal and Keppra myself. I was put on lamictal after my last severe grand mal last November 2007. Since I was put on that it had actually stopped my grand mals and i have not had any convulsions since. However, at the begiining of this year I started having petit mals right around the time my periods were getting ready to start. When that started happening I myself was put on the Keppra being told that it works specifically well with women who experiance the hormonal seizures. I am on 2000mg Keppra, 500mg Lamictal, and 500mg Phenytoin. My seizures started 3 years ago right after I turned 24 (I am 27 now). the Keppra helped my hormonal seizres some what and I have been seizure free since October. However, because of the fact that I am on so much medication and have no cause for my seizures to start I have just has surgery done to my Left Temporal Lobe on November 4th. It has been 1 month and I am doing ok. I am sorry to hear about the problems that you have had, but the keppra has hepled me out some what. i may not have a whole lot of things to help you out , but I hope I have done somewhat. I wish you luck and I am sure once you get used to it, you will be just fine. Liike with all new meds. your body just has to adjust to them.
Hi,
I was on lamictal monotherapy for about 8 years, and everything was grand. Then my seizure control was lost and I decided to find the best consultant in the UK (I'm from NI)-and I found one of the experts-a Dr John Craig. He put me onto Keppra. At first, I wasn't convinced it was working-I was having no auras and just dropping into tonic-clonics. Then I stopped the lamictal-and I have never looked back-Keppra, for me, is brilliant.
I couldn't believe that when I first met him, that he told me my consultant was actually a specialist in MS and NOT epilepsy. Just shows how the NHS doesn't give a toss about people with epilepsy.
Hi
I am on 300mg Lamictal twice a day and 250mg Keppra twice a day. I went onto the Keppra after having my baby nearly 2 years ago due to having an increased amount of absences. I have had no problems with it and have decided to remain on this doseage. Like you i am also in the U.K. ( Berkshire )
I am from South Africa but have been here the past 9 years but have had many problems with my NHS neurologist and i have very little faith in them too. I have see 4 different neurologist in the past 9 years and everyone of them has a different oppinion and it's never the same as the last one. 4 weeks ago i hit my head badly when i fell down the stairs and started to get very dizzy spells and the absence seizures again. I also suffer from Tonic-clonic seizures. I saw my doctor 4 times as things were getting worse and eventually he sent me to Royal Berks hospital in Berkshire for tests. When i got there, i thought they would do an E.E.G. - only to be told they dont have an E.E.G machine there and would have to go to Oxford hospital. As my symptons were not that "serious" accoring to the doctors i would have to go to Oxford hospital as an out patient and it would take about 8 weeks to get an appointment.....i am sure you know how it goes being on the NHS.
I was so shocked! How can such a big hospital have no E.E.G machine???? anyway - my dizzyness has gone away but my absences are still there. I am planning to go back to SA to live next year and would rather wait to see my neurologist there. i am so tired of people not believing me or telling me that i should not be having absences as an adult that i am giving up. I always go see my neurologist in SA when i go home once a year for a holiday and i feel so much better after seeing him....
If you want to speak to me or ask me any questions, email me at kgrant@caps-solutions.co.uk
Thanks
Kate
I am currently on Lamictal and Keppra. I have been on Lamictal since I was diagnosed and was eventually put on Keppra. I just got put on Keppra XR (Extended Relief) and it has been great. My "jerks" have been controlled and I have been happier. As far as side affects, the only thing I can remember is becoming really sleepy and tired at first, but as the weeks went by I started to get back on track. This really helped me and I don't think you have anything to be worried about. I hope this helps!!
Jamie-Lynn
i take 200 mg lamictal and 1000 mg of keppra per day. the first week or so i was extremely tired and dizzy, but since i can't say i've noticed any side-effects (i try not to think about any possible side-effects, that helps) and to be honest starting taking keppra must be one of the best choices i've made. it completely eliminated my "jerks" and i haven't been feeling "weird" since.
you have nothing to lose.
Just thought I'd update for anyone interested on more experiences on these two combined:
About an hour after the first dose I felt quite tired, but it was pretty fine until of the next day (three doses in) when I got really tired. Spent the next day in bed because I couldn't move very well. Didn't fee dizzy though, which I was warned about.
Appetite is next to nil, which is the one I was most worried about. Food smells okay but tastes hideous and I can't seem to bring myself to eat it. Hope this one will wane a bit, though can't say I will miss the inevitable weight I will lose if this keeps up.
I have been on Keppra for over a year now as I remember, I have been on Lamictal since I was diagnosed, the Keppra has become new to me as I was on Epilim but that caused weight gain & other problems. With taking 200mg Lamictal morn & night now as my seizures are still uncontrolled I am still having twitches,loss of memory,trouble sleeping,aggressive,unsteady taking the Lamictal. The Keppra I get the same side effects I have recently broke my neck because of my uncontrolled seizures.
Hi. I have been on Lamictal since 2001 and Keppra since 2003. Now I take 400mg Lamictal and 4,000mg of Keppra every day. Both make me tired, and I've heard others on this website say that as well. I'm still not sure if they have increased my appetite, but at least one or both of them gives me gas and I have to use the bathroom much more than I used to. But don't let this get you down, because if you look at many comments to others on this website, some people say that these two increase appetite, some it decreases, and others have said that neither affect them at all. The reason I put up with the side effects is because they have cut down major seizures drastically. I still have partial seizures but have not had any grand mal or any other major seizure since 2004.
I wish you luck, and hope that they can help control your condition as well.
Hi. I've been taking 300mg of Lamictal since I first got diagnosed. For two years they kept getting me to try new medications and at one point I was even referred to see a neurologist about brain surgery! Thankfully, they said it was not appropriate and instead, gave me 2000mg of Keppra, alongside the Lamictal and I've never felt better! It is so much better than all the other medications I tried and I haven't had a seizure since! The only downfall is that my hands shake a bit. I'd rather that than more seizures though!
There's no point worrying, if it doesn't work you can always change it. If you spend your time worrying about side-effects, you'll probably talk yourself into thinking that you have them, when you're fine!
Anyway, good luck. Hope all's better soon!
Hi
I take 3000mg of Keppra a day and 300 mg of Lamictal a day. I havent had any side effects from them, and i have been on them for several years. They controlled my seizures to an extent, but not completly, so i was able to have right temopral lobe surgery done in '07. i'm still on my meds, but i've been seizure free since.
Becky