Epilepsy Surgery Chat Hour


epi_help Resources from surgery chat Created by epi_helpat2/26/08 - 6:48 pm Posted To:
boosmomma New - VNS, the good, the bad, and the ugly? Created by boosmommaat11/5/08 - 12:33 pm\|7 Comments Posted To:
CDmom Cortical Dysplasia Website Created by CDmomat11/4/08 - 8:26 pm Posted To:
MichaelK 2 rounds of seizure medicine fail and then surgery? Created by MichaelKat10/31/08 - 9:29 am\|4 Comments Posted To:
epi_help New - Welcome to our new Mentors! Created by epi_helpat10/7/08 - 7:13 pm\|4 Comments Posted To:
epi_help Welcome to our new Mentors! Created by epi_helpat10/7/08 - 7:10 pm Posted To:
caboose new epilepsy OR coming up Created by cabooseat10/2/08 - 6:54 pm Posted To:
babygi... VNS surgery Created by babygi...at9/29/08 - 8:47 pm\|6 Comments Posted To:
babygi... VNS surgery Created by babygi...at9/29/08 - 8:44 pm\|5 Comments Posted To:
chelsea93 Surgery-Left temperal lobe Created by chelsea93at9/25/08 - 4:49 pm\|5 Comments Posted To:
ValNew... Surgery...How do you decide? Created by ValNew...at9/16/08 - 6:58 am\|28 Comments Posted To:
SassyM... Seizure dreams or seizures??? Created by SassyM...at9/12/08 - 9:04 am\|3 Comments Posted To:
Amber28 After surgery issue.... Created by Amber28at9/2/08 - 3:29 pm\|2 Comments Posted To:
epi_help Ideas for Blog Talk Radio Created by epi_helpat8/21/08 - 12:11 pm\|2 Comments Posted To:
jderry chat room Created by jderryat8/19/08 - 7:21 am\|9 Comments Posted To:
efullam Strip Study and seizure activity Created by efullamat8/16/08 - 7:26 pm Posted To:
philo23 Infection - Anyone Else? Created by philo23at8/1/08 - 11:12 am\|1 Comment Posted To:
katefi... seizures and shoulders Created by katefi...at7/13/08 - 6:31 am\|7 Comments Posted To:
whatttap So.... Created by whatttapat5/21/08 - 5:24 pm\|1 Comment Posted To:
whatttap So.... Created by whatttapat5/21/08 - 5:23 pm Posted To:
Colina2 Q+A Created by Colina2at5/15/08 - 10:15 am Posted To:
denie Thickened Cortex Created by denieat5/13/08 - 4:26 pm\|1 Comment Posted To:
CIMIT CIMIT/MGH here with a hello! The Future of Neurotechnology Event ... Created by CIMITat5/3/08 - 10:43 am Posted To:
epi_help help for march 8 chat Created by epi_helpat5/2/08 - 5:05 am Posted To:
barn619 Path to Surgery and Phase III Video Monitoring Created by barn619at5/1/08 - 1:40 pm\|17 Comments Posted To:

epi_help

Resources from surgery chat
Created by epi_helpat2/26/08 - 6:48 pm
Posted To:

boosmomma

New - VNS, the good, the bad, and the ugly?
Created by boosmommaat11/5/08 - 12:33 pm|7 Comments
Posted To:

CDmom

Cortical Dysplasia Website
Created by CDmomat11/4/08 - 8:26 pm
Posted To:

MichaelK

2 rounds of seizure medicine fail and then surgery?
Created by MichaelKat10/31/08 - 9:29 am|4 Comments
Posted To:

epi_help

New - Welcome to our new Mentors!
Created by epi_helpat10/7/08 - 7:13 pm|4 Comments
Posted To:

epi_help

Welcome to our new Mentors!
Created by epi_helpat10/7/08 - 7:10 pm
Posted To:

caboose

new epilepsy OR coming up
Created by cabooseat10/2/08 - 6:54 pm
Posted To:

babygi...

VNS surgery
Created by babygi...at9/29/08 - 8:47 pm|6 Comments
Posted To:

babygi...

VNS surgery
Created by babygi...at9/29/08 - 8:44 pm|5 Comments
Posted To:

chelsea93

Surgery-Left temperal lobe
Created by chelsea93at9/25/08 - 4:49 pm|5 Comments
Posted To:

ValNew...

Surgery...How do you decide?
Created by ValNew...at9/16/08 - 6:58 am|28 Comments
Posted To:

SassyM...

Seizure dreams or seizures???
Created by SassyM...at9/12/08 - 9:04 am|3 Comments
Posted To:

Amber28

After surgery issue....
Created by Amber28at9/2/08 - 3:29 pm|2 Comments
Posted To:

epi_help

Ideas for Blog Talk Radio
Created by epi_helpat8/21/08 - 12:11 pm|2 Comments
Posted To:

jderry

chat room
Created by jderryat8/19/08 - 7:21 am|9 Comments
Posted To:

efullam

Strip Study and seizure activity
Created by efullamat8/16/08 - 7:26 pm
Posted To:

philo23

Infection - Anyone Else?
Created by philo23at8/1/08 - 11:12 am|1 Comment
Posted To:

katefi...

seizures and shoulders
Created by katefi...at7/13/08 - 6:31 am|7 Comments
Posted To:

whatttap

So....
Created by whatttapat5/21/08 - 5:24 pm|1 Comment
Posted To:

whatttap

So....
Created by whatttapat5/21/08 - 5:23 pm
Posted To:

Colina2

Q+A
Created by Colina2at5/15/08 - 10:15 am
Posted To:

denie

Thickened Cortex
Created by denieat5/13/08 - 4:26 pm|1 Comment
Posted To:

CIMIT

CIMIT/MGH here with a hello! The Future of Neurotechnology Event ...
Created by CIMITat5/3/08 - 10:43 am
Posted To:

epi_help

help for march 8 chat
Created by epi_helpat5/2/08 - 5:05 am
Posted To:

barn619

Path to Surgery and Phase III Video Monitoring
Created by barn619at5/1/08 - 1:40 pm|17 Comments
Posted To:

Recent Comments on this Discussion

Re: Epilepsy Surgery Chat Hour

Thanks to everyone who joined the chat last week - Stop by every Tuesday, 9 pm U.S. East coast time!

Epi_help, Resource Specialist

By epi_help on Mon, 11/10/2008 - 5:07am

Login or register to post comments
[ Report Abuse ]

I have an urgent request for help. I am a VNS'er myself and have a friend who is hoping to get one, but for depression. He has talked to several people who's VNS you can hear go off as well as have their voices dramatically affected when it goes off. This surgery will most likely save his life, but he won't have it if people can hear the device or his voice change every few minutes. If you don't have those side effects and would be willing to speak with him to provide some assurance to a young man who really needs help deciding, please let me know. He is willing to call you on his dime and we will both be eternally grateful. Thanks, Yvonne

By yvonne... on Sat, 03/28/2009 - 8:37am

Member Login

Epilepsy Surgery Chat Hour

Recent Comments on this Discussion

Related Content