Food-Triggered Siezures
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UPDATED: Mon, 10/13/2008 - 12:34pm
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uberzw...
Catamenial Siezures
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So after keeping track of my sz my nuero pretty much determined what I have known for a while: I have catamenial epilepsy. I seize prior to my period, getting worst as I near my first days. I told him that my Topamax increase from 175 to 225 seemed to work sluggishly and further increases would probably not yield better results. He said catamenial sz don't respond well to drugs. I suggested hormone therapy myself, to attack the cause instead of the symptoms. He was honest that he had never done it and I would be the guinea pig. He suggested the four periods a year pill, but pretty much left it up to me and the gyno. I'm going to the clinic soon but I wanted to know if anyone here had any experience with this. I was reading that natural progesterone was preferable to birth control, you take it for the two weeks after ovulations, and its absorbed by your body much better. This gives me hope for some sort of control. I'm tired of pills!
By uberzw... at Mon, 10/13/2008 - 12:34pm | 85 views | 3 comments
Topic: Women With Epilepsy
Recent Comments on this Discussion
I have the same thing. Catamenial events. except I get them both at ovulation and the first days of menses. i was thinking like you, that if i go on the progesterone only pill it might nix the events. how have things been going?
pam
I have had Catamenial Siezures for approx. 20 years. Currently I am taking a combination therapy of 250 mg. Depakote in the am and 500 mg of Depakote in the pm with 100 mg of Topamax. Approx 1 wk before my menses begins I start a 10 day course of Diamox to remove as much excess water off the system. Most women retain water in their abdomen, we retain it in our brain?! Ha. This works well for me and I've noticed that about 1-2 day before I'm due to cycle, I'm more susceptible to siezures. This doesn't mean I'll have one, I'll just be more at risk. I've noticed that I'm more sensitive in the morning, which is why the evening dosage is higher. I've spoken to my neuro who is quite experienced with this type and he has stated that the progesterone pill doesn't "nix" anything. When you enter menopause, they still happen. Things change and you may have to change your meds, but the rest of it is workable.
I've found quite a bit of info on the internet that was pretty accurate. Some may be a bit more in depth than you are looking for? How much do you really want to know. The most important thing is be sure to get your sleep! It can really mess with your siezures if you don't get your rem sleep.
As I understand it, Diamox is a (water pill) removing excess amounts of water from the body from the begining of ovulation to the end of a woman's menstrual cycle. What I have researched is that this is when the hormones peak and hit their maximum and minimum levels.
Before I was on Diamox. . .
Since starting Diamox. . .
I still take a combination of AEDs & anti-depressant meds. . .
No more catamenial seizures. . . what a relief! :) :) :)