Place Your Advertisement Here. All ad revenues support the mission of the Epilepsy Therapy Project.
 

Welcome to the redesigned epilepsy.com

It is now easier and faster than ever to access news, articles and community content. With less clutter and an improved navigation system, your favorite content is now only a click away.

The new features include:

  • Streamlined design with less clutter to promote important content and sections
  • New slider masthead
  • New horizontal menu across the site to ease top level navigation
  • Re-designed content pages that are easier to navigate
  • Overall new, fresh look!

Place Your Advertisement Here

Take control of your epilepsy and seizures. Seizure management has never been easier.

TAKE CONTROL TODAY

Sign up for our Newsletter!



sas46
sas46

lamictal vs. generic

My daughter is 23 yrs old and has been on lamictal for 7 years and all has been perfectly fine. Recently the insurance company would not let her prescription be filled unless she had tried the generic brand name. She started taking the generic brand name Lamitrogine last monday and by Wednesday was having breath through seizures... She is now back to Lamictal and having a terrible time adjusting and seizure activity had restarted. It has been terribly traumatic never mind the fact she can't drive for three months now. I am wondering if anyone has gone through this and what kind of action be taken to prevent this from continuing as nobody else should have to suffer through this sort of thing.

By sas46 at Sun, 09/14/2008 - 5:13pm | 331 views | 38 comments

Recent Comments on this Discussion

A paper on this very subject was published four years ago  by doctors
from four hospitals/universities round the world.  It is worth reading. 
Titled ''Are there potential problems with generic substitution of antiepileptic drugs?  A review of issues. '' it was published in the UK medical journal ''Seizure'' in April 2006.
(Volume 15, Issue 3, Pages 165-176) and discusses all the issues mentioned below.  Its
conclusions generally support the view that the risks of transferrinig
to generics outweigh the benefits of their cheapness and finds there are
often false economies in switching to them, not least for the insurance
companies involved.  Useful material to have to hand when you next see
your doctor.

You can access the paper online pdf form or text on the web from seizure-journal.com website.  The article is 'free' so it should not be difficult to access it.






Normal
0




false
false
false

EN-GB
X-NONE
X-NONE













MicrosoftInternetExplorer4














DefSemiHidden="true" DefQFormat="false" DefPriority="99"
LatentStyleCount="267">
UnhideWhenUsed="false" QFormat="true" Name="Normal"/>
UnhideWhenUsed="false" QFormat="true" Name="heading 1"/>


















UnhideWhenUsed="false" QFormat="true" Name="Title"/>

UnhideWhenUsed="false" QFormat="true" Name="Subtitle"/>
UnhideWhenUsed="false" QFormat="true" Name="Strong"/>
UnhideWhenUsed="false" QFormat="true" Name="Emphasis"/>
UnhideWhenUsed="false" Name="Table Grid"/>

UnhideWhenUsed="false" QFormat="true" Name="No Spacing"/>
UnhideWhenUsed="false" Name="Light Shading"/>
UnhideWhenUsed="false" Name="Light List"/>
UnhideWhenUsed="false" Name="Light Grid"/>
UnhideWhenUsed="false" Name="Medium Shading 1"/>
UnhideWhenUsed="false" Name="Medium Shading 2"/>
UnhideWhenUsed="false" Name="Medium List 1"/>
UnhideWhenUsed="false" Name="Medium List 2"/>
UnhideWhenUsed="false" Name="Medium Grid 1"/>
UnhideWhenUsed="false" Name="Medium Grid 2"/>
UnhideWhenUsed="false" Name="Medium Grid 3"/>
UnhideWhenUsed="false" Name="Dark List"/>
UnhideWhenUsed="false" Name="Colorful Shading"/>
UnhideWhenUsed="false" Name="Colorful List"/>
UnhideWhenUsed="false" Name="Colorful Grid"/>
UnhideWhenUsed="false" Name="Light Shading Accent 1"/>
UnhideWhenUsed="false" Name="Light List Accent 1"/>
UnhideWhenUsed="false" Name="Light Grid Accent 1"/>
UnhideWhenUsed="false" Name="Medium Shading 1 Accent 1"/>
UnhideWhenUsed="false" Name="Medium Shading 2 Accent 1"/>
UnhideWhenUsed="false" Name="Medium List 1 Accent 1"/>

UnhideWhenUsed="false" QFormat="true" Name="List Paragraph"/>
UnhideWhenUsed="false" QFormat="true" Name="Quote"/>
UnhideWhenUsed="false" QFormat="true" Name="Intense Quote"/>
UnhideWhenUsed="false" Name="Medium List 2 Accent 1"/>
UnhideWhenUsed="false" Name="Medium Grid 1 Accent 1"/>
UnhideWhenUsed="false" Name="Medium Grid 2 Accent 1"/>
UnhideWhenUsed="false" Name="Medium Grid 3 Accent 1"/>
UnhideWhenUsed="false" Name="Dark List Accent 1"/>
UnhideWhenUsed="false" Name="Colorful Shading Accent 1"/>
UnhideWhenUsed="false" Name="Colorful List Accent 1"/>
UnhideWhenUsed="false" Name="Colorful Grid Accent 1"/>
UnhideWhenUsed="false" Name="Light Shading Accent 2"/>
UnhideWhenUsed="false" Name="Light List Accent 2"/>
UnhideWhenUsed="false" Name="Light Grid Accent 2"/>
UnhideWhenUsed="false" Name="Medium Shading 1 Accent 2"/>
UnhideWhenUsed="false" Name="Medium Shading 2 Accent 2"/>
UnhideWhenUsed="false" Name="Medium List 1 Accent 2"/>
UnhideWhenUsed="false" Name="Medium List 2 Accent 2"/>
UnhideWhenUsed="false" Name="Medium Grid 1 Accent 2"/>
UnhideWhenUsed="false" Name="Medium Grid 2 Accent 2"/>
UnhideWhenUsed="false" Name="Medium Grid 3 Accent 2"/>
UnhideWhenUsed="false" Name="Dark List Accent 2"/>
UnhideWhenUsed="false" Name="Colorful Shading Accent 2"/>
UnhideWhenUsed="false" Name="Colorful List Accent 2"/>
UnhideWhenUsed="false" Name="Colorful Grid Accent 2"/>
UnhideWhenUsed="false" Name="Light Shading Accent 3"/>
UnhideWhenUsed="false" Name="Light List Accent 3"/>
UnhideWhenUsed="false" Name="Light Grid Accent 3"/>
UnhideWhenUsed="false" Name="Medium Shading 1 Accent 3"/>
UnhideWhenUsed="false" Name="Medium Shading 2 Accent 3"/>
UnhideWhenUsed="false" Name="Medium List 1 Accent 3"/>
UnhideWhenUsed="false" Name="Medium List 2 Accent 3"/>
UnhideWhenUsed="false" Name="Medium Grid 1 Accent 3"/>
UnhideWhenUsed="false" Name="Medium Grid 2 Accent 3"/>
UnhideWhenUsed="false" Name="Medium Grid 3 Accent 3"/>
UnhideWhenUsed="false" Name="Dark List Accent 3"/>
UnhideWhenUsed="false" Name="Colorful Shading Accent 3"/>
UnhideWhenUsed="false" Name="Colorful List Accent 3"/>
UnhideWhenUsed="false" Name="Colorful Grid Accent 3"/>
UnhideWhenUsed="false" Name="Light Shading Accent 4"/>
UnhideWhenUsed="false" Name="Light List Accent 4"/>
UnhideWhenUsed="false" Name="Light Grid Accent 4"/>
UnhideWhenUsed="false" Name="Medium Shading 1 Accent 4"/>
UnhideWhenUsed="false" Name="Medium Shading 2 Accent 4"/>
UnhideWhenUsed="false" Name="Medium List 1 Accent 4"/>
UnhideWhenUsed="false" Name="Medium List 2 Accent 4"/>
UnhideWhenUsed="false" Name="Medium Grid 1 Accent 4"/>
UnhideWhenUsed="false" Name="Medium Grid 2 Accent 4"/>
UnhideWhenUsed="false" Name="Medium Grid 3 Accent 4"/>
UnhideWhenUsed="false" Name="Dark List Accent 4"/>
UnhideWhenUsed="false" Name="Colorful Shading Accent 4"/>
UnhideWhenUsed="false" Name="Colorful List Accent 4"/>
UnhideWhenUsed="false" Name="Colorful Grid Accent 4"/>
UnhideWhenUsed="false" Name="Light Shading Accent 5"/>
UnhideWhenUsed="false" Name="Light List Accent 5"/>
UnhideWhenUsed="false" Name="Light Grid Accent 5"/>
UnhideWhenUsed="false" Name="Medium Shading 1 Accent 5"/>
UnhideWhenUsed="false" Name="Medium Shading 2 Accent 5"/>
UnhideWhenUsed="false" Name="Medium List 1 Accent 5"/>
UnhideWhenUsed="false" Name="Medium List 2 Accent 5"/>
UnhideWhenUsed="false" Name="Medium Grid 1 Accent 5"/>
UnhideWhenUsed="false" Name="Medium Grid 2 Accent 5"/>
UnhideWhenUsed="false" Name="Medium Grid 3 Accent 5"/>
UnhideWhenUsed="false" Name="Dark List Accent 5"/>
UnhideWhenUsed="false" Name="Colorful Shading Accent 5"/>
UnhideWhenUsed="false" Name="Colorful List Accent 5"/>
UnhideWhenUsed="false" Name="Colorful Grid Accent 5"/>
UnhideWhenUsed="false" Name="Light Shading Accent 6"/>
UnhideWhenUsed="false" Name="Light List Accent 6"/>
UnhideWhenUsed="false" Name="Light Grid Accent 6"/>
UnhideWhenUsed="false" Name="Medium Shading 1 Accent 6"/>
UnhideWhenUsed="false" Name="Medium Shading 2 Accent 6"/>
UnhideWhenUsed="false" Name="Medium List 1 Accent 6"/>
UnhideWhenUsed="false" Name="Medium List 2 Accent 6"/>
UnhideWhenUsed="false" Name="Medium Grid 1 Accent 6"/>
UnhideWhenUsed="false" Name="Medium Grid 2 Accent 6"/>
UnhideWhenUsed="false" Name="Medium Grid 3 Accent 6"/>
UnhideWhenUsed="false" Name="Dark List Accent 6"/>
UnhideWhenUsed="false" Name="Colorful Shading Accent 6"/>
UnhideWhenUsed="false" Name="Colorful List Accent 6"/>
UnhideWhenUsed="false" Name="Colorful Grid Accent 6"/>
UnhideWhenUsed="false" QFormat="true" Name="Subtle Emphasis"/>
UnhideWhenUsed="false" QFormat="true" Name="Intense Emphasis"/>
UnhideWhenUsed="false" QFormat="true" Name="Subtle Reference"/>
UnhideWhenUsed="false" QFormat="true" Name="Intense Reference"/>
UnhideWhenUsed="false" QFormat="true" Name="Book Title"/>



/* Style Definitions */ table.MsoNormalTable {mso-style-name:"Table Normal"; mso-tstyle-rowband-size:0; mso-tstyle-colband-size:0; mso-style-noshow:yes; mso-style-priority:99; mso-style-qformat:yes; mso-style-parent:""; mso-padding-alt:0cm 5.4pt 0cm 5.4pt; mso-para-margin-top:0cm; mso-para-margin-right:0cm; mso-para-margin-bottom:10.0pt; mso-para-margin-left:0cm; line-height:115%; mso-pagination:widow-orphan; font-size:11.0pt; font-family:"Calibri","sans-serif"; mso-ascii-font-family:Calibri; mso-ascii-theme-font:minor-latin; mso-fareast-font-family:"Times New Roman"; mso-fareast-theme-font:minor-fareast; mso-hansi-font-family:Calibri; mso-hansi-theme-font:minor-latin;}

Chris

scorpio

hi everyone, it is definately a relief that others have gone through the same exact situation as i am going through right now. As of about six months ago my insurance mandated that i had no choice but to take the generic version of lamictal. Yes the Lamitrogine. I was seizure free until i started the Lamitrogine. I then began having them maybe once every couple months and finally decided to call my neuro and explain to him that there was no way i could continue this generic version if i wanted to be seizure free. He then wrote me a script specifically stating that my patient relies on the brand name instead of the generic and that i had tried the generic for six months. Yes the pharmacy gave me the treatment that i was making a big deal of nothing, but for six months they continued to give me the brand name. Now as of a few days ago, my insurance resent the mandated notice that they would no longer provide me the brand name and that i had to find other means to fixing my seizure problem i.e bloodwork etc...yeah thanks insurance..so now i am back to square one. I'm waiting on my neuro to see what solutions we can come up with next for this problem. It's nerve wrecking the though of having no choice and being prone to seizures again because my insurance will no longer provide me the brand that prevents me from having seizures...thanks guys for sharing your stories

crysta...

My neurologist suggested that I do NOT switch to the generic. I am doing well on lamictal and dont feel as if I need to switch anyway, especially after my doctor informed me not too. I think I made the right decision. Thanks for letting me know your experiance.

karyliin6

I was on LAMOTRIGENE for about 6 months after my first seizure.  I was having breakthrough seizures and just not feeling right.  My neurologist admitted me to the epilepsy monitoring unit and witnessed one of my seizures.  After a 10 day monitored inpatient stay it was determined that it was the lamotrigene that was the problem.  I have been on Lamictal ever since and have not had any seizures:)   

laureni15

I had exactly the same problems.  Seizure free for 7 years with Lamictal.  When generic LAMOTRIGENE (with no choice) came to market and I started using it I had a grand mal seizure within several weeks (plus not feeling "quite right.)  My neurologist firmly states generic is EXACTLY the same the name brand.  I explained to him that is not so for me.  He told me it was all in my head.  I told him my seizures were in my head and but not the generic drugs.  He is adament about his thoughts and nearly refuses to write a script for name brand only - I explained to him it is MY money footing the bill for this medicine, so it shouldn't be any "sweat" off of his back.  (when I check the price of Lamictal vs. Lamotrigene there was only several hundred dollars a year difference - out of about 7 grand).  Out of the 3 prescriptions he writes for me (Lamictal, Klonopin, and Ambien) none of these three work as well as the name brand.  The doctor tells me "which one of these three do you want name brand?  I told him the one that saves me the most, the Lamictal.  The RX I use "sees" the name brand on the Lamictal and presumes (with some assistance from me) that the doctor wanted all the meds to be name brand, but wrote it on only one of the scripts.  When I was first on Klonopin the dosage was .5mg.  When it went generic it required a FOUR fold increase to do the same job-2mg.  When Ambien went generic it also required a Doubling of the dosage (from 5mg to 10mg -and still not working as well) to put me to sleep (which I have always had difficulty going to sleep also).  My former Doctor move to Texas and he is missed greatly.  I am  looking hard for a new Neurologist.

From one Redbearded GENERIC hater

I noticed growing up that generics would not work as well as the name brands.  After cutting myself I would use Micotracine.  It seemed to go off the market, or I was unable to locate any and tried Walmarts brand with the same dosage of the main ingredient.  Instead of healing in 1-2 days it took 3-4 days.  I called my sister about this longer healing time.  Before I finished my sentence about using the generic not being the same she said "it didn't work, did it?  Well at least for me I dislike (*&%#!#$##%^)generics (if you get my drift)

redbeard

I too had the adverse reactions on generic Lamictal.  To all of you who have had reactions to the generic forms, PLEASE report it to the FDA.  If they receive enough complaints, they will force the generic companies to alter their formulas so that they're actually effective.  It's a quick and fairly simple process.  Go here:

https://www.accessdata.fda.gov/scripts/medwatch/medwatch-onl...

ashley...

One more thing, for those of you that are battling the insurance companies, there is now a new version of Lamictal called Lamictal XR.  Since there is no generic of this version yet, the insurance company
can't deny coverage.  It's an extended release formula, so you only have to take it once a day.  Ask your doctor about it.  I actually like it even better than the original Lamictal.

ashley...

YOu can call your insurance company and tell them the generic is not effective.  The other thing is that many companies will take a exception from a doctor who prescribes them for you.  It is a note of medical necessity or a phoneline he must call to make the exception.  Speak to your insurance and ask and then to your doctor to get what you need.  Insurance doesn't like to pay for ineffective treatment and further problems and testing.

mbeth

My doctor recently switched my 10 yr. old to Lamictal and refused to right the RX for a generic brand. I guess I now know why.

ginaking

I have had two "breakthrough" seizures on the generic for lamictal. This was a surprise as I have had 4 successful years in a row with lamictal, and the doctor was thinking about reducing the dosage and getting me off meds completely. He has told me that this has been happening to other patients, so let's get the word out.

 Aetna will give it to me by mail for a 3 month supply for $100.00. But I will see what happens when they see the doctor's order.

DDL

I am somewhat at a loss here? LAMICTAL is simply the major(original) drug manufacturer's name for the drug LAMOTRIGENE! Because of this, there ought to be (must not be,) ANY difference between the two items. Lamotrigene IS Lamotrigene and that is that! As far as one's own preference is concerned, I do not see why there should be any confusion? I have been taking lamotrigene for 11 years. When I first went onto it, I always received the package "Lamictal" from the high-street pharmacists. Later when I began to use the same local pharmacist regularly [here in England I am exempt from prescription charges and simply collect my tablets there every month] and I did notice that the prescription package was alway "lamotrigene" - made by various "pill" manufacturers. Now this started years ago! As a scientist, with friends and many members of my family in the medical profession, I have never had the slightest concern. What I take, is the dosage of LAMOTRIGENE which I need, and absorption into the body, processing of the drug within the system etc, is the SAME whatever shape the tablet is, or what the packaging looks like! [I have always assumed that my pharmacist obtains his drugs from wholesale outlets where the price is (probably) cheaper than ordering the pills direct from the original maufacture; thus the lack of the title "LAMICTAL". Why shouldn't he? That's business!

Charle...

I can only speak about the lamotrigene in the US and what my dr. has told me. There are many different companies that are permitted to make the generic.  There is no guideline as to what they can use as fillers for the medication.  So if every manufacturer uses a different filler thus causing the level of lamictal to differ from manufacturer to manufacturer.  There are also high rates of side effects for each filler and your body processes them differently.  So although you may be getting lamotrigine every month it is probably from different manufacturers and your body reacts differently to each brand.  During my inpatient stay one thing, among many, they found was that I was having a reaction to the filler used in the lamotrigene I was taking.  I have been taking brand name lamictal for 8 months and feel great!

laureni15

I am glad to hear ONE person's generic drug is working for them.  As for in the U.S. the generics have a very wide range of dosage.  I do not know if England keeps a better range of matching the brand name than the U.S. does.  The drug manufacturer in the U.S. can be 20% less to 20% more - a difference of 40%.  Imagine someone beginning a new bottle of pills only to be 50% higher (from 80% to the maximum of 120% - a 50% INCREASE!!!!) But on one very important side is the other ingredients.  The other ingredients regulate how quickly, slowly, how long the drug stays in the bloodstream.  As for me I require the BRAND name drug that works for me.  Since the generic works for you so be it.  It definitely is your choice.

Best Regards,

Redbeard

 

redbeard

Charlie, there are loopholes.  The generic forms of medications are not always identical to the brand name versions.  Read more here:

http://www.peoplespharmacy.com/2009/12/17/generic-drug-contr...

and here:

http://www.peoplespharmacy.com/2003/02/10/how-good-are-gener...

These generic Lamictal side effects are not isolated.  They are occuring in patient after patient.  As soon as I told my doctor about my new symptoms, his immediate response was, "You're taking the generic form of Lamictal, aren't you?"  We are not imagining our side effects.  Sure, it doesn't happen to everybody.  But, it's happening enough to cause major concern.

 

ashley...

I HAVE HAD SEIZURES FOR 20 YEARS NOW AND WENT SIEZURE FREE FOR 8 STRAIGHT YEARS AFTER BEING SWITCHED TO LAMICTAL.  MY SEIZURES SOMETIMES CAUSE ALL MY MUSCLES IN MY BODY TO LOCK UP INCLUDING MY HEART.  I WENT INTO CARDIAC ARREST TWICE AND THANK GOD SURVIVED BOTH OF THEM.  MY INSURANCE COVERS NAME BRAND DRUGS, BUT WITH THE RIDICULOUS INCREASE IN COST OF LAMICTAL OVER THE LAST 8 YEARS; I HAVE REACHED MY $2500.00 MAXIMUM PRESCR COVERAGE PER YEAR FOR THE LAST 3 YEARS.  THIS YEAR I COULDN'T AFFORD TO PAY FOR MY LAMICTAL; SO I SWITCHED TO GENERIC.  I HAD 2 SEIZURES 3 MONTHS AGO AND SWITCHED BACK TO LAMICTAL. I STILL DON'T FEEL MYSELF AND COULD POSSIBLY LOSE MY HOME DUE TO MEDICAL BILLS AND PRESCRIPTIONS.  LET EVERYONE KNOW NOT TO SWITCH TO GENERICS.  MY INSURANCE COMPANY WOULD ALSO RATHER PAY FOR EMERGENCY ROOM VISITS, THAN NAME BRAND MEDICATIONS.  DOES ANYONE KNOW OF A CHEAP ONLINE PHARMACY.  I DON'T REALLY FEEL COMFORTABLE WITH INTERNATIONAL MEDICATIONS.  HAS ANYONE BEEN ON INTERNATIONAL LAMICTAL WITHOUT PROBLEMS FOR AT LEAST A FEW YEARS?

aduvio

 yeah that happened to me they switch me to the generic i had really bad side effects  blurred vision ,i broke in hives,weight gain ect. they put me back on lamictal im ajusting well good luck

lizdak21

I'm taking Lamictal and have a disability court date. Until I get the decision on my disability case, I'm paying full price for it and it's not cheap. I'm not well controlled on it and want to try something different anyway. I've taken Dilantin and Depakote and of course, can't remember how I wound up on Lamictal. I do remember that I feel like my Epilepsy was better controlled than it is now on Lamictal. Lamictal costs a small fortune without insurance and from what I remember, Dilantin is pretty cheap.  

Seruzies

As I posted above, I've had my court date and am waiting for the decision in my case. Not being able to work or have any other means to support myself, I recently received Lamictal I had to order from Mexico. It was that or nothing at all. Disability doesn't pay for your meds while you are waiting for the decision to be made in your case. I'm trying to do what I can to not have seizures with what I can afford right now. If it means ordering drugs from Mexico or Canada, that's what I have to do, it's either that or not take anything at all. 

Seruzies

In the past few weeks I've switched from generic tegretol & depakote to name brand.On adivce from my nurse friend next door & the nurse at my gp office & you guys.Now I've been on these meds so long that I don't know what it feels like to off them.But I do feel 100% better on the name brand stuff.Now we'll just have to see a improvement in sez control hopefully.Doctors should warn you.I was told that in the generic med the strength veries and the fillers are harmfull.

jderry

My daughter is now 12 years old and has been seizure free for about 2 1/2 years we the brand name Lamictal.  My daughter was on the generic brand of Lamictal and was constantly having seizures.  The insurance company Blue Cross/Blue Shield switched us to the generic and she started back having seizures.  I tried to refill her prescriptions 2 days ago April 30 and found out the insurance company has increased the charge from $163 for a 3 month supply through Express Script to $802.96 for a 3 month supply, because they are trying to force me to use the generic.  This is my child's life and I am not trying to take any more chances.  I would like to know if anyone can tell me if I just give her 1 tablet a day would this also cause an effect on her.  She takes 2-100mg tablets twice a day.  I am a single parent and I just can not afford to pay $802.06 for a prescription. 

What do we have to do to get the generic companies and insurance companies to understand that we are spending more money by having to take the patient to the emergeny rooms and more frequent doctor's visit due to the generic Lamitcal that is not working.

I haven't slept in a couple of days, because I am constantly watching her to make sure she is ok.

I am crying out for help to strangers, but I need know what else I can do.

Janice a concerned parent

 

jan007

Janice,
My insurance company (Capital Blue Cross) "made" me change or I had to pay the price difference between the brand and generic versions of Lamictal. I was paying $40 for a 3 month supply and all of a sudden I was told that I would be charged over $700 because there is a generic available. I talked with my doctor about it and she was irate that the FDA allows for such a thing. She wrote a letter to the insurance company indicating that it was medically necessary that I take the brand, gave them my specific health issues and requested that they "waive the ancillary fee". The insurance company came back and declined the request. She wrote several other grievance letters with no luck. Then I wrote a letter, sent copies of all of the letters my doctor sent to them and printed out all of the posts on this site about the problems people are having with this. I faxed the information to ESI PA Department at 1-800-357-9577 and told them that a "Generic" reply from them is not acceptable and I wanted more done about this issue! I am happy to say I got a letter in the mail today from Capital BC indicating that they received my appeal and based on the information I sent them for the "voluntary appeal process" they agreed to "waive the ancillary fee and allow coverage for Lamictal at your non-preferred cost-sharing level"!! What a relief!!! That letter came from the following address: Voluntary Pharmacy Appeal, Capital Blue Cross, P.O. Box 779518, Harrisburg, PA 17177-9518. DO NOT GIVE UP!!!!!! Just keep hounding them, and anyone else that you can get information from! Send letters, faxes and reasons why you daughter needs this assistance, get your doctor to write a letter with concerns and again DON'T TAKE NO FOR AN ANSWER!!!!!!!!!! It will not be a fun process but the more you bother the insurance company the better chance you get someone that actually cares and realizes that this is something that you will not back down from!! Good luck to you and your daughter! Oh, I forgot to tell you that my Rx carrier is Express Scripts. If you have them try calling 717-703-8168 or the pharmacy benefits manager at 1-800-585-5794. Or general customer service number at 1-800-962-2242. Again, good luck and don't give up - trust me!!!!!!!!!!!!

Torri

 My Insurance company tried the same thing..I got my doctor to insist that I get brand name Lamictal.

KATHS2

My son was just put on the generic lamictal but has never actually been on the brand name. Should I switch him now? He's only been on the generic for three weeks and we are slowly increasing his dosage over 8 weeks to avoid getting the dreaded rash. Any suggestions? Keep on generic or switch now?

hillary1

 

Hi Hilary, 

I'm following this thread b/c we had some issues with the generic form of Keppra for my daughter.  We decided to switch to Lamictal and ramp up slowly, like you are doing.  We are on the generic too, and no problems yet! 

I would say keep on with the generic, because you might not have any problems with it and it is cheaper.  Although you are reading posts from people who have had trouble with them, my neurologist said that MOST people do NOT have side-effects with generics.  Good luck!

 

-Muffin

 

 

 

 

krowlyk

Janice a concerned parent

 

jan007
HI SPE...

Is there any kind of action that can be taken by us, in bulk, that can make some sort of a difference?? we are talking people's LIVES here. Do you know of anything?

alexis00

I can relate to the problems you are having with the generic lamictal because i am having the same problem. What we need to do
is ask the pharmacist what company makes the generic lamictal then contact the F.D.A. You can do this by going online at
medwatch.com you can tell them the problems that you are experiencing with the generic lamictal. Make sure you tell them
who makes the drug. If enough people complain the will take it off the market.

jamie ...

The first thing you need to do is let your neurologist know about being forced to switch to generic. The reason being that it is the same medicine . . . but its not the same amount. The fillers and other substances that are used make up generic lamictal is allowed to be a certain percentage per mg. My doctor at the Cleveland Clinic needed to increase my 700 mgs daily dose to 800 mgs. Be cautious though and pay attention to any side effects changes if any and dont let any pharmacist try to tell you that  it is the same exact medication as the name brand. My 700 mg dose was only about 550 mgs and this had me all messed up because I took my pharmacists word for the same amount but starting having siezures again. Then I also take Keppra and Carbatrol. After things got complicated and out of control and I researched this info and talked to my neurologist about the new siezures and made the increase using generic. The side effects had my head spinning with double vision , headaches and vomiting. It was real tough for me beause I was taking over 5000 mgs of all meds combined. Everything was going great until this whole ordeal happened and it took a while for to get back on track with my mediacation adjustments and everything is fine now. I'm just preparing you for some of what you can be told and what you do in your situation .

Good luck and take care , Johnny

johnny

Hi janice.

I am truly sorry for all your daughter and you are going through. It's so sad. Nobody understands unless they go through it. We gave in to trying the generic and our daughter had seizures within 72 hrs. After the dr. called and then wrote the insurance company they allowed her to go on the regular meds again. BUT I would not mess with that. I would suggest telling your dr. and pleading with them to call the insurance co and send/sign a letter with explanation why the generics is a bad alternative. I hope the insurance will listen. We have Blue Cross and because my dau gave in so easily to generic w/o calling the dr first, we ended up in the situation we did. She was in college then and thought it would be cheaper for us. Keep us posted on here as to how it goes and fight for the right for your dau. to have the lamictal. If she has to try the generic first before going back on the lamictal I hope she does well as some actually have no issues with it. It's an awful mess the way the insurance co. are acting. You and I and others know in the long run the regular drugs are best and if it works why mess with it, but the insurance co. are just looking at the$$$ ...

Good luck and keep us posted. thanks for writing

sas46

My insurance company (Capital Blue Cross) "made" me change or I had to pay the price difference between the brand and generic versions of Lamictal. I was paying $40 for a 3 month supply and all of a sudden I was told that I would be charged over $700 because there is a generic available. I talked with my doctor about it and she was irate that the FDA allows for such a thing. She wrote a letter to the insurance company indicating that it was medically necessary that I take the brand, gave them my specific health issues and requested that they "waive the ancillary fee". The insurance company came back and declined the request. She wrote several other grievance letters with no luck. Then I wrote a letter, sent copies of all of the letters my doctor sent to them and printed out all of the posts on this site about the problems people are having with this. I faxed the information to ESI PA Department at 1-800-357-9577 and told them that a "Generic" reply from them is not acceptable and I wanted more done about this issue! I am happy to say I got a letter in the mail today from Capital BC indicating that they received my appeal and based on the information I sent them for the "voluntary appeal process" they agreed to "waive the ancillary fee and allow coverage for Lamictal at your non-preferred cost-sharing level"!! What a relief!!! That letter came from the following address: Voluntary Pharmacy Appeal, Capital Blue Cross, P.O. Box 779518, Harrisburg, PA 17177-9518. DO NOT GIVE UP!!!!!! Just keep hounding them, and anyone else that you can get information from! Send letters, faxes and reasons why you daughter needs this assistance, get your doctor to write a letter with concerns and again DON'T TAKE NO FOR AN ANSWER!!!!!!!!!! It will not be a fun process but the more you bother the insurance company the better chance you get someone that actually cares and realizes that this is something that you will not back down from!! Good luck to you and your daughter! Oh, I forgot to tell you that my Rx carrier is Express Scripts. If you have them try calling 717-703-8168 or the pharmacy benefits manager at 1-800-585-5794. Or general customer service number at 1-800-962-2242. Again, good luck and don't give up - trust me!!!!!!!!!!!!

Torri

.hi! yea, my neurologist wants me to stay on the lamictal. he said that its too early to take the generic brand to know if it works or not. my mom wants me to stay on it too so we're just paying the full price. i think it's worth it in the long run. the price of lamictal is nothing compared to the price of seizures (possibly your life, hospital bills, your license etc.). good luck!

jessto...

My insurance company (Capital Blue Cross) "made" me change or I had to pay the price difference between the brand and generic versions of Lamictal. I was paying $40 for a 3 month supply and all of a sudden I was told that I would be charged over $700 because there is a generic available. I talked with my doctor about it and she was irate that the FDA allows for such a thing. She wrote a letter to the insurance company indicating that it was medically necessary that I take the brand, gave them my specific health issues and requested that they "waive the ancillary fee". The insurance company came back and declined the request. She wrote several other grievance letters with no luck. Then I wrote a letter, sent copies of all of the letters my doctor sent to them and printed out all of the posts on this site about the problems people are having with this. I faxed the information to ESI PA Department at 1-800-357-9577 and told them that a "Generic" reply from them is not acceptable and I wanted more done about this issue! I am happy to say I got a letter in the mail today from Capital BC indicating that they received my appeal and based on the information I sent them for the "voluntary appeal process" they agreed to "waive the ancillary fee and allow coverage for Lamictal at your non-preferred cost-sharing level"!! What a relief!!! That letter came from the following address: Voluntary Pharmacy Appeal, Capital Blue Cross, P.O. Box 779518, Harrisburg, PA 17177-9518. DO NOT GIVE UP!!!!!! Just keep hounding them, and anyone else that you can get information from! Send letters, faxes and reasons why you daughter needs this assistance, get your doctor to write a letter with concerns and again DON'T TAKE NO FOR AN ANSWER!!!!!!!!!! It will not be a fun process but the more you bother the insurance company the better chance you get someone that actually cares and realizes that this is something that you will not back down from!! Good luck! Oh, I forgot to tell you that my Rx carrier is Express Scripts. If you have them try calling 717-703-8168 or the pharmacy benefits manager at 1-800-585-5794. Or general customer service number at 1-800-962-2242. Again, good luck and don't give up - trust me!!!!!!!!!!!!

Torri

The same thing happened to me. After my pharmacist said the two drugs were the same, I had two seizures. I talked to my doctor and she said that it is because I was on the generic brand after years of being on the brand name. The only thing that my insurance company needed was my doctor to write that it had to be the brand name and I pay the same deductible. I cannot say too much more because I have contacted an attorney. I would call your insurance company and your doctor and see if you would pay the same if your doctor says you cannot use the generic. Good luck to you! You aren't alone in that mess.

elizab...

Hi elizab I hope things are going well for you. Keep us posted!

sas46

About 2 to 3 weeks ago my wife got switched to generic. The Pharmacist and Doctor said it was the same and was cheaper. Since then she has had nausia and headaches everyday. Her doctor ordered an MRI and the results were the same. Tonight she had a breakthrough seizure and it felt different than seizure she has ever had. There were no blinking lights or flashes. Prior to the breakthrough she felt light headed and disoriented. Now 2 hours later she feels jittery and has a headache. She had been on Lamictal about 7 years. Tommorrow we will call her Doctor and try to switch to Lamictal brand. We are now concerned about the future results of the switch.

Joshua & Linzi

badading

Hi everyone,

It appears many of you switched from Lamictal to the generic because of cost issues, just like myself!  I am so glad I found this site because I am exeriencing Dizziness- very bad.  I just switched to generic 2 days ago and couldn't figure out why I am having auras and feeling very dizzy.  I've called my Dr this morning and am switching back.  He strongly recommeded I stay on lamictal but I had to give this a try.  Poor decision.....thank you everyone for sharing this side effect. I feel like I'm not out there alone.

 

Melissa Blackwell

Kansas City, MO

Melhas...

My insurance company (Capital Blue Cross) "made" me change or I had to pay the price difference between the brand and generic versions of Lamictal. I was paying $40 for a 3 month supply and all of a sudden I was told that I would be charged over $700 because there is a generic available. I talked with my doctor about it and she was irate that the FDA allows for such a thing. She wrote a letter to the insurance company indicating that it was medically necessary that I take the brand, gave them my specific health issues and requested that they "waive the ancillary fee". The insurance company came back and declined the request. She wrote several other grievance letters with no luck. Then I wrote a letter, sent copies of all of the letters my doctor sent to them and printed out all of the posts on this site about the problems people are having with this. I faxed the information to ESI PA Department at 1-800-357-9577 and told them that a "Generic" reply from them is not acceptable and I wanted more done about this issue! I am happy to say I got a letter in the mail today from Capital BC indicating that they received my appeal and based on the information I sent them for the "voluntary appeal process" they agreed to "waive the ancillary fee and allow coverage for Lamictal at your non-preferred cost-sharing level"!! What a relief!!! That letter came from the following address: Voluntary Pharmacy Appeal, Capital Blue Cross, P.O. Box 779518, Harrisburg, PA 17177-9518. DO NOT GIVE UP!!!!!! Just keep hounding them, and anyone else that you can get information from! Send letters, faxes and reasons why you daughter needs this assistance, get your doctor to write a letter with concerns and again DON'T TAKE NO FOR AN ANSWER!!!!!!!!!! It will not be a fun process but the more you bother the insurance company the better chance you get someone that actually cares and realizes that this is something that you will not back down from!! Good luck to you and your daughter! Oh, I forgot to tell you that my Rx carrier is Express Scripts. If you have them try calling 717-703-8168 or the pharmacy benefits manager at 1-800-585-5794. Or general customer service number at 1-800-962-2242. Again, good luck and don't give up - trust me!!!!!!!!!!!!

Torri

Generic is definitely the best choice! worked for me!

 

 

space bags reviews

JohnMi...

Related Content

View all Forums
 
Bailey
Bailey
New - Generics chemically different from name brand?
Created by Baileyat10/12/08 - 9:51 am|4 Comments
Posted To:
colema...
colema...
New - Lamictal and Topamax
Created by colema...at11/7/08 - 3:34 pm|1 Comment
Posted To:
rock956
rock956
New - Starting Lamictal
Created by rock956at10/27/08 - 7:13 am
Posted To:
meresu...
meresu...
New - lamictal side effects
Created by meresu...at10/21/08 - 9:13 pm|2 Comments
Posted To:
meresu...
meresu...
New - lamictal side effects
Created by meresu...at10/21/08 - 9:13 pm
Posted To:
france...
france...
New - Scared of pregnancy when on lamictal...please help me
Created by france...at10/19/08 - 4:22 pm|1 Comment
Posted To:
mom2su...
mom2su...
New - Is it possible to have an allergic reaction to Lamictal?
Created by mom2su...at10/16/08 - 10:42 am|3 Comments
Posted To:
katfaerie
katfaerie
beware of generics!
Created by katfaerieat8/18/08 - 11:06 am|10 Comments
Posted To:
adelman
adelman
side effects lamictal
Created by adelmanat8/12/08 - 5:10 pm|12 Comments
Posted To:
luckys...
luckys...
Carbatrol and Lamictal
Created by luckys...at8/10/08 - 6:43 pm|3 Comments
Posted To:
luckys...
luckys...
Carbatrol and Lamictal
Created by luckys...at8/10/08 - 6:42 pm|2 Comments
Posted To:
RGbrai...
RGbrai...
New - Lamictal - switch to generic lamotrigine?
Created by RGbrai...at8/8/08 - 3:27 pm|32 Comments
Posted To:
amyoon
amyoon
My Hair is Falling Out
Created by amyoonat8/4/08 - 12:57 pm|6 Comments
Posted To:
Tiffany K
Tiffany K
Safely Treating PCOS and Epilepsy At The Same Time
Created by Tiffany Kat7/24/08 - 7:24 pm|1 Comment
Posted To:
daydre...
daydre...
Lamictal Rash
Created by daydre...at7/14/08 - 6:05 pm|6 Comments
Posted To:
143hay...
143hay...
New - 4 Yr Old on Lamictal, Dr.wants us to consider Corpus Callosotomy
Created by 143hay...at7/8/08 - 7:38 pm|6 Comments
Posted To:
143hay...
143hay...
4 Yr Old on Lamictal, Dr.wants us to consider Corpus Callosotomy
Created by 143hay...at7/8/08 - 7:38 pm
Posted To:
143hay...
143hay...
4 Yr Old on Lamictal, Dr.wants us to consider Corpus Callosotomy
Created by 143hay...at7/8/08 - 7:37 pm
Posted To:
findes...
findes...
generic?
Created by findes...at7/2/08 - 4:17 pm|6 Comments
Posted To:
Dragool
Dragool
Does anyone get tired after absence seizures?
Created by Dragoolat6/13/08 - 11:21 am|4 Comments
Posted To:
efnj_a...
efnj_a...
Calling all New Jersey Residents!
Created by efnj_a...at5/30/08 - 10:55 am
Posted To:
efnj_a...
efnj_a...
Calling all New Jersey Residents!
Created by efnj_a...at5/30/08 - 10:39 am
Posted To:
HBsmom
HBsmom
My 15 yr.old has had 3 tonic clonics in the last 6 months
Created by HBsmomat5/24/08 - 7:00 am|3 Comments
Posted To:
Dragool
Dragool
Does anyone experience this....?
Created by Dragoolat5/12/08 - 4:47 pm|3 Comments
Posted To:
melissaa
melissaa
Doctor wants him to switch from Dilantin to Lamictal
Created by melissaaat5/6/08 - 6:53 pm|5 Comments
Posted To: