Medication (keppra) dosages
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UPDATED: Fri, 09/12/2008 - 6:02am
wyboemail
BRE and jerking, twitching while sleeping
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My son was diagnosed with BRE almost two years ago. The very first sign of something being wrong was he was having involuntary muscle jerks and twitches in his shoulders, face, arms along with eye blinking and turning his head to one side. The neuro said it was a tic disorder. Then he had his first seizure. Diagnosed with BRE. In the last year he has started having jerking and twitching while sleeping. The neuro said it was probably some type of sleep issue but i think it is something to do with the epilepsy. Could these be little types of seizures? It does not wake him up except for a few times. I have not read anything where it says this is something that happens with BRE.
curtis.wybourn@qbeamericas.com
By wyboemail at Fri, 09/12/2008 - 6:02am | 56 views | 9 comments
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Recent Comments on this Discussion
My son also has BRE and I have noticed the same 'little' jerking and tics during sleep. They have never woken him up, and he has never had them while awake, nor have they provoked a seizure - that we can tell.
He was put on Keppra a week ago today and we visit the Neuro mid-October. It is on my list to ask about.
I have also tried to 'google' and research this without much luck. I have noticed that the jerking happens for several days after he has had a seizure...makes me wonder if the brain is still trying to organize itself.
Good luck!
laina,
We seen the new doctor and he is not sure what to make of the impulses I call them that my son has at night. he said it could be something with the BRE and really went no further with it. We really like this new doctor but right a way he talked about switching meds which we are not going to do unless absolutley needed. he is an older person and does not really like the newer keppra. He did take a lot of time with us getting my sons history and double checking everything he had gotten from his files. We go back in three months unless something comes up. I am going to start him on a multi vitamin / mineral supplement that has vitamin E as well as manganese and the b vitamins. He takes the b vitamins and manganese now so combining and making 1 less pill to take will make it a little nicer. let me know what you guys find out. email me at curtis.wybourn@qbeamericas.com
hi there im new to this forum, my 12 yr old son was diagnosed with bre in april he has had 3 seizures at night and im not sure wether to medicate my doctor says we should wait a bit longer but has prescribed frissulim which is a anxiety drug for night as my son was worried about sleeping.what was the outcome with your child i have still not given the frisslum to him as i feel it is a anti depressant and im worried i give him a vit pill and he thinks its frissulim i wonder if anyone else is in the same boat as me
Biscuit,
My son is 10 and has been on Keppra for almost two years now. It seems to control his seizures well. Since March of 2007 he has had eleven seizures while being on the meds. If your doctor wants to wait and your son can get good sleep without being on anything then maybe you can wait it out. Twelve years old is kind of old to just be developing BRE. Have they done MRI, EEG, VEEG, CT Scan ??? What kind of seizures does your son have? We give my son aloe vera juice, vitamin B complex, magnesium and coromega fish oil as well as the keppra. email me at curtis.wybourn@qbeamericas.com if you wish.
Good Luck, Curt
Laina,
Please email me with what your neuro says about it. Like I said our neuro just said it is some sleep issues. We are seeing a new neuro on Friday so we are going to ask him as well. During Ethan's last EEG I did see him jerking while he was sleeping during the EEg and nothing but the spikes in the C4 region of the brain showed up. Since the region of the brain that BRE is messing with controls movement it only makes sence that the brain is over loading and causing these movements in sleep i think. We went nine months seizure free and now he has had three this month. A year ago this time he had five between late August and mid September. I think that a lot has to do with allergies and the astrological phase of the moon's. call me crazy but I went back and looked at the dates Ethan has had seizures and then the phone phase changes and they were all within 2 or three days. One was right on the date. There is so much research that needs to be done and no money to do it. I read that per person with epilepsy only $39 dollars is spent for research compared to $5000 per person with cancer. Good luck and please let me know what you find out and I will do the same. How old is your son? Where do you live?
curtis.wybourn@qbeamericas.com
Hello Curtis, the neuro said it isn't anything to worry about and that chances are they are just regular movements. We haven't had to redo an EEG, and hopefully it won't come up. They did change his med as Keppra was making him WAYYYYYYY paranoid and anxious and causing him to have anxiety attacks. He is now on trileptal. He is doing much better on this new drug and I hope it keeps his seizures at bay. I also noticed more nosebleeds while on Keppra. We only had one so far on the new med - not sure if it is makes a difference. I don't have enough experience with his disorder (in terms of lenght of time and frequency) to tell you what / when it is better or worse. I will keep this post in my favorites and if I can add to it to help someone else out I will. It will be one year this December 26th since his first seizure, diagnosed on December 27th. I agree 100% about research, we have a company and will be donating through the company. My son is 9 and we live in Phoenix.
Hello Curtis, the neuro said it isn't anything to worry about and that chances are they are just regular movements. We haven't had to redo an EEG, and hopefully it won't come up. They did change his med as Keppra was making him WAYYYYYYY paranoid and anxious and causing him to have anxiety attacks. He is now on trileptal. He is doing much better on this new drug and I hope it keeps his seizures at bay. I also noticed more nosebleeds while on Keppra. We only had one so far on the new med - not sure if it is makes a difference. I don't have enough experience with his disorder (in terms of lenght of time and frequency) to tell you what / when it is better or worse. I will keep this post in my favorites and if I can add to it to help someone else out I will. It will be one year this December 26th since his first seizure, diagnosed on December 27th. I agree 100% about research, we have a company and will be donating through the company. My son is 9 and we live in Phoenix.
Hello Curtis, the neuro said it isn't anything to worry about and that chances are they are just regular movements. We haven't had to redo an EEG, and hopefully it won't come up. They did change his med as Keppra was making him WAYYYYYYY paranoid and anxious and causing him to have anxiety attacks. He is now on trileptal. He is doing much better on this new drug and I hope it keeps his seizures at bay. I also noticed more nosebleeds while on Keppra. We only had one so far on the new med - not sure if it is makes a difference. I don't have enough experience with his disorder (in terms of lenght of time and frequency) to tell you what / when it is better or worse. I will keep this post in my favorites and if I can add to it to help someone else out I will. It will be one year this December 26th since his first seizure, diagnosed on December 27th. I agree 100% about research, we have a company and will be donating through the company. My son is 9 and we live in Phoenix.
My 10 year old was diagnosised with BRE a year ago and he was having the twitches while he was sleeping. He would have the facial twitches about 45 mins after he would a fall asleep. I thought he was dreaming and ignored it until one night i tried to wake him up and i noticed that he had drooled and his speech was slurred when he woke, i knew it was more than dreaming. So i got in with a Neurologist and had a sleep test and he got his diagnosis. We did start him on Keppra and after adjusting the dosage we are currently on the right dose.. 500mg at nite and 300 in the AM. He hasn't had any in months that I know of (knock on wood). He did have one grand mal and that was scary but it didn't last long at all. I am hoping he never has one again. So we just keep taking the med and hopefully he will outgrow it in a couple of years.