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Hi, I am new to posting on this site. I have referenced this site many times and find the post the most helpful, especially the responses to the post.
I am 32 years old and never had a seizure before. My CT scan showed an old infarc or brain infection in my left temporal lobe; however, on the MRI it only showed that my left temporal lobe was asymeteric. Whatever that means. My EEG was normal - they said. But during the EEG when they had me close my eyes and had the lights flashing - my lip began to twitch and the tech stopped the lights. I also had a tilt table test to rule out dysautonomia.
Here's the story (sorry so long)...I was at work in July, sitting at my desk. I got up to copy something and the next thing I know a co-worker is standing over me while I am on the floor. From there I went to the ER. CT scan, EKG...Nothing, except the CT results above. I have had two more instances where I have what I call blacked out, but no one has been around when this occurs. I have aura's. I get goose bumps on one side of my body- no matter how hot it is - then I get what I call tunnel hearing. A co-worker has witnessed me sitting at my desk with my head down, lip twitching, and rubbing my right hand fingers together. This has happed a few times. I have had staff that also say I will walk around and seem to be in a daze. I have had dejavu eperiences as well throughout my life.
I saw my neruo on Tuesday. He said I was having complex partial seizures or that this could all be surpressed memories of a traumatic event that may have occurred in my childhood. He started me on Dilantin. I am already taking neurontin and klonopin for fibromyalgia and anxiety. He did state that being on those other two drugs could be the reason why the seizures have not been more frequent or severe.
Could being on those two other drugs prior to the EEG have caused it to be normal?
I really feel a need to morn the fact that I have seizures. My husband is not understanding. My mother is great. My job requires me to drive (even though I do it very rarely - it is in my job description). My licensce has been taken until I am seizure free for 6 months. My job is being supportive and understanding at this point.
My abitlity to think or get words out is very bad.
Just wondering if these symptoms are common. If anyone has any suggestions or comments, I would be greatly appreciative.
Thanks.
Recent Comments on this Discussion
I'm sorry to hear about this and completely understand what u mean about grieving. It is normal too feel like that following a diagnosis like that.its terrible to not have support from your husband, but at Least you have your husband. And perhaps maybe u could see a therapist also for support. I'm a therapist,and I am considering getting one myself. Its a good way to vent as well as get some outside advice. As far as dysautonomia, I wouldn't rule it out. You'd be supprised how much stress can damage your body(it has happened to me).and I have heard that there is a relationship between dysautonomia and seizures.good luck
I was diagnosed in May 2008. I came to in the floor of a department store. The other customers witnessed me having a seizure. I have never had seizures before that I am aware of. My first EEG was negative, which I find hard to believe because I had an aura and a severe headache with it. I have since been on meds and am experiencing partial and complex partial seizures. I changed to a different neuro. He increased my meds and diagnosed me. The second EEG showed epileptic activity in the left temporal region.
I can identify with you because my husband has been not been suppotive. He has not witnessed my seizures. He gets aggravated with me because all of this has affected my short term memory. He thinks that I just do not listen to him. I have gotten material for him to read explaining how some people have short term memory problems with E. but so far he just doesn't understand. So I know it makes it hard for you when you do not get the support you need from him. Like you thank God , my mom understands and she has also witnessed one of my partial seizures.
I have auras of my eyelids twitching, then fluttering, then face twitching and a feeling of fear and an opposite of dejavu. I feel like I am in an unfamiiar place even though I am at home or a place that I am very familiar with. Also I have trouble with words and that was never a problem for me before E.
Hope this helps.
Thank you all for your comments.
BB-my lips have twitched for some time (the last 2-3 years) and I would feel funny when it would happen. Now all of a sudden, since starting the Dilantin, my eye lids are twitching.
Wondering if the twitching I have been feeling for the last 2-3 years is seizure activity.
does your lips tingle sometimes. and ur face ? feels numb? i was newly diagnosed also, in Aug...i was diagnosed with Generalized Tonic-clonic Epilepsy..my neuro believes that it was a birth injury, but they dont know for sure.
I was admitted for a couple days in the hospital because of a possible stroke, drs ran tests, and nothing, but i was referred to a great dr in Troy ohio, she first put me on Keppra, then she put me on topamax also but i broke out in hives from that, so she kept on keppra and another and it made me out of it, i couldn't remember where i was...then she put me Depakote Er...so far its working, no seizures so far, but i do have tremors and it makes me gain weight, i dont like it!...should i call my dr about it?
AuntAnna
Heather,
My ten your old son has never had anything show up on any of his test. Dr. figures the meds just are doing a good job. The Dr. diagnosed him by what we told him and we videotaped his seizures so he could see him as well. Benign Rolandic Epilepsy is what he has along with Arnold Chiari Malformation which is non symptomatic. Good luck. curtis.wybourn@qbeamericas.com
Thank you for your response.
:)