Place Your Advertisement Here
 
UPDATED: Sun, 07/13/2008 - 5:31am

  • Epilepsy First Aid
  • Seizure Medication
  • Animation of a Seizure
  • Seizure Diary
  • Find a Doctor
  • Epilepsy Centers
  • Clinical Trials
  • Event Calendar

Place Your Advertisement Here
katefi...
katefi...

seizures and shoulders

Hi all,

 So, I've had both simple and complex partial seizure since I was 15 (wasn't diagnosed until I was 22).  And it seems that I have grand mals at night.  I wake up feeling like I have been beat up and often my shoulders are both dislocated.  My shoulders are so bad now that they pop out really easily and hurt pretty much all the time.  So, I went to see an orthopedic doctor last week and he said that they have dislocated so much that the ball of the shoulder has eroded and the only way to fix them is to have surgery and do a bone graft on the balls.  Has anyone been through this?  Does anyone have shoulder problems related to thier seizures?  Thanks!

 

 

By katefi... at Sun, 07/13/2008 - 5:31am | 61 views | 7 comments

Recent Comments on this Discussion

I HAD THE SAME PROBLEM WITH MY RIGHT SHOULDER IN MY 20S. IT STARTED POPING OUT IF I JUST MOVED MY ARM JUST RIGHT. WHEN I WENT TO THE ORTHO, I TO WAS TOLD THAT I HAD ERODED IT. MY ORTHO PUT A PIN IN MY SHOULDER TO HOLD IT IN PLACE. I COULDNT MOVE IT FOR 6 WEEKS AFTER THE SURGERY, THEN I WENT THRU PT FOR NUMEROUS MONTHS. THEY TOLD ME I WOULD BE LUCKY TO GET 65-75% MOVEMENT BACK. I GOT 95% BACK. IT WAS A PAINFUL ROAD TO RECOVERY BUT WORTH IT. I AM 50 NOW AND EXCEPT FOR SOM ARTHRITIS IN IT NOW AND A FUNNY HOOK LOOKING PIN ON XRAYS, IT IS GREAT. NEVER HAS GONE OUT OF SOCKET AGAIN. EVEN WITH THE LAST 5 OR 6 YRS THAT I HAVE HAD OF CONSTANT TCS, IT STAYED IN PLACE.  WHAT EVER THIS ORTHO DID WAS A GREAT FIX. NOW IF ONLY SOME ONE COULD MAKE MY LOWER BACK STOP HURTING!!

I TYPE IN CAPS FOR THE VISUALY IMPAIRED

GOD BLESS,

BANFFGIRL

LIFE IS FRAGILE, HANDLE WITH CARE.

banffgirl

My seizures have recently began giving me physical pain, my left shoulder hurts right now because I had a nocturnal seizure last night. Nocturnal seizures have only recently started for me, those are the ones that usually leave me in some type of pain. Being cold is a trigger for me, lately I've been having more seizures because I'm cold all the time. Is being cold all the time a symptom of Epilepsy, or is it just me?

Seruzies

Hello,

Well all I can say is my Dr. told me that I needed to get the seizures under care for a time before he would look at "fixing" my shoulder. It does happen to me as well usually during the night (Grand-mal). I then wake up feeling like I want to die because it has been seperated.  My husband has gotten in the routine of things now where if I have a "Popping" noise as I am having one he just waits until I am done and simply rotates my arm back into place. He figures it probably hurts so badly but while I am in that frame of mind I cannot feel what he is doing.  I really have to say Thank God for my husband! He has been right so far!

The reason I do not know what to do about "fixing" my shoulder is because the next question my Dr. did say was what if I did get them under control, fix my shoulder with the rods and screws that are needed and then have a seizure out of the blue again? This would probably end up tearing the shoulder.

 

I hope I could help in some items but you are not alone believe me.  Anytime.

 

txsgirl 

 

txsgirl

I have the same problem with my left shoulder. i never knew it was a common problem. It happens anytime I have a seizure and the tendons go lax and the joint dislocates. I have not gone to an ortho doc. I just minimize Range of motion, and my husband does know how to "pop it back in".....sad.....

I am a nurse, so I will ask an ortho doc at work about the surgery

dahlia

Yeah, my orthopedic said the same thing about getting the seizures under control before fixing the shoulders.  He also said that he just recently put artificial shoulders in 6 pts who had had thier shoulders repaired as mine would be 15 yrs ago (they were my age, 20s, when they had it done and they were seizure pts).  So, it seems that even if they are under control, there is always the chance that it can come back.  I don't know, it just really scares me that I could need an artificial shoulder when I'm 40.  But they hurt so much all the time now that I need to have them fixed.  It's just really frustrating.  Well, thanks for letting me vent!

katefi...

peace R.C.

  hi

    Yes I have or are having now although I did not go to the doc. thinking it was szs. that caused it .

      I have bulging dics in my lower back that were assumed were caused at work BUT after not working AND having szs the problems got worse so it is most definatly related.

    I have a "pulled" shoulder now from szs while sitting up and worse that I don,t beleive I have done before. when I was strapped in a bucket seat and had a sz. I pulled my hips and both shoulders out ??? I happened to have a broken foot and a cast at the time so it forced me to push down ??? i guess ??? forcing my hip out??

   It pays to talk because will now take your ? to a doc. about my own "parts"    Rick

wichit...

peace R.C.

wichit...

Related Content

View all Forums
 
suebear
suebear
Question for VNS patients: Should I be concerned?
Created by suebearat10/27/07 - 1:16 pm|1 Comment
Posted To:
kwety
kwety
New - thinking about surgery
Created by kwetyat5/24/07 - 8:35 am|16 Comments
Posted To:
brainwarp
brainwarp
New - dread seizure
Created by brainwarpat8/18/08 - 3:17 pm
Posted To:
efullam
efullam
New - Strip Study and seizure activity
Created by efullamat8/16/08 - 7:26 pm
Posted To:
philo23
philo23
New - Infection - Anyone Else?
Created by philo23at8/1/08 - 11:12 am
Posted To:
1never...
1never...
New - Auras...
Created by 1never...at7/23/08 - 5:20 pm|5 Comments
Posted To:
Omega
Omega
Honey, we need to talk... without triggering seizures.
Created by Omegaat7/5/08 - 2:37 am
Posted To:
Omega
Omega
Honey, we need to talk... without triggering seizures.
Created by Omegaat7/5/08 - 2:35 am
Posted To:
skippymcc
skippymcc
Am I having seizures?
Created by skippymccat6/5/08 - 11:36 pm|2 Comments
Posted To:
skippymcc
skippymcc
HELP!!!! Having automatisms and abscence when I daydream!! What is it?
Created by skippymccat6/4/08 - 11:58 am|2 Comments
Posted To:
denie
denie
Thickened Cortex
Created by denieat5/13/08 - 4:26 pm|1 Comment
Posted To:
w8lift...
w8lift...
has anyone's seizures "changed"?
Created by w8lift...at5/13/08 - 10:38 am|2 Comments
Posted To:
CIMIT
CIMIT
CIMIT/MGH here with a hello! The Future of Neurotechnology Event ...
Created by CIMITat5/3/08 - 10:43 am
Posted To:
barn619
barn619
Path to Surgery and Phase III Video Monitoring
Created by barn619at5/1/08 - 1:40 pm|17 Comments
Posted To:
reba
reba
New - post op surgery site question
Created by rebaat4/14/08 - 8:13 am|11 Comments
Posted To:
compos...
compos...
Answers to Brain surgery questions.
Created by compos...at4/12/08 - 8:12 pm|3 Comments
Posted To:
jothebrit
jothebrit
DNET and temporal lobectomy for my 3 year old
Created by jothebritat4/2/08 - 6:34 pm|2 Comments
Posted To:
banffgirl
banffgirl
We Who Use The Forum
Created by banffgirlat3/27/08 - 4:35 pm|33 Comments
Posted To:
catwhi...
catwhi...
4 year old with one seizure per month, average of every 28 days
Created by catwhi...at3/11/08 - 10:57 am|1 Comment
Posted To:
xtortu...
xtortu...
I'm New and have questions
Created by xtortu...at2/26/08 - 10:48 pm|8 Comments
Posted To:
epi_help
epi_help
Resources from surgery chat
Created by epi_helpat2/26/08 - 6:48 pm
Posted To:
onemarvy
onemarvy
New - Positive Stories Only
Created by onemarvyat2/22/08 - 10:04 am|17 Comments
Posted To:
onemarvy
onemarvy
Epileptic Seizure Monitor Alarm System
Created by onemarvyat2/18/08 - 10:46 pm|3 Comments
Posted To:
onemarvy
onemarvy
Lunar Eclipse
Created by onemarvyat2/18/08 - 10:41 pm
Posted To:
onemarvy
onemarvy
Still in denial
Created by onemarvyat2/16/08 - 2:25 am|19 Comments
Posted To: