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UPDATED: Tue, 06/24/2008 - 6:47pm

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cajung...
cajung...

Frightened Wife New to All of This!

I've been married for 8 months.  When my husband (who is 23) wakes up, if he gets up immediately, he starts twitching like he's having muscle jerks.  If I'm not there to hold him up, he's prone to losing his balance and falling.  He's fine after a few seconds normally if he doesn't fall, but about a month ago he woke up from a nap, had a seizure and nearly scared the life out of me.  I took him to the hospital where they did a CAT scan and blood work, and both came back normal, so they sent him home. About a week ago, he woke up, got up, went to kiss me goodbye and I noticed he started doing what I call his "twitchy thing".  I told him to sit or lie down for a few minutes before he went to work.  Well, he got into his car, had a blackout (from what he says he remembers getting into his car, starting to drive, then the next thing he remembers is the car's airbag in his face) and wrecked his car into a ditch. He wasn't going that fast (the speed limit on our street is only 20 and we live pretty close to the front of the street) so the reason the airbags deployed was because of the angle of the ditch.

He hasn't been diagnosed with epilepsy yet, but I'm wondering if anyone has had the same kind of symptoms.  He was in a car accident when he was 5,  suffered a head injury, and was in a coma for 3 days.

 

I've never had to deal with this and I'm nervous and frightened.  Anyone have any advice for me?

By cajung... at Tue, 06/24/2008 - 6:47pm | 78 views | 7 comments

Recent Comments on this Discussion

Hi Cajung. Having this happen in your life can be very frightening. The more information you find to read about this the more confident you will become of being able to cope with it. One of the other comments about foods and nutrients in foods makes a lot of sense. It is always a good idea for overall health to have a better diet. Also be in the look out for preservatives and additives in foods which can cause problems. Keeping a daily diary will help you have some idea of what can be one of his triggers. Also starting your own Trigger List. We have collated many of these and posted them on our own website. Many people have the most common ones but for some others they can be unusual ie: perfume, cleaning products, and yes even brushing teeth. Also be aware of many over the counter products. Best wishes Maraika

Maraika

I suffered a head injury and about six years later started having seizures.  I start out with twitching also.  I was taken to the ER many times and they told me I was fine.  I even went for In-patient testing and was told it was all my imagination.  My personal neurologist suggested that it was just one of those cases you cannot prove where it originated and was more concerned about treating it than trying to find out why they were happening.  I would see a neurologist and explain EVERYTHING you see happen.

Pony P...

Hey there, yeah i kind of understand the whole blacking out thing. I get that every once in a while whenever I stand up too fast or get going to fast. When I sometimes get running outside I will get overheated and start blacking out a little then too. It is a very scary thing. I hope you can get used to it, it is definitly something everyone needs to know the warning signs of! Good Job on being such a caring wife! :)

Jennica

Jennica

Hello Cajung, my name is Omega. I'm new here too. My husband has similar seizures. Mostly in the mornings but sometimes any time of day. He also has head injuries from childhood and started having twitching and shaking seizures many years later. He is 34 now and the doctors still don’t know exactly why or how his seizures happen but say it may be the 'tonic-clonic’ kind of epileptic seizures. He tried some standard epilepsy medications but stopped because they made him feel angry all the time.

If he starts to get a little bit shaky at home and lies down straight away to rest and calm his nerves the shaking will often just fade away. Getting in bed and giving him some cuddles helps too. We have found a few cheap and easy little ways to help him have less seizures. I made a ‘wheat-bag heat-pack’ which really helps to calm his nerves and make the shaking fade away. It also helps after a big seizure when his back aches. I made one by putting a few really big handfuls of linseed grain into a pillowcase and tied a knot in the open end. We heat it up in a microwave oven for about 3 minutes and it really helps a lot. (most people use wheat because thats whats in the ready-made ones in the shops, but I found that the home-made one is better than the bought ones. The linseed grains stay hotter for longer but think any grains will work. Also the pillowcase is bigger and more flexible to shape itself to the curves of your back or neck or wherever the muscles ache.)

Chamomile tea in baths helps to calm his nerves, we put dry chamomile tea in his pillow case too. I think it’s the smell that helps. He wont drink it as he doesnt like the taste.

Reducing the amount of sugar and caffeine makes a HUGE difference. Even just switching from coffee to tea helped to keep his nerves calmer. Coca-Cola is really bad for his nerves but he won’t stop drinking it. :-(Getting really good quality deep sleep and rest may be the most important. Making the bedroom as dark as possible while sleeping helps the brain to rest properly. Avoiding bright lights in the evenings helps too. I learned that foods like chickpeas, tahini (sesame seed paste) and olive oil have an important amino acid nutrient called TRYPTOPHAN that our body and brain needs to make us sleep properly and deeply. So we made some yummy hommous dip and had more of these foods in our meals and it made a big difference to getting proper sleep and rest. Some more foods that have lots of tryptophan are bananas, mangoes, dates, chickpeas, tamari (soy sauce), soybeans, asparagus, broccoli, cauliflower, all beans and peas, miso soup, Apricots, Pumpkin seeds, Sesame seeds, Oats, whole grains, Celery, Sunflower seeds, Barley grains, Beets, Cashews, Almonds, Walnuts, Cabbage, Potato, Brown rice, Tomato and peanuts. Eating these food together with carbohydrates and starchy foods like potatoes and whole-grain breads helps the tryptophan get to the brain.  I sure hope some of these things will help you as much as they have helped us.  

He has been very stressed and extra shaky lately and so he is trying calming herbal medicines and an Indian Ayurvedic herbal medicine from the local market. He likes it and says it worked straight away, he feels calm and doesn’t shake anymore. I'm suspicious of all medications and usually try to find solutions in diet and exercise and a healthier lifestyle but I’ll get some professional advice about the herbs and keep my fingers crossed…

Good luck :-) from Omega

 

 

Omega

welcome you and your husband to this site........i had the same problems....getting up too fast would cause me to twitch and jerk....so it takes me a while to get going in the morning.......he needs to see a neuro asap to get this figured out......and this last accident was just a ditch......get him some help before the next accident is a family of four........take care and god bless.............

scratch

I would suggest getting him into see a neurologist and have them do an EEG. I would also think that maybe, you should avoid letting your husband drive until you know what exactly is going on with him. It's not only dangerous for everyone else on the road but him as well...

But call a neurologist ASAP and get him in to be seen.

Take care!!

kaitly...

i have plenty of advice email me at princessroxstar1991@yahoo.com ill answer ne questions

 

 

best of luck

victoria

roxiba...

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