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Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYSo I have never found a trigger my siezures beyond them occuring around my period...but I think I might be on to something. Maybe even something that might give me the origin to my seizures- since they haven't found anything on my CT scans or MRI. I went out for Thai food this week and last to a specific place. I had a small siezure right after eating both times. The first time I didn't think much of it since I was on my period, but it was my only one that week (odd, I didn't have more that cycle) but the second time I looked at my plate suspiciously. I had crab rangoon both times, but I had it once before at this place and didn't react so *scratch*...
However, I recalled the number of times in the past four years that my seziues began at the dinner table. Some of my worst ones began at the dinner table. Could I have an allergy to something? Why would I not be reacting to it more often outside the time of my period? Some minor research does pull up that allergies are stronger during menstration. Could I be more predisposed to a reaction then when my seizure threshhold is lower as is?
I'm going to have to keep track of what I eat now.
Does anyone else have anything similar to this, or heard of it? Is it a possibility?
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Recent Comments on this Discussion
Sleep deprivation is my biggest trigger, and barometric pressure is scary, but I did keep a food diary last year because there was something else. I have had tonic-clonic only twice - 1st sleep deprivation, 2nd because I hadn't been told which OTC drugs to avoid. Thanks ER & doctors.
But I have complex partial seizures that are still not under control & those come with strong auras. I was able to track it back: caffiene and chocolate. Yeah, it stinks. I very rarely have caffiene - tea in a restaurant, occassional soda - and the doctor upped my Lamictal XR dosage to deal with the chocolate. Since I'm not having any bad reactions to the Lamictal, he wants to try to eliminate the complex partial seizures too, while letting me eat everything. We tried it over Christmas last year and it definitely decreased the CP's but they haven't gone away.
I agree keep a food journal that is the only way you will know what foods bother you .
I thought about a food journal as I had IBS symptoms for years and I wonder what food is bothering me that day and the stomach cramps are getting bad lately and more often to the point I feel like I can't sit up any more I get so bloated and sharp gas pains .
Uberzwitter,
You are definitely onto something. Foods can trigger seizures and reactions to foods can trigger seizures. This is well documented for migraines. Seizures and migraines are closely related. Sometimes I think they're even the same thing.
Aspartame and glutamates are two bad ones. Glutamates occur naturally in foods such as soy, parmesan cheese, tomatoes (especially tomato paste), mushrooms, beets, "savory" foods. Aspartame is just toxic. It isn't good for anyone even people who don't carry a gene for PKU.
Tyramines are another baddie. They, too, occur in delicious foods. No smoked or cured meats. No meat that isn't really fresh. No dry aged beef. Aged cheese. It's hard to find good information about which foods contain tyramine because there is so much wrong information out there. Stahl's The Essential Psychopharmocology: The Neuroscientific Basis and Practical Applications has the only accurate list I've found. Try to find it online or in a bookstore and get the info you need.
Allergic reactions can cause seizures. Histamine is an excitatory neurotransmitter. Also blood levels of everything go flooey when you have an allergic reaction. Other types of sensitivities wreak havoc as well. Histamines also occur naturally in certain foods or cause the body to produce them.
Caffeine can trigger headaches and seizures because it is a vasoconstrictor. Ironically it can trigger symptoms, but if you have a migraine it can help. You have to be careful about eating foods that have a bad glycemic index, especially with caffeine because you get a spike in insulin levels and then your blood sugar drops. Low blood sugar can trigger seizures.
You also have to make sure about your electrolyte balances. Out of whack electrolytes can trigger seizures. Hyponatremia (low salt) is extremely dangerous and is a side effect of some AEDs.
I would say go with how you feel. I had to start keeping a food diary. I noticed a pattern when I ate. I finally traced it to beets. I stopped eating beets and my seizure frequency dropped. That was from the naturally occurring glutamates. I have a lot of food allergies and I assiduously avoid anything that I know I have a problem with.
Here is a list of foods. This one looks pretty good on superficial inspection. Go with how you feel rather than what this said. Use it as a guide. You are the best judge of what does and doesn't work for you.
http://web.archive.org/web/20070830124324/users.bigpond.net....
Best of luck.
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Both food sensitivities and allergies can definitely trigger seizures. Especially foods that are rich in glutamate and aspartame – two very excitatory amino acids.
The color yellow can also be a trigger.
MSG can be a killer. This is where it gets scary. MSG is hidden in more foods and ingredients than you’d ever dream of. Here are some examples:
“Enriched”, fermented, protein fortified, ultra pasteurized, broth, bouillon, caramel flavoring, corn syrup, cornstarch, dry milk solids, natural flavoring, gelatin, gums, malt extract, milk powder, modified food starch, potassium glutamate, seasonings, soy protein, soy sauce or extract, stock, vitamin “enriched,” whey protein, yeast extract and yeast nutrients.
Phylis Feiner Johnson
www.epilepsytalk.com
Based on personal experience, I would suggest getting tested for gluten intolerance, which may end up leading to testing for Celiac Disease if the blood work is positive. There is a connection between CD and seizures/epilepsy, because CD can have neurological manifestations with or without intestinal signs. Some (but not all) studies have shown a higher incidence of CD (as much as 1/40) among those with epilepsy than among the general population (1 in 133). In my case, I am still undergoing investigation of my seizures, but I was diagnosed with one condition then the other within a 3-month time period, so I can't help but think I am one of the ones where they are related.
Just to throw this out. Consider the possibility that the potassium loss due to CD is what is causing the problem, not the CD itself. Low potassium is high on my list of triggers and I have to choke down bananas as a result. I truly despise bananas and wish there was another choice. Unfortunately, I have found that they are the best and fastest way, besides eating paint chips : ), to get potassium into my system.
I have noticed that I'll have an Episode a few hours after or right after i have a diet drink / or anything with Aspartame (fake Sugar). also if i take some cold medicines that cause drowziness.
Hello,
Do you notice aany unusual effects if you drink ice tea w caffiene, w/o sugar or sugar sub.? Are your episodes like feeling you're dreaming when you're awake?
I find that if I stuff myself I could a focal sez. So I just need to watch how I eat when I go out or at any functions.
edited by admin
I have to mention this again.
The spice Nutmeg will take me down with a Grand Mal in about ten minutes. Even a little bit of it. It is common in Thai, Ethiopian, Jamaican, Barbecue,and bratwurst. I even got nailed once by a variety of hot sauce(Who would have thought there would be nutmeg in a hot sauce?).
I'm not the only one with this sensitivity, and it's just now getting out in the epilepsy community.
Maybe it's not your problem, but if you want to test it out, try a piece of chicken with jerk rub and see what happens.
Matt
Mom of Bauer, SCN1A positive
My son has reacts to RAST tests, but NOT to skin tests! Keep a food journal...make notes of when you have seizures up to 3-4 days around certain foods. You'll see a pattern evolve.
Once I got the blood RAST testing, our son didn't have a seizure for 6 months, than had 2 over the next 6 months.
I keep begging our Neuro and Allergist to get on board with this concept...they are dumb! I keep telling them about these posts by other ppl. with the same issues, so KEEP'EM coming!!
Thanks,
Tiffany
I can't believe you had the same symptoms as I did when I eat Thay food. Hmm I will take a observe this in the future and post again.
Hope you find out sooner and post agin :)
Good luck, email sender !
Every time I pass a fast food resturant I have a seizure. It might be due to the various creepy mascots associated with them, particularly Ronald McDonald, Big Boy and the unsettling, acid-dropping Buger King man. No wonder I'm prone to frequent status epilepticus, considering the ubiquitous nature of these icons of American dining. My advice is to put on blinders as you board the bus.
I have found that recently red meat gives me absence seizures!! I really, really wanted a bacon, lettuce and tomato sandwich. I enjoyed it . Had an absence seizure as I sat down after and started knitting. So my husband thinks it is the knitting. No. The knitting calms me. I am vegetarian with fish and ocassionally chicken. Lots of greens, folates, seem to help me feel better, too. Thai food has a lot of potassium in the sauces that is used as flavourant. And their flavourings are high in MSG. I ask for the food without the sauce...they bring mine on the side. I ask for my salads without dressing unless the chef makes it without flavoured sauces.
It makes me sound like a pain in the ... but it is easier than explaining my condition. Fresh organic food always helps control my seizures. And coffee is no trigger for me.
If your seizures are in your limbic system, could food smells trigger your absence seizures?
Well, I had 2 different things trigger my auras. Without meds, they would've gone to full blown seizures. As I would start to eat, it would trigger an aura. It didn't matter what the food was. And certain colors, usually an off-orange color would trigger them. I had a temporal lobectomy last year. And they also removed half of my hippocampus. But during the intracranial monitoring, when off my meds, I could start to eat or just even THINK of the color and it would trigger a grand mal. Eating didn't cause them every time, but the color did. I figured out the color in a restaurant. It was a mexican place that had the walls painted an orange-ish, pink-ish color. When the neurologist couldn't get any seizures out of me for the monitoring, I started to joke about how they could take me to dinner with all the monitoring equipment to this place. He had me describe the color. Within 5 minutes, I had a grand mal. 4 more seizures were triggered as I started to eat.
Hope this helps.
Caffine,pork,cut back on dairy,cheinise cooking,drinking,not enough fiber in diet,
I will direct all of you to www.epilepsymom.com
I found this woman's site after I realized and I stress, I , b/c when I talked to a allergiest he told me he's never seen anyone have a seizure due to a food allergy. I disagreed, found evidence on the Internet, told him a list of what I thought my son was allergic to (kept a food diary) told him I didn't want skin tests, only RAST b/c some people won't react for days, as was the case with my son. It could take 2-4 days for a reaction/seizure. Just over the past 3 mos. I have found two other kids who have seizures who allergic to milk. Anyhow, The things I thought my son was allergic to, he was and I got to say, "I told you so!" to his previous allergist as I now have one who worked with me to test for a good range of food, developed a diet to try (allergen free) and my son has been seizure free for nearly 6 months now!
He is on two meds: depakote and Topomax (weaning currently). Previously was on Keppra too, but is off that.
I STRONGLY URGE anyone with seizures to get RAST testing!! There's AGE and AGG tests, do both if you have to. Beg, plee with your Dr., make up symptoms if you have to and DO NOT do the skin tests. They will tell you blood tests aren't as reliable, BULL! Request RAST and even if they tell you it's not an allergy when you get your results back, don't eat that food, for awhile at least.
I got no where relying only on the Dr. I took matters into my own hands and it has paid off...two fold!
Good luck and even if you're not a mom of a child with epilepsy, still visit www.epilepsymoms.com. There's SO much info that I had to realized and find out on my own.
Mom of 2 year old Bauer, SCN1A positive epilepsy
Thank you so much for your reply!!! Our son, Addison, was recently diagnosed with epilepsy. His results to the test the doctors have ran are not adding up! We go this month to the doctor to see about a special diet. But, I have never heard of these other test. I will definitely check them out.
i dont know about anyone else but aspartame triggers mine or sumtimes red food dye
Anything with the sweetener SORBITOL in it almost kills me at the smallest dose. (Seizures, Vomiting, and things I won't mention) I had no idea they have been slipping it into so many over-the-counter medicines recently. Not to mention mints, chewing gum, ice cream, soda...
You'd think that after having lived with epilepsy for 35 years, I'd come to realize that caffeine does bring on seizures in me! However, I still seem to drift back towards my all-important coffee in the morning...and oftentimes throughout the day. Many folks with epilesy tell me to cut it out entirely, whether it gets into my system in the form of coffee, tea, chocolate, whatever. Caffeine makes me feel quite "up" for a while. But maybe it's time to just rule it out entirely. Do you find you get more seizures after having had caffeine? Give me some advice. Thanks!
teachergreen
I'm thinking my seizures might be caffeine related. I guess the only thing to do is give up any caffiene altogether and see if it makes a difference. Except I went a whole month without seizures and still drank drinks w caffeine.Maybe I just keep wanting to find the cause and still not except I will probably have epilepsy the rest of my life.
Any thoughts?
First I will start by saying I am a registered nurse. I was diagnosised with complex partial seizures in 7/08 when I woke up and did not know what year it was, thought it was 1985, or anyone around me. I had been under extreme stress at work and home. During my EEG it was found I had a spot on my brain,hence the seizures. Well, now after spending the weekend in Las Vegas with tons of stimulation i have my first seizure in my arm. This thing is going from bad to worse. I find I have the majority of seizures when under stress of any kind and especially sleep deprivation. As far as food, probably just alcohol. I would caution people about potassium, too much can affet the rate and regularity of the heart. I also suffer from thyroid disease, but mine is hyperthyroidism and if my thyroid is too high I will have more seizures.
Matt
Nutmeg is a big trigger for me and Thai food often contains it. Sometimes it's a pain in the neck for me to go to a Thai restaurant because often the staffs' English isn't the best. Usually what I have to say is "If you're not sure it's not in there I'll eat something else.". No sense in waking up on their floor just to eat something that smells good.
MCS
Yes I think nutmeg is connected with a great number of allergies. I wonder if a higher number of reactions are reported in countries where it is prevelant in cooking, or whether there is less aversion to it due to consistent consumption during childhood? lawn trimmer
Reading what everyone wrote we can't always go by everyones food thoughs either . Because everyone body is different to . I know no one should do any achol at all. If i ate only certian things i weight 10 lbs i only weigh 90 and eat tons food.
Green tea triggered mine an starting to find out to much coffee does mine also starting to wonder what else. Or if it is type of meds I am taking because it only through out certian parts of life it seem it happen to trigger.
teachergreen
Have you ever heard of Dr. Pepper and dark tea causing seizures? This summer I rarely drank hot tea but drank a Dr. Pepper almost every day. I enjoy the flavor of the drink and I guess I could try eliminating it for a period of time. I'm not sure how long that period would be before I see results-no seizures. I have 4-6 seizures a month.
Anyone out there have seizures because of caffiene?
I'm not sure about Dr. Pepper, but many dark sodas have nutmeg in them, and nutmeg will knock me down in a matter of minutes. I don't have a problem with caffeine, (and hope I never do, coffee is my drug of choice) but I have heard it can be a problem for some other people. It's probably a good idea to avoid anything with the suffix "-ine-" as it means it's a stimulant along the lines of 'speed'. Methedrine, dexadrine, etc. This would include most allergy medicines, unfortunately for those of us with hayfever.
Matt
Hello everyone,
Great forum. I've been doing research for the past 20yrs and have found that it is ABsoLUTEly true that foods trigger my seizures. So, I avoid all food products with (wheat, corn, soy, caffiene, alcohol, msg, sweeteners) ...I think that's it. And I feel fantastic.
Most recently I learned that I have a seizure condition called Catamenial Epilepsy.
Here is a website that you may find interesting: "Catamenial Epilepsy and Progesterone" http://professionals.epilepsy.com/wi/print_section.php?section=hormones_catamenial
"the woman [with Catamenial Epilepsy] may tend to have more seizures at particular times during her menstrual cycle, usually just before or during the onset of menstruation or at the time of ovulation...the surge of serum estrogen levels at the time of ovulation may be associated with increased seizure tendency; as may the fall in serum progesterone levels just before and during menstruation...If a catamenial pattern of seizure exacerbation is established from this record, additional steps in the evaluation will help to guide treatment...Because progesterone has anticonvulsant effects and estrogen has proconvulsant effects, treatment with progesterone or estrogen antagonists may prove to be useful adjunctive treatments in appropriate patients."
Also, a search engine like Google: "Catamenial Epilepsy" progestrone OR define This will get a whole bunch of stuff on the subject of Catamenial Epilepsy, which is having seizures around hormone changes that women tend to have around their menstrual cycle and at the time of ovulation.......when Estrogen containing foods really tend to INCREASE estrogen and LOWER the seizure threshhold.
I'm not a doctor, just done LOTS of research over the years. My seizures, PMS, and other behavioral changes around my menstrual cycle and ovulation have stopped now (Thank G-d) .....with the elimination of certain estrogen containing foods and seizure-provoking (for whatever reason....like soda since I was 12yrs old). I am so greatful that I've got my life back in order.
Good luck to you all. And it really does sound like those of you women with seizures that happen mostly around your menstrual cycle may have this type of seizure disorder (Catamenial Epilepsy).
I suggest to log your seizures (how many & what type) on a calendar or in a journal. As well as try a food journal to see which foods provoke certain unwanted Emotions/Seizures and such.
Be well,
LovesMath :)
teachergreen
Really? You believe your seizures were provoked by soda. (caffeine) ? How often did/do you have seizures? What do you drink in place of the soda? Water, juice, and milk get a little boring for me.
AUTUMNS MOMMA CHERI
Thank you so much for this information. My daughter has intractable epilepsy, autism, etc etc. Anyways we have felt for a long time that the neurologist was missing something. My daughter is too sensitive to food. We have eliminated certain foods from her diet just because of the reaction she has. To think that certain foods cause seizures just made a light bulb go off. This is great information, and I plan on contacting her neurologist with this information.
Thank you
I was recently daignosed. Just started having them in the past month and increasing in numbers. I recently switched my diet from white bread to wheat. I was in the hospital for a number of days and didnt have any. I have also had some a few hours after having caffeine. I think I will be staying away from both for now on.
Without seeing this topic before, bananas are something I've craved ever since my seizures first started. Another craving is peanut butter and jelly, I hated eating it when I was younger. I usually keep a cut up honeydew mellon in the fridge to munch on, the riper it gets, the sweeter it is.
Bananas are a truly disgusting fruit. Unfortunately I have to eat at least two of them every week to keep my potassium level up. I have had a couple of seizures where I was told that my potassium level was low and maybe that was the cause. Supposedly there are other things you can eat to get the potassium, but it seems that bananas work best and fastest for me. Blecch! If I had a choice, I would rather eat my gym shoes.
Matt
I completely agree with you. Sorry Banana-fans. Kiwi, Honeydew, Apricots, Avocado and Oranges are all rich in Potassium though. ... Oh ... and Prunes!
VERY FUNNY!
I started craving banannas to just after getting better and being sick. When i was kid and my sz started i craved cheese alot though.
I read on a fact sheet of the epilepsy.com website that seizures can be triggered by emotional stress. Personally I find eating certain foods emotionally stressful, e.g., anything I know is unhealthy or that reminds me of some event that I found stressful. Also, maybe consider the people you were dining with and how you feel around them. Assess other environmental factors of the restaurant you were in, e.g, was it overly noisy, smelling, crowded, hot, cold, dimly lit or too bright....
Good luck : )
I know emotion does i got rid of 1 big emotion in my life holding me down and was doing better.
I can tell you from a medical stand point since I am a Registered Nurse at the hospital and I am specializing in neurology as I progress to get my Bachelor's degree in Nursing. It may sound funny, but you may have a potassium deficiency. It is a condition well known to cause seizures since it disrupts the electrical activity in your neurons which is what causes seizures. I can give you a hint since I have seizures as well (which is why I specialized in neurology). Try eating a food like bananas that have a significant amount of pottassium, especially during your period since you can lose a significant amount of potassium during that time (that is one reason headaches are common in the cycle). You can start out eating one a day (banana) and see where it gets you. It has really helped me decrease the number of my seizures (although the idea of potassium rich fruits and vegetables was brough to me by a paramedic friend of mine and not my neurologist.) I wouldn't go as far as getting potassium vitamins since too much potassium can cause seizures as well and it would take several bananas to result in this and they also have neutralizing vitamins in them making it less likely.If you would like to know more, just e-mail me at rowdy_texan04@hotmail.com and be sure to specify epilepsy so I don't think it's junk mail.
I actually picked up bananas at the store because of this after not doing so for years. I was convinced bananas made me nauseus because I would always get an upset stomach after eating them...but I'll try again. As far as high natural sugar- I think the banana is better than the French Toast with maple syryp I will sometimes have!
IF THEY STILL BOTHER YOUR TUMMY, I JUST DID A QUICK SEARCH FOR FOOD HIGH IN POTASSIUM AND HERE ARE SOME:Apricots, dried 10 halves 407
Avocados, raw 1 ounce 180
Bananas, raw 1 cup 594
Beets, cooked 1 cup 519
Brussel sprouts, cooked 1 cup 504
Cantaloupe 1 cup 494
Dates, dry 5 dates 271
Figs, dry 2 figs 271
Kiwi fruit, raw 1 medium 252
Lima beans 1 cup 955
Melons, honeydew 1 cup 461
Milk, fat free or skim 1 cup 407
Nectarines 1 nectarine 288
Orange juice 1 cup 496
Oranges 1 orange 237
Pears (fresh) 1 pear 208
Peanuts dry roasted, unsalted 1 ounce 187
Potatoes, baked, 1 potato 1081
Prune juice 1 cup 707
Prunes, dried 1 cup 828
Raisins 1 cup 1089
Spinach, cooked 1 cup 839
Tomato products, canned sauce 1 cup 909
Winter squash 1 cup 896
Yogurt plain, skim milk 8 ounces 579
USDA Nutrient Database for Standard References, Release 15 for Potassium, K (mg)
TADA!! OF COURSE SOME DON'T SOUND ALL THAT GOOD TO ME, AND SOME WE NEED TO CUT OUT, BUT THIS SHOULD HELP! GO FOR THE ORGANIC TO GET RID OF ALL THE PESTICIDES, ETC.
I USE ALL CAPS FOR THE VISUALLY IMPAIRED. I WISH YOU PEACE, LOVE, BLESSINGS, JOY.........JAN
Thanks for the research...I love everything on the list.
I can not eat yogurt it speeds up metablosim which speeds my medication out me. Even my doctor told me not to do yogurt because would inter act with medication. Becarefull on what you do to speed up your metabolism if you speed that up you take risk of running medication out you. It was happening i drinked so much green tea it was funny i drinked it as i should drink water.
There is a great connection between the "gut" and the brain. Just doing a quick search with gut/brain/seizure and you will find some interesting reading. Also be highly suspicious of all processed and prepared foods, as MSG is hidden in many different forms. My daughters seizures are triggered by the many different byproducts that are hidden in foods.
Try an elimination diet, and stick to fresh, organic, whole foods.
The postassium idea is interesting, but if there is an insulin issue, this could be a problem. Bananas are high in natural sugars.
Robin
Okay, here is the list I have come up with over the last couple of days of foods that possibly trigger seizures:
soy milk, soy sauce & other soy products, because they raise estrogen levels!
aspartame, nutrasweet (diet sodas, etc.)
maybe also caffeine, alcohol
also: meat and dairy products unless organic probably contain significant amounts of estrogen hormones, so can be just as bad as the soy products
hope that this information helps. if i were you i would try a paleolithic diet to detox and then remove or reduce the frequency of any of the foods that seem to cause you problems.
-Meow
I'm glad to see a comment!
Well, I have recently cut soy out of my diet since I discovered I have hypothyroidism. I also do not consume any diet sodas or such sugars (willingly). Of course, I may still be ingesting these things when I am not the one cooking. I am guilty with caffeine though in the form of coffee, yet that hasn't been usually present for me to pinpoint it as the culprit as I would have liked to have done so.
I will say that the meat and diary products I didn't think of. I haven't heard of the paleolithic diet but I can assume what it is, I'll check it out and I'll try to introduce healthy foods in and monitor how I feel. I'm sure eating less processed things woldn't be harmful eitheir.
Thank you so much!
MAY I ASK WHAT SOY, HYPOTHYROID AND SEIZURES HAVE IN COMMON? I AM HYPOTHYROID. I KNOW WHEN I AM NOT ON THE RIGHT DOSE OF SYNTHYROID, I HAVE MORE SEIZURES, BUT DON'T KNOW CORRELATION WITH SOY.
SUGAR IS A TRIGGER FOR ME. I DON'T EAT MUCH SUGAR, IT MAKES ME FEEL AWFUL, BUT WHEN I AM SICK, POSSIBLY MS, BUT DONT KNOW YET, IT DEFINITELY TRIGGERS SEIZURES. I NEVER DRINK ANY ALCOHOL. ONE SIP OF BEER AND I AM SPINNING. AND NEVER, EVER HAVE CAFFIENE!
I USE ALL CAPS FOR THE VISUALLY IMPAIRED. I WISH YOU PEACE, LOVE, BLESSINGS, JOY.........JAN