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UPDATED: Mon, 05/12/2008 - 4:30am

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beatleape
beatleape

Ocular Migraines and Simple Partial Seizures

Hi Everybody,

About three years ago I had my first ocular migraine.  It started out as a small blank spot in the front of my vision and then spread out to my peripheral vision.  I had a blind spot and sparkling lights for about 20 minutes.  During this time I also had trouble reading, which scared me, so I went to the hospital.  They told me I had experienced an ocular migraine so they sent me home.

 After about 6 months I had another similar experience and then went another year before having another.  Althogether, I have only had 3 of these migraines.

After my first migraine, however, I started noticing that almost daily I would see a single black dot in the center of my vision when I'd blink.  It lasts about 10 seconds and then disappears.  Eventually, I got nervous enough to go to the neuro about it and she tested me for epilepsy.

My EEGs (30 min and 24 hour ambulatory) came back slightly abnormal, but other tests (MRI, corotid artery) were totally fine.  I am currently taking 500 mg of Keppra 2x day but am still seeing the black dots.  They seemed to disappear when I wasn't stressed out during the summer, but have reappeared this year (I'm in a one year Master's program and am job hunting, etc. so I'm really stressed!!)

Does anyone have anything similar to this? I'm going to call my neuro today to see if it's strange that the dots haven't disappeared.  She said that it could only be simple partial seizures or migraines.  Any similar stories would be appreciated!

-April

By beatleape at Mon, 05/12/2008 - 4:30am | 127 views | 6 comments

Recent Comments on this Discussion

Over the past 15 years, I have had 3 similiar episodes as follows:

  • I get a flashing light way over to the side of my left eye.  It is accomanied by a terrible, not-right feeling.  It is the worst feeling I've ever experienced.  It continues, starting with slow flashes turning to ever-quicker flashes until all I can see everywhere are flashing stars of light (this can be 20 - 30ish minutes??).  Pure extended torment.  My eyelids start twitching in time with the flashes.  When the flashing stars overtake my entire vision, I pass out and have a "grand mal" or secondary generalized seizure.  All three instances occurred after physical trauma (roller coaster, car accident, then car accident & broken arm).  A fourth time I had the flashing lights for at least 30 if not 40 minutes without a seizure.  In this case, my sister took me to an emergency care clinic at my insistance & they injected me with a sedative.  I then slept the remainder of the day.  When I was around 10 or 12 (can't remember exactly), I started having the flashing lights, but usually only for a few minutes (2 - 10 maybe?), then would have tunnel vision for a couple of hours.  This happened a few times a year, but never with an ensuing seizure.  Sometimes my head hurt, sometimes not.
  • I now take Effezor for anxiety & started taking Lamictal two years ago.  Since beginning Lamictal, I have frequent "auras" or maybe simple-partial seizures???  This never happened before.  I do not see flashing lights (thank God), but when they occur, they last a few seconds to a couple of minutes & result in me having to curl up.  They will continue over and over again that day until I finally take a nap or go to sleep.  Often times they come on when I'm eating or drinking something.  It's awful.  I get this feeling like I'm outside my reality looking in on "normal" reality which looks quite unfamiliar to me.  I usually only see singular objects from my "normal" reality & when I try to focus these objects, I get a nagging, fuzzy feeling that I've just been somewhere, just had a substantial experience that I can't quite put my finger on.  At that point (of trying hard to remember or pinpoint this feeling), my blood "runs cold", I get nauseous & a really horrible "icky" feeling  in my stomach (but not physical).  It makes my skin crawl & I feel very frightened and overwhelmed & have to curl up and ovoid stimulation, less it occur again immediately.  I wonder if I'm remembering a dream or an experience from childhood, or from a time when hospitalized & sedated...It's so sublime.  I hate it.  Again, I never had these experiences before taking Lamictal.  It's so strange.
  • I have yet to come upon anyone else with such extended auras or simple or complex partial seizures such as the ones before my generalized seizures...
gem

A few years ago I suffered a hemorrhagic stroke centered in the visual (brain) cortex.  The source of the bleed was repaired surgically, but the surgery left me with migraines and epilepsy.  The migraines are just as you describe; usally starting with the little black spots, graduating into a blazing white light in the center of my vision.  If it gets really bad, it turns patriotic (red, white and blue), then on comes an epileptic seizure. 

However, the fix is easy ... Topomax (Topiramate) ... an anti-epileptic, but also a well known migraine preventative medicine.  At the first black spot I take a 25 mg Topomax tab, and 15-30 min later, I'm fine.  I still use other anti-epileptics (Lamictal & Dilantin) for the epilepsy, but the Topomax controls the migraines [I'm told it does nothing for pain, just "visual" migraines].  Don't take too much of the Topomax on a regular basis, otherwise you'll find out why they nickname it "stupa-max" (it makes you a little confused at higher doses).  But, at 25 mg a day its not a problem.

Good luck.

btamm

Hello,

I suffer from a migraine daily, and 40% of the time a migraine is followed by a seizure. My whole life has been comsumed by seizures lately, and I think it's because I am in school. I am getting my Associates, and if school is the cause of my increased seizures, I doubt I will make it to my planned goal. However, let me share my symptoms with you, because not only am I still confused, but so is my Dr, and everyone around me. I will wake up in the morning numb. My brain is literally numb. Within an hour my head will start to burn either on the right side or in the back part. Through the day the burning will migrate, after the burning progresses to a point, the migraine will start. This intense pressure will start at the back of my skull. Then by night time I will be having a seizure if not 2 or 3. Once I have the seizure the pressure and the burning is gone for a while. It's like the seizure gets rid of the burning and the pressure. It's odd. Now, I am experiencing blackouts while walking in the store, I am falling all over the place, my vision goes in and out, I have facial tics that weren't always there, my right eye feels like it's going to twitch out of its socket some times. And I get so stupid at times people look at me like I am on drugs. I lose days at a time on my memory because of all of this. My school isn't effected YET thank goodness. I am in search of a new Neuro. Funny thing is, there are none in my area! If anyone  has symptoms even remotely close to these it would be good to know that I am not alone or going crazy.

jadeda...

I've had several of these ocular migraines too.  I never get a headache with them, but the first time I had one it scared me so much because I had no idea what it was and I thought I was having a stroke.  I also see black dots in my vision, that are different from floaters which I see all the time.  It never occurred to me that they could be a seizure.

I was diagnosed with TLE about a year ago, but I've probably had it most of my life.  I suppose the ocular migraines might actually be seizures, but they could be just migraines, too.  I actually had a small one the other morning, where my vision started breaking up into semi-circular areas that made it hard to read.  They usually last about 20 minutes to a half hour.

I take 1000 mg of Keppra twice a day, and it helps with the seizure related stuff, but the fact that I still had an ocular migraine the other day makes me think that it's different from the seizures and doesn't respond to the Keppra.  At least I hope that's what's happening and not that the Keppra isn't working any more!

Deb 

 

catsamu

I've had some similar to these expeieines except it was not a black spot it was always a white light type thing that blocked out the top part of the rt of my vision then it would go away eventualy but I always had a seizure sooner or later more like sooner that latter

KLP

I too see this Black, sometimes dark gray spot, floating around in my eye before and during my severe Migraines. I have had Migraines so bad that I end up in the ER, confused, overwhelmed, dissy and vomitting. Recently they have been getting worse, lasting up to 3-4 days, and having a day of "after math" where I am totally out of it and just feels like my brain is not working properly. Also, I have been suffering more and more Memory Loss, it's so bad that I get lost or forget what I just said or did. The only way to explain it, is that I just blank-out, or space out. Almost like a Day Dreaming affect but afterwards, Im confused and dont remember what just happend. These moments last anywhere from 5-10 seconds to several minutes. I haven't seen a specialist yet, I am geting blood work this week and then off to the Neurologist. My Grandmother suffered from Epilepsy from age 5 until her death at age 76. I never even gave Epilepsy a thought until I started typing in my symptoms and searching info on the web. If I do have some sort of Epilepsy, it's not as bad as what my Grandmother had, she suffered from Grandmal Seizures. I'm sure the Neurologist will schedule me for an MRI, and Im curious to see what shows up, because the migraines I suffer are anything from normal!

migrai...

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