New - Explaining Epilepsy
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is anyone else depressed? do you take meds? if so what.
does anyone else have constant tinitis? mine began after my first complex partial with generalization grand mal seizure 10 years ago and was put on dilantin. it had not stopped since. despite different meds.
I don't really know any other people who have seizures other than my sister, who has different seizures than me. anybody else have more than one family member with seizures? my (our) doctor says that there is more evidence that epilepsy may have a genetic basis which hadn't really been considered before.
Recent Comments on this Discussion
I get bouts of depression from time to time. I also have tinitis as well on my right side of my head.
I always have the high pitch ringing noise. I have had seizures since I was 5. I am now an adult.
I do not know of any new particular way to stop the ringing on the right side of my head and I
never know when I am going to get depressed.
Oh JEEZ, LOUISE!!! My tinnitus never STOPS.... EVER. I first had my first grand mal in Aug of 07 (dur to brain surgery) and I have had tinnitus constantly since Dec 07... It never never never stops. I cannot be in quietness... I have to have noise going on or I will probably go NUTS. We even sleep with the television on, cause I cannot stand to hear the constant rinnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnnngggg. I have had my hearing checked, that isn't the problem. They suspect that something was damaged during the surgery (other problems have arisen since then for me), or due to the epilepsy. They tell me that the epilepsy is permanent, will never go away, never resolve itself. Apparently ny brain "taught" itself that seizures were a cool thing to have, and now the "pattern" has been laid down and not even combo of drugs will stop mine. But mine aren't nearly as bad as they initially were. At first, I was having grand mals every day, and other seizure activity too. At least the grand mals aren't an every day occurance anymore! What a thing to wish for (which I could NOT have imagined saying five years ago...)... Please, just ONE grand mal this week, I can deal with that.
Isnt' that something? The milestones that you have that you never think you would have EVER said before....
Good luck.
Someone please talk to me, tell me if they have gone thru this and how to deal with this
I just had my second tonic clonic seizure. First 1 was in '05-couldn't find the cause. Tests were all normal. Then I had one last Saturday while in the passenger seat picking up my fiance's father. It lasted 8 min.s Like before I came out not knowing who I was, who anyone was, couldn't talk. And it took me a while to come to. I was embarassed and sad. And now I seem to be in such a horrible depression, not able to sleep, no energy, panic attacks. I have a 3 month old and all I think about it her. What if I was driving, I would have killed my babygirl. Now I won't take her for a walk, I'm scared to have another one if I'm walked alone with her. I won't bath her or take her in out inground pool. Even when I get my license back I don't think I will ever be able to drive with her in the car. I'm already terrified for the future.
I was supposed to go back to work after brennan's family left, but now I can't because no license, and he doesn't want to have t o wake her up at midnight to pick me up when he has to be up at 5:30 am anyways. His family is in and he's never home and I'm so paranoid I make him drop me off at my parents till he's done golfing or fishing just so I'm not home alone and have another one. I used to get partial seizures after my first one and now I'm nervous that I will get more. I have been so depressed, not wanting to be bothered by anyone, and yet not wanting to be left alone and just wanting to bbe held (I feel like I'm losing my mind). I have been so rude to my fiance' because he just doesn't understand what I'm going thru. I still don't feel right. Didn't remember anything I did for like 3 days after the seizure and now I still feel in a god. I'm slow to think, I just don't feel like my mind is all there.
I thought people got back to normal within 24 hours of a seizure and it's been a week. I used to suffer from depression and anxiety, but since my miracle little Hailey has come into the world I have been the most happy mother on the planet. I was on a high from the joy of motherhood. And now I feel just like this seizure has taken everything from me. My chance for going back to work and finishing my 5 classes for my degree in Medical Laboratory Technology/Histology/and Biotechnology is shot since classes are 2 hours away in Maryland. Has anyone ever gone thru these feelings of just worthlessness and just like there is nothing to look forward in the future when it comes to making something of your life and feeling safe alone with your child. I have no idea how long my license is gone for so I have to rely completely on Brennan for everything. Rides, picking up my necessities, bathing the baby, taking me to my parents so I'm not alone in case of another one. I'm only 24 and this seizure is making me feel like my life is over in many aspects.
I was in such a bad mood last night I packed all my clothes and stuff to move home basically over a petty little fight with Brennan, beause I just feel like he doesn't care. And deep down I feel he resents me because he has to take care of me and do everything for me. They put me on clonopin, but I can't take it because if he finds out he would leave me and take myu child from me (years ago-around the time of the seizure, I had an addiction to benzo.s and almost ruined my life)(I actually think I had the seizure because I quit xanax cold turkey for a week,, then I ended up getting back on them because of how upset I was). I know I'm kind of scattered in this, but that is how I have been. My memory is shot, I'm so slow to answer questions. Someone please help me and tell me if this is normal, if anyone has gone thru this, and give me any words of advice.
I have had seizures for 9years now. They first started when I was in a car accident 10years ago. Its up to you to fight the seizures and what I mean is when you have one, don't let it declair your life. I had one just last night in my sleep and my daughter who is 8, let me know and that was it. She's been calling the paramedics for me eversince shes been 4 and she is no longer scared of her Mommie because she knows I'll be fine. Seizures will not control my life to the point that I'm scared to leave the house! Also, when you worry alot and have alot on your mind that causes the seizures too. You have to learn to let almost all of you problems go and begin your day on a good note. Would you still have all the problems that you talk about if it were not for the epilepsy? I'm sure you would. the epilepsy just gives you a reason to blame them on. Start to execise and eliminate the stress in a different way and get enough rest. The medication makes everone slow to think, that's it's job to slow down the brains fuction. I hated it at first but if you take it the way you are supposed to, than your body adapts to it. Fight for your children and yourself we have the ability to walk,talk,eat on our own andtake care of ourselves. If you don't act like your helpless no one will treat you that way. Fight damn it , Fight! Most of the medications that are prescibed, make us depressed so realize that it's not you, you are just fine Pull your self together don't accept help unless you really need it because it handicaps us. God bless you.
1st - don't drive if their not controll
2nd - do you have auras (feelings that a seizure is coming)? If so, that's a warning telling you to get out of situations if possible. For me I automatticaly sit down. If you do have them you should be able to hold & take care of your baby, do things that you want to do etc....
3rd - depression is very common with E. Have you seen a Psych? If not, you need to. They can give you meds that really help. I used to take some.
4th - I take Lamictal. I found out recently that that's why I get my headaches. Remember that meds can give a lot of side affects.
5th - My E got so bad I couldn't be left alone for 2 years. I had to go over to my mo-in-laws house. Then I finally said that I was ready & confident to stay home alone. Thankfully, I now only have 3 min long sz and come out quickly. Interestingly, it's when I'm with people that my szs go crazy.
6th - If he doesn't care enough about you than he should be gone! I understand that it'd be very frightening, but you must have friends/family/neighbors who could help. I have difficulty asking for help, but those true friends, etc would want to help.
I've found talking to people about E really helps. Meaning friends/family/neighbors heck even strangers. The more people who know you have it, the better odds you have that you'll be taken care of. Books and the E conferences help. The people listed above would take you places and help you do things (get groceries, etc). Go to Epilepsy Foundation (efa.org) and get their magazine $15/year. It's good info.
I hope this helps. Good luck.
Hello,
I have complex partial for 20 years after a skull fracture. I'm on Lamictal (after tegretol,dilantin, mysoline,valproate,keppra,or a mixture including phenobarbtal), and have been since the mid 90s. It works ok, though I still get those "aura" feelings at least once a day.
About depression: I dropped onto a serious depression in the mid-90s. For four years the Drs could not find an AD that worked, finally settling on ECT just to keep alive. During this time I was having 4-8 seizures a day, which sure didn't help. I'm on parnate for depression. Its an MAOI, kind of the last try AD.
Also klonopin also for anxiety. (Insurance co's hate me)
The old chicken or egg theory: what caused what? Still don't know. I'll be on AEDs and ADs the rest of my life. The depression is now mild and I can function.
I have ringing also. Just one ear, though it isn't as bad as the other people on this thread.
Sorry to go into so much about myself, but I want you to know you are not alone.
As for genetics: no. All from a damaged brain.
My best to you,
Corwin.
Hi Kat,
I've been diagnosed with bipolar disorder, so in the past I've gotten straight depression, but luckily (or maybe unluckily depending on how you look at it) I tend to run more manic. Especially since I've started lamictal for my seizures. Kinda sucks because they can't control one without controlling the other, throw in migraines and voila! We have a messed up Gina. But wth, it's my life, messed up has become normal for me. If things suddenly became stable and calm I'd probably have a panic attack waiting for "the other shoe to drop" type deal. I've noticed though that I can get depressed after some of the bigger seizures I get, it never lasts long though. I feel for any of you who have to deal with depression on a regular basis, i'm not sure if I could handle that, least with my BpNos dx I know it'll go away relatively quickly.
I seem to have more and more a low ringing in my ears. It's more noticable when everything is quiet. I didn't know that our medications could induce this, hopefully it doesn't get any louder. I've sensative hearing to begin with, something I've always loved, losing it would suck. esp. if it meant I'd be hearing buzzing all the time. There's nothing they can give for it?
No one else in my immediate family has epilepsy, that we can see. Strange behaviors, but then again my family is just plain strange on all sides anyways. However, my mother's cousin, and my fathers aunt and cousin, all had epilepsy. So it's definately there somewhere in the genes. Migraine headaches and mood disorders run strongly in my family too. One of the reasons I've decided not to have kids myself, too many genetic problems. Bah.
Hang in there, and know we're hanging in there with you out here, you're definately not alone.
epilesy and depression and tinitis
Sounds like strike one, strike two, and strike 3 for me. My Epilepsy is uncontrolled, I'm depressed because I have zero life, and many times, I can't sleep @ night because of my tinitus, not that I sleep much @ night anyway. I've had Epilepsy for more than 10 years, and I'm the only one in my family with it. I've taken Depakote, Dilantin, Zonegran, and now Lamictal in various doses. Lamictal seems to be working for me right now, we'll see what happens when the weather changes and it turns cold again. The cold of winter is the worst for my Epilepsy and unfortunatly, I live in the frozen tundra of NW, PA.
Yes this constant ringing in my ears drives me nuts. No doc can find a clue I think it's from grinding my teeth at night. I went and got a pair of hearing aids and the girl had them tuned to boast the sound around the ringing is. they help but they annoy me. It comes and goes most of the time it's here
Hi
I have epilepsy and mild seasonal depression, especially when I am tired. I don't have tinitis. I had an uncle who had epilepsy as a child but he outgrew it. My mother died presumably from post-partum depression and my oldest brother commited suicide. I have a job as a landscape gardener with lots of exercise to help ward off the depression. I have heard many doctors say that the chances of a child having epilepsy when one or more parents have or had epilepsy are very small. My Uncle's daughters didn't have epilepsy and my siblings don't have it either. However, there is research showing that there will be more cases of seniors getting epilepsy as the baby boomers get older.
My meds have definetly made me depressed before, Keppra was hell. I'm now on Topamax (and since yesterday Dilantin) now which is better but that's when my tinitus went from being an occasional thing to being daily and being LOUD in both ears. Its called Ototoxicity i believe, damage to the inner ear by medication. Siezure meds are known to do it, kill hearing at higher frequencies. One friend of mine told me that once you get tinnitus from meds it just will never go away. Darn! I thought it would.
I've heard of other families where both siblings will have siezures, different types. Hereditary links are still not really well researched. I asked since my father had siezures for a short time in his early twenties that he seem to outgrow- but I haven't.
peace R.C.
hi wow this descibes me pretty well , this is the first time I heard some one say what I say that is 24/7 ringing in my ears I try but this wakes me up and after I take tegretol it turns into 2 or 3 pitches or buzzing .
a "normal" person would explode if this what happening .
I was never depressed from E in fact did,nt think it was very bad at all but oddly it woks in reverse and I became depressed after my dads death and had more szs and LIFE became a LOT my wife showed SIGNS of mental illness that got worse and more LIFE more funerals and wow depression and now a vicous cycle of depression, szs. and the illnesses that come with E and the side effects of these meds are depression tired etc etc . and the cycle continues . now with memory loss and ringing in my ears and wow again
I find myself depressed very depressed with szs and the cycle continues ????????????
I know myself real well and always see the good side and frankly am still shocked that I me could be depressed I am almost completly disabled by this and do not have a real clear anser why ?? that is the hardest part the not knowing ,I swear if I were say an amputee or a host of others things after the initial t rauma I would just go on .But I wake up regularly and take it all in wondering if I had a sz what a trip.
The worst part for me at present is .....hmmm i FEEL STUPID I have never felt stupid or dumb or lacking if I needed imfo I read a book a mag I "had" 25 hobbies I know little of this imfo. now ,if I re learn it I will forget it whats the use ???the cycle starts again what a trip . Rick