Hi. Is it me again. You are probably not going to get a specific response on BOCE because when I was new to this, there was not too many of us out there- it is a less common form. Most of the kids seem to have Benign Rolandic Childhood Epilepsy. When I posted on the same subject, I did not get a response. I always read the parents threads and think I may have helped one or two other families whose doctors also were not aware of BOCE. You need to go to a Epilepsy specialist versus a general pediatric neurologist. What area are you in the country? We see a specialist in the Chicago area. Had your doctor heard of BOCE? I will contact my doctor's office and ask them for a recommendation for someone in your area but we need to find a way to communicate. I hope your child does fit the diagnosis because as frightening as it all is (and believe me I know), there is a light at the of this dark tunnel. It is a good prognosis. Am going to add you as a buddy to my list. When you log on and you see your name under the Online Users, click on your own name. Then it will indicate whether you approve me as a buddy. Once you do that, respond to this thread and you can tell me a time to meet you on-line. I will try to help you through this process. It really sounds like it has been incredibly stressful for you and finding the right doctor will change your life. It did for us. When we first met with our specialist, he spent an hour and a half with us. The next meeting 45 minutes. You need someone who will answer your questions and help you feel grounded. As to all the meds your son is on, that is another reason you need the right doctor. Your new doctor hopefully can find the meds.