Hi. I'm new to this. My 9 yr old son was diagnosed with Complex Partial Seizures with secondary generalized seizures last July. He had 2 seizures in 2 months and had a 3rd during his EEG. He was put on Trileptal (300 mg 2x day). He was tired/sleepy and is very sensitive to dosage changes. He went 110 days then had a seizure at school. Dr. increased dosage then had to increase again 'cause bloodwork showed first increase didn't get him to a high enough level (started at 10, then moved to 15 but first increase didn't get it to a 15). Doing OK after that but 4 mos later he complained of tingling hands 3 days in a row so Dr. increase meds again. He made it though that adjustment and was good until last week when he had a grand mal at home. Dr. increase meds AGAIN.
He is up to 600 mg in AM and 750 mg in pm (1350 mg/day). That is well into theraputic levels (he weighs just under 70 lbs and has grown around 3 inches this year -- Is all this growing throwing everything off?)
Is this how this goes? Just when I feel like it is working and I can relax something happens. Does anyone have any advise?