my name is Kristin and I'm new here looking for answers. Let me tell you a bit about myself before I tell you why I'm here. I'm just turned 21 years old and I am here because I have been having strange episodes. I also have Aspergers and recently started at a school for young adults learning to be independent. Everything was going really well until my dr started taking me off one of my meds clonazapam for sleep. He was tapering me off it for some time but after I went off the last dose which was 0.125 mg. I started having withdrawl symptoms. I should mention that I am very sensitive to pretty much every drug known to man. I also take a lot of meds but have been on them for some time. Anyway at first the symptoms I were having were increased saliva, anxiety, not being able to sleep , and cravings for only cheese quesadillas. This went in for a few days and then staff at school noticed I was having face twitching without me knowing, this turned into brief moments of me staring off into space and my eyes blinking quickly along with a head nod and my right hand twitching for about 30 seconds or a little longer. Again I had no recollection of this. The only thing I noticed was before I would get a tingly feeling in my body and after I was nauseous. This then turned into a longer episode where a staff found me doing this and not responding for about 4 to 5 min and then I was tired and my head hurt. They took me to the ER which started me back on the clonazapam and sent me back to school. I was ok for about a day and then I started having more episodes of the same nature I was taken back to the hospital and was admitted for a v EEG for about a day. I however did not have an episode in the hospital because I was not having them every single day. They found nothing during this time because I didn't have a episode. So they told me my seizures where phycogenic. Which didn't make sense because they only started after going of my clonazapam. I also seem to have more severe reactions to things because of my autism, and doctors always assume that since I have autism that everything is a psychiatric problem. After this I went home for thanksgiving and was ok as far as I know but I wasn't being watched as closely I was feeling fuzzy and very tired though.I went back to school and started having more episodes of the same nature but not as many but I was having some in my sleep because staff found me on the floor and I was in a puddle of drool and had bit my lip and wacked my arm. They decided to send me home early for the holidays until they had a plan of action of what was going on from a dr. I went to a new phyciatrist and he believed these episodes where indeed seizures from the med so he decided to taper me off a lot more carefully then my other dr did. I was ok for over a week and then a few days ago I had another episode except this episode was very different from the ones I had at school at least from what I remember of the ones at school. Anyway this is what happened from what I remember and what my parents told me. One of our family friends came over and we were just standing around talking when I started feeling really sick. I got this weird hot tingly feeling that started in my stomach and proceeded up to my head and then my head kinda hurt and I got nauseous and my vision went all wacky. I started seeing all of these bright yellow blobs everywhere and my legs felt like they were gonna collapse. It almost felt dreamlike.I didn't want to be rude or draw attention to myself so since I could still see somewhat I decided to make my way to the couch which is only like 10 feet away from where I was. Brilliant idea me, So I thought I turned to my mom and said i'm going to go sit down but apparently I didn't. I remember starting to walk but there is a lapse in time from when I started walking to when I promptly walked face first into our front door. Apparently mom asked where are you going and I sorta remember hearing her but it was very far away. Actually im not sure if I remember this or I just remember her telling me this after. I didn't know at the time it was our front door for all I knew if could have been anything hard, I found out later it was a door. Apparently I was walking like a zombie like sleepwalking except without my arms in front of me, unfortunately because that would have helped my face! I remember hitting the door because it hurt! It almost like woke me up for a second, but then I don't remember falling to the floor. I also don't remember my dog coming over and jumping on me. I do remember hearing voices again far away and finally my vision started coming back and my parents helped me to the couch. Finally I got to my final destination!!! lol Unlike the other episodes I was not as exhausted afterwards. But I did bust up my lip and nose nicely. and smashed both my knees and head. My head was ok because my mom caught it before it hit the floor but I do have a bruise on my forehead from the door. I also have a nice sore butt from the floor lol. And I must have twisted my knee too because it hurts like heck to bend. Well so much for not drawing attention to myself. lol Anyway my parents don't know what happened but i'm still afraid it was a different type of seizure. They think maybe it was my low blood pressure. But the thing I don't get is how I was walking but unconscious because I know there were a few seconds where I was unconscious but was walking. My parents don't think this is possible but i know I was unconscious because A i don't remember walking and B if I knew I wasn't making my way to the couch then I would have stopped. Also my eyes were apparently open when my mom caught me on the floor. I don't walk into doors for fun!!
Anyways thanks for reading and if anyone has some suggestions on what this could be or what to do I'd be very grateful.
Thanks have a great day