RECENT UPDATES

1/2017 - Actor Greg Grunberg Visits The Doctors Show to Share Son's Personal Story with Epilepsy - Greg Grunberg's son Jake began having progressively worse seizures due to epilepsy, he and wife Elizabeth were forced to make a difficult decision. They had to decide if their son should undergo... (More Info) 

11/2016 - Epilepsy Foundation PSA for National Epilepsy Awareness Month - Have a better understanding of what a seizure looks like and know how to perform first aid when someone is having a seizure. #ShareMySeizure (More Info)

11/2016 - Talk About Epilepsy - Hollywood Director J.J. Abrams Encourages Everyone to Understand the Importance of Seizure First Aid and More with the Talk About It Awareness Campaign - www.TalkAboutIt.Org

11/2016 - Who Is Your Epilepsy Hero? - Actor Greg Grunberg Supports #MyEpilepsyHero Online Campaign that Recognizes Important People in the Lives of Those Living with Epilepsy - More Info


 

RECENT PRESS RELEASES

9/29/2016 - Epilepsy Foundation Enters a $16 Million Partnership with CDC

Epilepsy Foundation will embark on a five-year cooperative agreement with the federal Centers for Disease Control and Prevention (CDC) to expand epilepsy education and awareness nationwide. This competitive cooperative agreement is part of CDC’s...read more.

9/15/2016Epilepsy Launches #AimForZero Campaign Urging People to Raise Awareness of SUDEP

In response to the urgent need to raise awareness of Sudden Unexpected Death in Epilepsy (SUDEP) among people with epilepsy and their caregivers, the Epilepsy Foundation’s SUDEP Institute today issued a special expert consensus report, #AimForZero: Striving Toward a Future Free from Sudden Unexpected Death in Epilepsy. The new epilepsy.com report is the...read more

9/13/2016 - Epilepsy Foundation Announces New Online Certification Training for Seizure Management

Epilepsy Foundation announces the launch of their new “Seniors and Seizures” online training program designed to provide better care for the older adult population. The program is fully accredited by the Centers for Disease Control and Prevention...read more.

9/7/2016 - Support Epilepsy Foundation at Your Nearest CrossFit Gym

Athletes vs. Epilepsy announces its first CrossFit charity challenge that will celebrate the one year anniversary of CrossFit Games athlete, Jenny LaBaw’s “Move Mountains” run across the state of Colorado for epilepsy awareness. Anyone can participate at home...read more

8/30/2016 - Epilepsy Foundation Secures Prestigious National Accreditation

Epilepsy Foundation is among a select group of organizations to be accredited by the Alliance of Information and Referral Systems (AIRS), in recognition of the quality of information and referral service it provides to the epilepsy community...read more

8/16/2016 - Epilepsy Community Disappointed DEA Won’t Reschedule Cannabis to Improve Access for Research

The epilepsy community, comprised of 3 million Americans living with epilepsy and seizure disorders, their families and caregivers, as well as the health care providers that care for them and the scientists who are searching for new treatments and a cure, eagerly awaited...read more

8/10/2016 - Epilepsy Foundation Announces Final $1 Million Challenge to Identify Biomarkers Predicting Sudden Unexpected Death in Epilepsy (SUDEP)

The Epilepsy Foundation SUDEP Institute announced the winners of its third challenge, “Predictive Biomarkers of Epilepsy Seizures.” This was the third of four challenges that will ultimately award nearly $1.2 million in... read more.

(All Press Releases)

 

 

EPILEPSY FOUNDATION IN THE NEWS

Morning Consult - 11/11/2016 - "A Unique Opportunity to Focus on Epilepsy Patients and Innovation"

Epilepsy News Today - 10/17/2016 - "CDC Team Up to Raise Awareness About Epilepsy"

OnPAR - 10/6/2016 - "Leidos Expands OnPAR Membership to Include Epilepsy Foundation"

NewsWise - 9/28/2016 - "World's First Focused Ultrasound Clinical Trial for Epilepsy Begins"

The Daily Caller - 7/29/2016 - "Aussies Will Test Pot on Kids with Drug-Resistant Epilepsy"

Health Day - 7/13/2016 - "Epilepsy May Triple ADHD Risk, Danish Study Finds"

Epoch Times - 7/13/2016 - "Study: For People With Epilepsy, Suicide Rate is 22 Percent Higher"

BuzzFeed - 6/26/2016 - "17 Things Everyone Should Know About Epilepsy"

NewsWatch - 6/10/2016 - "My Seizure Diary"

Newsweek - 5/12/2016 - "We Must Stop Discriminating Against the Seriously Ill"

WTTG Fox 5 DC - 4/16/2016 - LIVE at the 10th Anniversary National Walk for Epilepsy

WJLA ABC News Channel 8 - 3/14/2016 - 10th Anniversary National Walk for Epilepsy

Healthline - 2/2/2016 - "Epilepsy Deaths Have Health Officials Worried"

The Huffington Post - 1/7/2016 - "'Pebble Seizure Detect' is a Brilliant Use for Smartwatches That Could Save Lives"

Media Contact

Ken Lowenberg
Vice President, Communications and Digital Strategy
klowenberg@efa.org
Work: 301.918.3773



SPECIAL FEATURE

My Seizure Diary - New Web Tool

Over 40k users have registered to the new web tool, My Seizure Diary, that will provide a better understanding and control of seizures and epilepsy. (Press Release)


UPCOMING EVENTS

  • Saturday, March 25, 2017 - 11th Annual National Walk for Epilepsy: Thousands of walkers and supporters helped to raise over $1 million in 2016 that will greatly benefit people with epilepsy, awareness programs, health care options, and research funding.

About Epilepsy Foundation

Since 1968 the Epilepsy Foundation has been at the forefront of helping those with epilepsy strive to become seizure-free and live to their fullest potential. With close to 50 local foundation across the nation, the Epilepsy Foundation focuses on engaging the community with better understanding of epilepsy and its impact.

Mission
To lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

What is epilepsy?
Epilepsy is a neurological brain disorder characterized by disturbances in the electrical activity of the brain. It affects men, women, and children of all ages, races, ethnicities, and socioeconomic backgrounds.


Epilepsy Facts

  • Affects 3 million people in the United States
  • Affects 65 million people worldwide
  • Epilepsy is the 4th most common neurological problem nationwide
  • Each year, 150,000 people will develop epilepsy
  • 4 out of 10 people with epilepsy continue to experience uncontrolled seizures

Leadership Bio

Philip M. Gattone - President and CEO

phil