Epilepsy and Family

Epilepsy affects the person living with seizures as well as their family and loved ones. Each person in the family will experience it a bit differently.

From December 15 to 21, 2014, we’re talking about epilepsy and the impact it can have on the entire family. Be part of the conversation with hashtag #EpilepsyAndFamily.

Join us as we #DareTo Look Beyond Seizures.

December 21

Facebook

All week long we have looked beyond seizures. We have looked at how epilepsy affects our lives and the lives of those around us. We looked at the emotional impact of epilepsy on our friends and family. If you should ever need information or help, remember our 24/7 Helpline is here for you at all times. Give us a call at 800-332-1000. Special thanks to Sunovion for their help in making this week’s social media campaign possible. #EpilepsyAndFamily

This week we have talked about #EpilepsyAndFamily. Epilepsy can have an impact on friends and family. Parents of children who live with seizures often report they sleep in their child’s room, or have their child sleep in their bedroom. Fear can cause parents, roommates and even yourself to become sleep deprived. Lacking sleep isn’t healthy. For those living with epilepsy, lack of sleep can trigger a seizure. Consider using a seizure monitoring device to help give you and your family peace of mind for a healthy night's sleep.  bit.ly/1zb0bvL

In this week’s ‪#‎CommunityCorner,‬ Patty Shafer talks about epilepsy and the family and the impact that it can have on not just the person with seizures but the family as a whole. Read her article at bit.ly/1wU5j4d

Twitter

This week we talked about the impact of #EpilepsyAndFamily. If you missed any posts you can read them here #Seizures

For more information on #seizure monitoring devices visit, bit.ly/1zb0bvL #EpilepsyAndFamily

Poor sleep is not good for parents’ health. It may be time to consider using a #seizure monitoring device. #EpilepsyAndFamily

Because of seizure fears, parents often report sleeping in the same room as a child w/ #epilepsy. #EpilepsyAndFamily

Google Plus

All week long we have looked beyond seizures. We have looked at how epilepsy affects our lives and the lives of those around us. We looked at the emotional impact of epilepsy on our friends and family. If you should ever need information or help, remember our 24/7 Helpline is here for you at all times. Give us a call at 800-332-1000. Special thanks to Sunovion for their help in making this week’s social media campaign possible. #EpilepsyAndFamily

This week we have talked about #EpilepsyAndFamily. Epilepsy can have an impact on friends and family. Parents of children who live with seizures often report they sleep in their child’s room, or have their child sleep in their bedroom. Fear can cause parents, roommates and even yourself to become sleep deprived. Lacking sleep isn’t healthy. For those living with epilepsy, lack of sleep can trigger a seizure. Consider using a seizure monitoring device to help give you and your family peace of mind for a healthy night's sleep.  bit.ly/1zb0bvL

December 20

Facebook

Although rare, there is a risk of death from seizures, especially uncontrolled seizures.  Sudden unexplained death from epilepsy (SUDEP) is a scary and burdening thought for families, but there are real ways to minimize the chances of SUDEP. If you haven’t talked to your doctor and health care team about SUDEP it’s time to ask the question. Talk to your family, friends, caregivers and others in your life about lessening your risk of SUDEP. For resources, information and more, visit, bit.ly/1uYOOQe #EpilepsyAndFamily

When living with epilepsy, seizures are only one part of the equation. Epilepsy can have an impact on relationships, too. It can put a strain on relationships with siblings, parents, children of a parent with epilepsy as well as friends.  Epilepsy.com can help you understand the effect epilepsy can have on parents, friends and the family as a whole. bit.ly/1C77NOh, bit.ly/1v4TmW4. #EpilepsyAndFamily

Twitter

#SUDEP is rare & can be scary but there are ways to lessen your risk, visit bit.ly/1uYOOQe  for more info #EpilepsyAndFamiliy

The thought of #SUDEP is stressful but it’s rare & there are ways to lessen risk. bit.ly/1uYOOQe  #EpilepsyAndFamily

Instagram

instagram.com/epilepsyfdn

Sudden unexplained death from epilepsy is a difficult topic for families and friends but it is important to #TalkAboutIt! Learn more about #SUDEP, how to lesson risk and talk to your heath care team at bit.ly/1uYOOQe #EpilepsyAndFamily

Google Plus

When it comes to living with epilepsy SUDEP (Sudden Unexplained Death from Epilepsy) is very stressful to think about or even say, not only for you but for your doctor as well. It’s important to talk about SUDEP and know how to lessen your risk. For more information, visit bit.ly/1uYOOQe. #EpilepsyAndFamily

December 19

Facebook

This week we have been talking about the impact that epilepsy can have on our family and friends. #TalkAboutIt. Thanks Sunovion for sponsoring this week’s #EpilepsyAndFamily campaign.

Twitter

This week's #Community Corner @EpiHelp talks about #EpilepsyAndFamily & the impact that it has on the whole family. bit.ly/1sJQfYB 

#Epilepsy can affect our relationship with our parents & friends. bit.ly/1C77NOh #EpilepsyAndFamily

#Epilepsy can affect how we feel as a family. Epilepsy.com can help. #EpilepsyAndFamily bit.ly/1v4TmW4

Managing #seizures is only one part of living with epilepsy. We need to consider our relationships too. #EpilepsyAndFamily

Instagram

Instagram.com\epilepsyfdn

Have you ever thought about all the ways #epilepsy can affect your life? It can affect your relationships with siblings, your parents, your children and your friends. For help and a more in-depth look at epilepsy and relationships, visit bit.ly/1C77NOh and bit.ly/1v4TmW4. #EpilepsyAndFamily                                          

Google Plus

When living with epilepsy, seizures are only one part of the equation. Epilepsy can have an impact on relationships, too. It can put a strain on relationships with siblings, parents, children of a parent with epilepsy as well as friends. Epilepsy.com can help you understand the effect epilepsy can have on parents, friends and the family as a whole. bit.ly/1C77NOh, bit.ly/1v4TmW4 #EpilepsyAndFamily

December 18

Facebook

Getting family and friends prepared is an important part of being safe for someone who has seizures. What a friend, parent or sibling can do to help during a seizure will vary depending on each person’s age, maturity and comfort level. Consider practicing with your friends and family what to do by having a seizure drill so everyone will feel comfortable and prepared. It is also important to talk about feelings and reactions with each other too. For help and information on running seizure drills, visit bit.ly/1GIoC2J. #EpilepsyAndFamily

Twitter

Thank you Sunovion

Thanks Sunovion for sponsoring our #EpilepsyAndFamily campaign!

Talk to your family about #seizures. Everyone will have different reactions so #TalkAboutIt. #EpilepsyAndFamily

It’s important to have family involved w/ #epilepsy. Practicing #seizure drills can help  improve safety bit.ly/1GIoC2J #EpilepsyAndFamily

Instagram

Help us say thank you to Sunovion for partnering with us in our #EpilepsyAndFamily campaign. Remember the importance of talking about it with your family! 

Talk about it

#Seizure drills are helpful to have with friends and family. They can teach #FirstAid & help everyone in the family understand #epilepsy. It will also give everyone the chance to talk about emotions and feelings regarding epilepsy. Learn about having seizure drills at bit.ly/1GIoC2J

Google Plus

Thank you Sunovion for partnering with us on the #EpilepsyAndFamily campaign in this week!

Sometimes, as a friend or family member, it can be hard to know how to help your child, spouse or friend who has epilepsy. One way to help is running seizure drills to practice what to do. Since each person may react differently when seeing a loved one have a seizure, it’s important to talk about emotions and responses after a drill. For help and information on seizure drills, visit bit.ly/1GIoC2J. #EpilepsyAndFamily

December 17

Facebook

Yesterday, we were thrilled to have two of the members of the Sleepy Man Banjo Boys in our office! In the photo (below, see Instagram section), Robbie (left) and Tommy Mizzone surround Philip Gattone, son of the Phil Gattone, president & CEO of the Epilepsy Foundation. The three talked about the unique connections that siblings have when one of the family has epilepsy. As you know, Robbie and Tommy’s brother has epilepsy and so does Philip. Last week we shared Philip’s video dedicated to all siblings who help people living with epilepsy. If you missed it, watch it again here. #EpilepsyAndFamily

 

Give thanks here to someone in your corner. -- Friends and family are your biggest support when living with epilepsy and seizures. Their love and understanding can make each day brighter and can help us through the tough times. The Sleepy Man Banjo Boys wrote the song “Man In Your Corner” for their little brother Sammy, who lives with epilepsy, to let him know they will always be there for him. “Man in Your Corner” is available on iTunes and the band is donating proceeds from its digital sales to the Epilepsy Foundation. bit.ly/1BPYhSs Learn about the Foundation’s partnership with the Sleepy Man Banjo Boys at bit.ly/1zn9XIK #EpilepsyAndFamily 

Twitter

Check out Phil Gattone’s video dedicated to siblings who help people w/ #epilepsy youtu.be/ANGomzJ3NjE #EpilepsyAndFamily

Robbie & Tommy of @sleepyman flank Philip Gattone, son of our pres & CEO. #EpilepsyAndFamily ow.ly/i/7YMKs

Like @sleepyman, family & friends are there to help & support you. RT & thank someone in your corner. #EpilepsyAndFamily

Ever heard Man In Your Corner by @SleepyMan? A song dedicated to their bro who lives w/ #Seizures #EpilepsyAndFamily bit.ly/1BPYhSs

Instagram

Robbie and Tommy Mizzone with Philip Gattone

The @sleepymanbanjoboys wrote a song to let their brother know they are always there for him, much like your own friends and family. Check out their song on iTunes bit.ly/1BPYhSs and give a shout out to the ones in your corner in the comments! #EpilepsyAndFamily Shown in photo, Robbie & Tommy flank Philip Gattone, son of our president & CEO.

Google Plus

Friends, family, and loved ones are your biggest supporters when it comes to everyday life and epilepsy. It’s their love and understanding that make the hard times better. #EpilepsyAndFamily. The Sleepy Man Banjo Boys wrote a song for their brother Sammy, who lives with epilepsy, to show him how much they care for him. Their song “Man in Your Corner” is available on iTunes and the band is donating the sales to the Epilepsy Foundation bit.ly/1BPYhSs. Learn about our partnership with the Sleepy Man Banjo Boys at bit.ly/1zn9XIK

December 16

Facebook

Earlier today we talked about stress and mood when living with epilepsy and how the family can be affected too. One of the best ways to combat stress and help keep your mood positive is exercise. Exercise is good for you in so many ways. Use it as a tool to lessen your stress and raise your spirits as often as possible. If you're worried about exercise and seizures, listen to this Hallway Conversation with Dr. Joe Sirven and Dr. Elinor Ben-Menachem regarding epilepsy and exercise. #EpilepsyAndFamily

Does Exercise Prevent Seizures? In this episode of epilepsy.com's Hallway Conversations, Dr. Joseph Sirven, professor of neurology at Mayo Clinic Arizona and editor-in-chief of epilepsy.com, interviews Dr. Elinor Ben-Menachem about a study looking at fitness and epilepsy.

 

We often talk about stress as a trigger for seizures and the risk of mood or behavior problems in people living with epilepsy. Family members of someone with seizures can also be affected by stress and mood disorders. It’s more common than you might think. It’s important to manage stress and mood early and often. The tips for managing stress available on http://bit.ly/1wTjwS7 can help anyone, whether you have seizures or care for someone who has epilepsy. #EpilepsyAndFamily

Our friend Greg Grunberg has a son living with epilepsy. In this video, he meets with his friend and “Heroes” co-star Milo Ventimiglia to talk about #EpilepsyAndFamily.

 

Twitter

One way to reduce stress is exercise. Learn about #epilepsy & exercise at (see "Does Exercise Prevent Seizures? audio file above) #EpilepsyAndFamily

It’s important for everyone in the family to manage their stress. Find tips at bit.ly/1wTjwS7 #EpilepsyAndFamily

We’ve talked about stress as a trigger. What about stress in family members? #Epilepsy can be stressful on everyone. #EpilepsyAndFamily

Instagram

Epilepsy and Exercise

One way to reduce stress is exercise. Learn about #epilepsy & exercise (by listening to the podcast "Does Exercise Prevent Seizures?" above) #EpilepsyAndFamily

 

Managing Stress

Stress is often talked about as a #seizure trigger. What about stress in family members? #Epilepsy can be stressful on everyone! Therefore it’s important for everyone in the family to manage their stress. Find tips at bit.ly/1wTjwS7 #EpilepsyAndFamily

 

Greg Grunberg and Milo Ventimiglia

Watch @greggrunberg and @miloanthonyventimiglia talk about how our family, friends, caretakers are always there for us. Watch now at bit.ly/1waPZl0.

Google Plus

Family members of someone living with epilepsy can also be affected by stress and mood disorders. It’s more common than you might think. #EpilepsyAndFamily. Check out the tips at bit.ly/1wTjwS7 for help managing stress whether you have seizures or care for someone who has epilepsy. A great way to combat stress and help keep your mood positive is exercise. Exercise is good for you in so many ways. Dr. Joe Sirven and Dr. Elinor Ben-Menachem talk about exercise and epilepsy in a Hallway Conversation podcast about epilepsy and exercise. (See "Does Exercise Prevent Seizures?" audio file above.)

December 15

Facebook

Epilepsy affects the person living with seizures as well as their family and loved ones. Each person in the family will experience it a bit differently. This week we’ll be talking about epilepsy and the impact it can have on the entire family. Join us as we #DareTo Look Beyond Seizures. Be part of the conversation with hashtag #EpilepsyAndFamily.

Twitter

Our friends @GregGrunberg & @MiloVentimiglia get together to talk about #EpilepsyAndFamily. bit.ly/1waPZl0

Join the conversation with the hashtag #EpilepsyAndFamily as we discuss how #seizures affect all members of a family.

#Epilepsy affects the family, friends & loved ones. This week we’ll be discussing #EpilepsyAndFamily

Instagram

Epilepsy and Family

Epilepsy and #seizures can affect everyone in our life. This week we’ll be sharing about the impact of #EpilepsyAndFamily

Google Plus

Actors Greg Grunberg and Milo Ventimiglia talk about the importance of family and talking about epilepsy. bit.ly/1waPZl0

Living with epilepsy can affect the entire family. Each person will have a varied experience and emotions. This week we’ll talk about the impact epilepsy and seizures can have on loved ones and the family as a whole. Be part of the conversation with hashtag #EpilepsyAndFamily as we #DareTo Look Beyond Seizures. 

 

Sunovion Pharmaceutics Inc.
Thank You!

Thank you Sunovion Pharmaceuticals Inc. for supporting our #EpilepsyAndFamily #DareTo Look Beyond Seizures Campaign!

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