My problem with seizures starting occuring about 2003. I was on the phone when I got an overwhelming sensation in my head and then felt it through out my body and the next thing I know the paramedics were there. I dont remember anything in between. That was the first event I saw a neurologist who told me it was all in my head. Two years later I had another episode and no one was around. So I had no idea what had happend and left it alone. but, in 2005 my fiance and I were home and I suddenly got tired quicky and layed down on the couch and my left arm went numb I sat straight up and got that overwhelming sensation again. I told him and this time I tried to stand up and the I got horrible pain and when I awoke there were paramedics and I was being taken to the er. I was put on Dilantin at that point.
Previously I had complained about sleeping issues that no one took seriously either!
I continued taking this medication and everything was fine but started having break through seizures. I was then sent to another neurologist who payed not attention to my concerns and ended up having to find another one. I was sent to another one in Seattle. Who never did any tests whats so ever. I saw him last month on the 13th and asked him why the seizures only happen before during after or make me suddenly sleepy and then they occur at no other time do they happen. He gave me no explanation and ran no tests. He said that i hadnt had seizures in 9 months see you in a year. the next morning i had a seizure and that night i started having one and basically i came to 3 days later in the hospital still disoriented went back to sleep. I dont remember getting home. and its not till now did i find out that i had had somwhere between 7-9 seizures that day.
I switched neurologists who one the first visit ordered an MRI with and with out contrast and an EEG. I also found out that I have partial seizures that in the old MRI that the previous neuros saw. it shows the abnomality on the right side of my brain that none of them did anything about.
why are they seizures only happening this way? I have a CPAP machine now also which seems to help when a seizure wants to come on. It forces air in and the seizure makes me numb for about 10-20 seconds and then stops not pain or anything but it is still freaking me out. No one in my family has epilepsy and I have never had anything to cause this problem unless it was from the complaints of sleep that i made that no one did anything about. Someone please help me.
I dont know how to feel emotionally anymore! and im sick of people saying get over it! If you can help please help. I will be greatful.
To everyone else who has seizures, Im there with you and I hope and pray that none of you have any episodes. Thank you for sharing your information not only to get help but to help other.