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Feeling sad

Tue, 03/10/2015 - 08:46

i recently had an appointment with my neurologist and I don't know about you guys, but every time I go there I feel really sad because I don't want to have to answer questions where I don't have the answer to. It's like the expect more out of us. Any time I have a seizure i black out or blank out so I don't know any of the triggers and yet they expect us to have the answer. I don't get it. Why can't they understand that it's really hard at times. I feel like I have no one to talk to or that no one understands what I am going through

Comments

MegI tried to thnk of the

Submitted by just_joe on Thu, 2015-03-12 - 19:43
MegI tried to thnk of the different things that happened during the day I had the seizure. Mood, was it hot, was I stressed. Things like that can be triggers. There are all kinds of triggers and even some not listed on this site. At my visits I generally have queastions for doc. Yes it can be frustrating considering you don't know what happened in the seizure or how long they lasted. But there are things during a day that can help th neurologist. Oh and noting is your seizures happened during your time of month. Hormonial changes do affect a person theraputic levels of their medication. As does a cahnge in ones weight. I was having more seizures during my teen years. The most seizures I had were during early teen when I grew rapidly. My dosages needed to be changed 4-5 times in about 1 year. I had gained about 50 lbs and went from 4'6" to 5'4"  most of that groth was in a 4 month period of time.Some questions may sound dumb or silly but try to answer them to the best of your ability. It could mean a dosage chage is all that may be needed in order to control your seizures. I would also suggest you get the My Epileps Diary. It is in the get help section. By using it your can note each day mood and othe things. Oh and there ia also a note pad that you can use to type in things that might have been different that day. Upset stomach. Was a little sick. had a temapture. Yes being sick can and does lower the medication levels. Watch the video and give your neurologist permission to bring it up. By using it and giving him permission he can view th information as well as the graphs and he might come up woth dosages or medicatins changes or even some other procedures that can help you. I hope this helps Joe

I've always tried to bring

Submitted by rckstr84@hotmail.com on Fri, 2015-09-25 - 14:50
I've always tried to bring someone along who knows what my seizures looked like. I've always hated the question 'how have you been feeling?'. How do I even know what normal feels like? My brain hasn't attacked me in a week is the best I can come up with. 

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