The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Divorce

Fri, 01/06/2017 - 14:00
I'm a 35 year old female with what is right now seizures that haven't responded to any meds (I'm on 2k keppa 2x a day, 800 of tegtrol 2x and recently added Lyrica 2x a day). This just all magically started on October 30, 2014 (you never forget that day) like I caught a cold or something. It's been tough, especially with seizures that are not controlled. I know the ER and neurology unit staff at Presby by name. It's sad but when you need stitches after bashing your face off something or things the like, you have to utilize your local hospital. My husband and i met in 2008 and married in 2010. Its not like we met off snapbook or whatever it is last week. My husband has been pretty distant for a few days. It's just not like him. We've always been incredibly close and best friends. We don't have kids so we get to spend a lot of time together. However this morning when I asked him what was bothering him, it's like I took the cork out the bottle upside down. He's sick of being a caregiver and he wants a divorce. There are so many emotions I can't even grab one to talk about. Beyond the being on ssdi for 789 a month and the what the hell am I going to do factor, it's realizing how belittled I feel (from the person i trusted most no less) because I have epilepsy. I don't know if I can say I blame him or not. I think I'm a little too angry to answer that right now. I do know that right now I blame myself more than anyone. I'm the one with the broken brain. Is anyone or has anyone else gone through this? I would really like to hear someones it's gonna be ok story right now. Also does anyone have any suggestions as to how an epileptic with seizures that are notncontrolled is supposed to make it on their own? I think I could figure out the epilepsy part. I can make a pillow fort apartment. Its just how do you pay for that when you get 789 from ssdi? I thank you all and hope your day is a billion times more blessed than mine. Cheers to a seizureless day!

Comments

Very sorry for what you are

Submitted by johnlp on Wed, 2017-01-11 - 13:35
Very sorry for what you are going through story sounds very very familiar only I'm a 35 year old male. I'm on 1,200 day oxcarsipine,1500 day keppra,and just started lamotrigine. I sit a home all day alone starring at walls while wife works.Makes you feel useless I know lost my job ,driver's license,and self confidence. It's tough people like me and you understand but don't think no one else really does. Just wanted you to know your not only one good luck to us all 

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.