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sophia hill's poem...."I HAVE EPILEPSY!!!"

Sun, 04/27/2008 - 19:41

I have epilepsy, what does that mean?
Does it mean I’m a retard; a spastic?

Does it mean it come and goes as it pleases?

Fucking twitches man...OMG...
I’m scared... what will the future hold for me?
When will I have a say on what happens to mybody…will I ever have a say?
It’s never ending. When will it stop?
What’s it like to be normal?
I have never experienced normality,
I have Autism and A.D.H.D too.
Please step into my shoes just for one day.
And then I can step into yours,
Just to see what it’s like to feel normal.
What’s the definition of normal?
Is there such a thing a being "normal"?
I feel pissed and drunk half the time.
I’m above cloud nine... more like cloud
High.... high above the Ozone
Layer heading in to space.
Apparently I’m category *A.*
Patient according to the hospital,
What does that mean?
What’s the meaning of “living the high life”, when life Hits you in the brain 10 or more times a day?
I will never be able to drive or go to a night club.
I’m 18 this year...
I will never be able to drink,
But I am determined to move out
And live in a place of my own.
I can never have caffeine as it
Brings on a 60 or more seizure in
One day and I will have 35 of these bastard Things;
All in the space of half en hour
And it can put me into a coma and then might decide to kill me.
Wow... it so hot...is it just me or is it really hot in here….?? .. Fuck I’m going to have a seizure; it’s not a "fit" but a Mexican wave in my brain.

It’s bloody Russian roulette honestly...go on… spin around a thousand times… in the dark and then pull the trigger and see if it hits me.... nope not yet... GO on do it again...I dare you!?!?... ARHH.... you got me…. I’m falling...boom!!!...O SHIT… I CAN'T SPEAK...I CAN'T BREATH....I'M GOING BLUE... I NE..I NEE.. I… NEED...DI..DI..DI..DIA...DIA...Z.E...PA...PA...PAM...!!

QUICK... HURRY.... TRY NOT TO WORRY IF I SHAKE AND BLEED FROM MY MOUTH… BY THE TIME YOU GET BACK FROM CALLING THE AMBULANCE!!!
It just means I am having a Grand-mal.

Epilepsy is not a disease But a condition.

Yes…..

...I admit and accept that I have epilepsy;
And yes all of us that have it, have a silent ticking time bomb in our heads.

SO… I will shout out to the world that I do exist … WE exist... please don't burn me or my fellow friends at the stake like our ancestor's did, or punish us because we are different, let me be…let US be. HELP me and the others to find a cure for this condition; as its not contagious or a disease... it just means there is two parts of me...one is hidden and only comes out to embarrass me and makes me and my friends feel like a freak show.

I have epilepsy!!!!

Comments

Re: sophia hill's poem...."I HAVE EPILEPSY!!!"

Submitted by cougardfw on Thu, 2008-10-16 - 21:12
That was so good ..it was from the heart and u know what I cried while I read it and it made me feel good cuz I needed it.. :)

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