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ponder life without seizures
Thu, 04/28/2005 - 20:27Topic: Teen Zone
i started having seizures when I was 12 years old. The first one ever was in a mexican restaurant in Houston. I can remember being dizzy by the low lighting, ceiling fans, the din of multiple voices and the vast number of ppl walking by. I woke up in a bed at my grand parents where I was in pain. My muscles hurt and the back of my eyes were throbbing. It was the worst feeling I have ever felt. I am 21 now and it feels like with every seizure, I feel worse and worse through the day. I only average probably 1 seizure every 3 months.Anyway, has anyone ever had the thought that they could do anything better if they didn't have to worry about if they were going to have a seizure afterwards. Yesterday, I had to stop working out because I began to have an aura. My roomate who I was working out with had to drive my truck back to our apartment. I couldnt recognize anything at this point. i was able to gain orientation back and avoid the seizure. I get tired of having to take it easy so that I dont risk a seizure. I feel like I could be superman if I could do everything as much as everyone else. There are times when I had to turn down invitations to go places with friends because of my problem. I can keep up most of the time with my friends but imagine how much more impressive you could be without the thought of seizures, side effects of medicine, or having to figure out how far into an aura is far enough.
RE: ponder life without seizures
Submitted by Myoclo_nic on Thu, 2005-04-28 - 20:27
I know exactly how u feel. Although i dont get pain after my sezuires. Just the pain of frustration. My sezuire are usually out of the blue though. I very rarely have signs at the start and if i do i dont think that i would be able to avoid having one. I was diagnosed at about 12 years old as well. I could go without a sezuire for nearly a year ( i have Juvanile Myoclonic epilepsy) and then suddenly have one. The docter reckons that it is due to a lack of sleep. But i usually get at least 7-8 hours of a night time sleep. We thought that it may be due to my temperture going up or somthing. I think its when my immune system is down. Anyways, i can still drive and go out and stuff but i always have to be cautious about everything, and that is so frustrating. After every sezuire i lose my confidence in myself and usually am afraid to go out on my own and stuff for about 1 or 2 weeks. I am 18 and all my friends get to drive and drink and stuff like that. I am restricted in both areas. I can only have about 1 or drinks, have to be careful when i am driving and things like that. It makes me so jealous. Its deppressing. I am on my L plates at the moment and have been forced to not drive for 3 months twice. whats the point ?So yes, your not the only one that feels this way. Life would be so much better if we didn't have this condition.