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Me and sis have 2 different types of ep.
Sat, 01/31/2009 - 00:23Im 19 with tonic-clonic ep. im on 300mg of lamictal daily since i was 15.
my sis is younger and just found out she has mychlonic* sz. she's on 1000mg of kepra.
we both started having them ar around 15-16
now that im in college the dmv has decided to pull my license 'indefinetly'
i really have started to see the ways ep has effected me and my family.
i absolutely hate admitting to have ep. i dont wear a braclet.
when i was first diagnosed. docs said 1-2 year sz free and i have had about 3 since then.
i feel that i will be on meds the rest of my life, which is pretty sad.
Comments
Re: Me and sis have 2 different types of ep.
Submitted by dainty on Sun, 2009-02-01 - 09:21
Truth is, having E does change things. Taking meds not fun either but the good news is, its ok. You will be alright. Hang in there. THings will get better. Every day Drs find out more and more about E and in time this issue will be better understood and maybe cured. You can have a full life on E just with a few modifications. Dont get sad, get glad and dont allow E to interfer in your dreams. Im sure its extra hard having your sister in the same condition but maybe partner up to teach the world E folks are just like anyone else. Dont waste your life being angry DO Something about it *
My sincere support to you. Congrats on college and maye you will be the person the change the face of E.
joan*
Son lamictal 19 Grand Mals Daughter lamictal 16 Juvenile myclonic Both had first issues at 15 Both JME - gotta love puberty : ) * Both dealing with it* Now finding all the lil nuances that go with it* Live, Laugh, Love
Truth is, having E does change things. Taking meds not fun either but the good news is, its ok. You will be alright. Hang in there. THings will get better. Every day Drs find out more and more about E and in time this issue will be better understood and maybe cured. You can have a full life on E just with a few modifications. Dont get sad, get glad and dont allow E to interfer in your dreams. Im sure its extra hard having your sister in the same condition but maybe partner up to teach the world E folks are just like anyone else. Dont waste your life being angry DO Something about it *
My sincere support to you. Congrats on college and maye you will be the person the change the face of E.
joan*
Son lamictal 19 Grand Mals Daughter lamictal 16 Juvenile myclonic Both had first issues at 15 Both JME - gotta love puberty : ) * Both dealing with it* Now finding all the lil nuances that go with it* Live, Laugh, Love
Re: Me and sis have 2 different types of ep.
Submitted by Nerak95 on Sun, 2009-02-01 - 01:41
I'm assuming that the DMV is restricting your driving because your seizures are not fully controlled. Yeah, it sucks but it's important to understand why. Having a seizure while driving can not only injure yourself but it could injure someone else, whether it may be a passenger in your car, another car or a pedestrian. Recently, there was a case where someone was jailed because they had a seizure and a person was killed. While it's easy for anyone to say it's for your benefit, I know it just doesn't seem fair.
There are many people with seizures that will have to take medication for their entire life to control their seizures. Don't look at that as being sad. Look at that as being positive in the fact that it is helping them to live seizure free. If you still are experiencing seizures despite changing the dose of the Lamictal, perhaps it might be time to talk to your neuro about possibly switching to another AED.
~Karen
I'm assuming that the DMV is restricting your driving because your seizures are not fully controlled. Yeah, it sucks but it's important to understand why. Having a seizure while driving can not only injure yourself but it could injure someone else, whether it may be a passenger in your car, another car or a pedestrian. Recently, there was a case where someone was jailed because they had a seizure and a person was killed. While it's easy for anyone to say it's for your benefit, I know it just doesn't seem fair.
There are many people with seizures that will have to take medication for their entire life to control their seizures. Don't look at that as being sad. Look at that as being positive in the fact that it is helping them to live seizure free. If you still are experiencing seizures despite changing the dose of the Lamictal, perhaps it might be time to talk to your neuro about possibly switching to another AED.
~Karen