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Lupus and Epilepsy

Sun, 11/19/2006 - 12:59
Topic: Teen Zone
Hi! I was diagnosed with Temporal Lobe Epilepsy and Frontal Lobe Epilepsy approximately two months ago. However, I have also just been diagnosed with Lupus and was wondering if anyone else out there has both Epilepsy and Lupus (S.L.E.)? If so, does your Lupus make your Epilepsy worse? I am just concerned about this because I know that Lupus (S.L.E.) can affect the brain and nervous system. Thanks a lot! :)

Comments

epilepsy & lupus

Submitted by dawnh on Wed, 2008-01-16 - 20:02

I had epilepsy as a child - started grand mal seizures at 3 years old, had my last one at 10 years old & was off the medicine by 13 yrs. old.  I was just diagnosed last year at 36 years old with Lupus SLE and was just googling correlations between these 2 diseases and saw your comments.

 have you learned anything new since the last posting here?

 sorry about your issues.

 dawn

I had epilepsy as a child - started grand mal seizures at 3 years old, had my last one at 10 years old & was off the medicine by 13 yrs. old.  I was just diagnosed last year at 36 years old with Lupus SLE and was just googling correlations between these 2 diseases and saw your comments.

 have you learned anything new since the last posting here?

 sorry about your issues.

 dawn

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Re: Lupus and Epilepsy

Submitted by Bridgetalys on Tue, 2013-04-09 - 01:17

Hi there! 

   I see you're young also & dealing with Medical nonesense makes me feel a lil better! How did they diagnose your SLE because I have been diagnosed with Epilepsy now almost 4 yrs & now I have just taken a bloodtest for autoimmune & my ANA came back direct positive & my RA came back elevated not sure what those mean except that they connect to my immune system...all I can say is at this pt my seizures are still not controlled & I am constantly getting sick & always feel very tired & extremely weak...& all my medical problems started first with dizzy spells & vertigo then excruciating rt upper quadrant pain, elevated blood ct & fever then it progressed to weight loss of 25 pounds because I couldn't keep food down & not being able to eat anything that was solid for 2 yrs & every gi test came back negative besides a stomach emptying scan which came back slower so I was diagnosed with Gastroparesis..basically I was kinda a medical mystery & then February of that yr I had my first seizure & fell off a physics stool & then it was 9 seizures a day from there on out....now it's about 1 a wk....any thoughts?! I'm honestly desperate :-/ the neuro wants to put me back in the hospital for another EEG cause mine are very suddle to see if she can pick up any more waves.....I'm not excited :-(

thanks a bunch!

  <3 Bridget Alys 

 

 

Hi there! 

   I see you're young also & dealing with Medical nonesense makes me feel a lil better! How did they diagnose your SLE because I have been diagnosed with Epilepsy now almost 4 yrs & now I have just taken a bloodtest for autoimmune & my ANA came back direct positive & my RA came back elevated not sure what those mean except that they connect to my immune system...all I can say is at this pt my seizures are still not controlled & I am constantly getting sick & always feel very tired & extremely weak...& all my medical problems started first with dizzy spells & vertigo then excruciating rt upper quadrant pain, elevated blood ct & fever then it progressed to weight loss of 25 pounds because I couldn't keep food down & not being able to eat anything that was solid for 2 yrs & every gi test came back negative besides a stomach emptying scan which came back slower so I was diagnosed with Gastroparesis..basically I was kinda a medical mystery & then February of that yr I had my first seizure & fell off a physics stool & then it was 9 seizures a day from there on out....now it's about 1 a wk....any thoughts?! I'm honestly desperate :-/ the neuro wants to put me back in the hospital for another EEG cause mine are very suddle to see if she can pick up any more waves.....I'm not excited :-(

thanks a bunch!

  <3 Bridget Alys 

 

 

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