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JME
Sun, 09/18/2005 - 22:36Topic: Teen Zone
My 15 yr old daughter was diagnosed with JME last May. She has had 3 Tonic Clonic szs upon awakening in the middle of the night. I was wondering if it was possible to have JME and NOT have any jerking of the arms or legs in the a.m.? My daughter has no other symptoms but the Tonis Clonics and they have been due to sleep deprivation. Has she been diagnosed wrong? Her eeg's have all been normal. She is on 200mg of Lamictal and has had no side effects or szs in three months. I just want to know exactly what she has!!!
Very Frustrated!!
Comments
Hi Katano.Bruce has given
Submitted by happycat2 on Mon, 2005-09-19 - 18:09
Hi Katano.
Bruce has given a good link I can only add to and hope helps.The one I've given -along with the one from Bruce should answer your question .As always though it might be best to see your neuro again and get him or her to fully explain to you just what it is you are dealing with.
Why is JME so often misdiagnosed?
Juvenile myoclonic epilepsy (JME) is a common epilepsy syndrome, which occurs in 7% of all people with epilepsy. If correctly diagnosed, up to 90% of people with JME become seizure-free on a regimen of medication, usually Depakote (valproate). Unfortunately, JME is often misdiagnosed, delaying the start of effective treatment. Even neurologists in excellent epilepsy centers sometimes misdiagnose JME.
http://www.epilepsy.com/articles/ar_1068585523.html
JME
Submitted by katano on Tue, 2005-09-20 - 01:50
Thank you Cindy! Yes she has had a sleep deprived eeg. Again normal.
JME normal EEG
Submitted by cmscribbles on Mon, 2005-09-19 - 13:19
Hello Katano, Cut and copy this link to the professional site addressing JME. Scroll to the bottom where it discusses the EEG. http://professionals.epilepsy.com/page/epilepsy_juvenilemyoclonic.html The EEG is quite distinct for JME... the final line of the article states "If the diagnosis is suspected and the awake EEG is normal, a sleep-deprived EEG must be obtained, because this may be the only time the abnormality is present." Has your daughter had a sleep deprived EEG? If not, I would request one as that may help decide if the diagnosis is accurate. cindy