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Finally Telling People
Thu, 01/24/2008 - 18:03Hey Everybody!
Okay so the deal is that I'm doing my first presentation on for Communications class on epilesy. This is my second semester in college and I've kinda been hiding the fact that I have it, not that I'm ashamed; I was just scared how people will react. After the first seizure that I had here, everyone freaked; so since then, I've kept it very low key. Anyway, I have simple partial and abscence seizures and I was diagnosed when I was in 8th grade and since then it has been a battle. When this project came up, I got the courage to put my topic in as epilepsy and I plan to tell my class that I have it and explain what it means. I really want to do my presentation on the misconceptions about epilepsy, like how one of my friends thought that I had brain damage just because I have E. So I was wondering what other people have said to you guys about it? Or initial reactions maybe? Or questions that people usually ask? I want to get most of my information from other people with epilepsy and not just web info or books. I would really appreciate the help and this is the perfect opportunity to spread correct information about epilepsy to at least 50 students, so please help me out, perhaps it would make someone else's life a little easier.
Thanks for all the support
Shelitha :)
hi...i want to commend you
Submitted by javaman on Fri, 2008-01-25 - 09:26
hi...i want to commend you for being brave and getting out there! I used to be so afraid of telling people and having seizures in public that i ended up with obsessive compulsive disorder. I couldn't ride a bus, go to movies, bowling, etc. but i worked through it.....the important thing is this: it is not our fault, we have done nothing to deserve our epilepsy, so why should we be afraid to be honest? I know the world still has problems with us but it is getting better.....the important thing is honesty....i don't tell everyone...only on a "need to know" basis. If you are going to be working with someone closely and there is a chance they may have to deal with a seizure or two, then it is important to be honest with them so they know what to do when the time comes...but......if you are giving a presentation to people, they do not all need to know.