Epilepsy and Celiac Disease

My son and I both are gluten intolerant and have always tested negative on any blood tests and biopsies.&nbsp; However, there is a great Dr. in Texas....Kenneth Fine, MD-gastroenterology.&nbsp; He has a lab called enterolabs with the latest equipment to test for various food allergies, gluten intolerace, antibodies to gluten and genetics for the disease.&nbsp; It is all done with stool samples sent via Fed EX&nbsp;to get clear results.&nbsp; Around $249 if I remember correctly.&nbsp; Anyone from around the country can order.&nbsp; Go to <a href="http://www.enterolabs.com/">www.enterolabs.com</a> for more info.&nbsp; I have finally gotten answers and don't feel like I am crazy anymore the way most gastro docs will make you feel.&nbsp;&nbsp;The large majority of them truly do NOT understand this disease or intolerance.....and I believe it is 2 different things if you catch it early. &nbsp; I positively have "weird" symptoms and illnesses disappear when 100% strict on a gluten free diet and so does my son.&nbsp; We found out about our intolerance back in 2006 (however had been on the search for 10 years), when this post was started.&nbsp; However, in July 2009, my son started having seizures.&nbsp; Is this another result/strange illness&nbsp;of our non-compliance to the diet?&nbsp; Probably!&nbsp; We had been about 9 months OFF of the diet when he developed seizures.&nbsp; We have been through ALL sorts of testing and he was having 5-7 complex partials everyday.&nbsp; We FINALLY found great doctors and help at Wake Forest Univ. Baptist Hosp. in Winston-Salem, NC.&nbsp; He was originally diagnosed by our local neuro as having epilepsy at night from left temporal lobe and pseudo seizures for his 5 or 6 seizures during the day!!!&nbsp; How ridiculous since all seizures were IDENTICAL......I knew as a mother and with my own instinct that this diagnosis was not correct and sought out 2nd opinion.&nbsp; My son was getting worse and seizures controlling his life!&nbsp; He is only 11 y.o.&nbsp; We went to the epilepsy monitoring unit at Wake Forest and they found that his diagnosis was completely incorrect.&nbsp; He has Frontal Lobe Epilepsy, specifically coming from the supplementary motor area and clearly showed on the video EEG that his seizures were not psychogenic in nature, but neurologic.&nbsp; This type of epilepsy is many times <strong>misdiagnosed</strong> as PNES or pseudoseizures.....psychogenic in nature.&nbsp; They started him on IV Depakote (Keppra did not work) and Trileptal.&nbsp; It is now day 4 and he is seizure free so far!!!!Praise the Lord!&nbsp; The best part is that our new doctor is willing to look at and study the possibility of gluten intolerance being the cause of his epilepsy and set us up with the pediatric gastro dr. as well!&nbsp; He does not at all think I am crazy and sent his students to do the research on this subject.&nbsp; I am so grateful to this facility as they are interested in the wellness of the whole individual.....and that is so hard to find.&nbsp; I would recommend them highly!

I know this is a really old thread, but I'm wondering if any of you who posted a comment are still on this board. I was diagnosed with celiac disease 7 months ago, and seizures 3 months later. There HAS to be a connection, however both my neurologist and GI specialist say they've never had patients with both conditions (and therefore presume they are not connected in my case!) Very frustrating. If any of you are still out there, I would really like to here how you are doing, both in terms of the seizures and celiac.

I know this is a really old thread, but I'm wondering if any or you who posted on this still visit this forum. I was diagnosed with celiac disease 7 months ago, and seizures 3 months later. They're got to be related, but my Neurologist and GI specialist have not had patients with both celiac and seizures, so are taking the approach that they are not related! Very frustrating. If any of you are still out there, I'm wondering how you are doing, both in terms of seizures and celiac.