Topic: Surgery and Devices

Created By: geoffmckim | 2013-06-30 09:47 | 3012 Views | 6 Comments

I'd like to know if anyone out there can speak from experience to the side effects of occipital lobe surgery for epilepsy. In particular, did you experience peripheral vision loss? If so, what...

Created By: LJF | 2013-06-25 20:09 | 2159 Views | 10 Comments

Hello,

this is my first post so I will try to keep it short. A little background, Ive had seizures for over 20 yrs. I have been on at least 10 different meds in different combos and its...

Created By: wardy | 2013-05-25 17:54 | 1382 Views | 5 Comments

Hi All,

I am hoping that some of you out there can share your stories with me regarding surgery on the left temporal lobe and the possible side effects.

I am a 30 year old man...

Created By: vivaciousgemini22 | 2013-05-10 18:00 | 1581 Views | 5 Comments

Hello everyone,

I have dealt with epilepsy since I was 2 years old. I'm going to turn 22 in a month. My epilepsy was controlled for most of my life until I started having these "episodes...

Created By: amartin | 2013-05-09 09:46 | 872 Views | 1 Comment

I had the EEG seizure monitoring done  but the seizures occurred too fast and they couldn't localize where they originated so I am contimplating the invasive monitoring in hopes that I could have...

Created By: ajard | 2013-04-29 17:23 | 2338 Views | 16 Comments

Hello. I cant find any recent ongoing discussions of Left Temporal lobe surgery. My husband will be having his surgery next week, after 17 years of seizures and 8 years of trying to make a...

Created By: Shaggy_79 | 2013-04-24 11:14 | 2999 Views | 8 Comments

Hello all,

I recently had the vagus nerve stimulator (VNS) implant procedure completed, and now one month later, after the second increase in "impulse intensity", I am starting to...

Created By: Bakaeva | 2013-04-12 18:29 | 773 Views | 1 Comment

Hello everybody! After checking forum , I decided to make one survey about epilepsy surgery. It will be very useful for everyone to see some statistics that doctors sometimes don't tell. Lets...

Created By: emm9109 | 2013-04-04 21:13 | 647 Views | 0 Comments

I had my VNS surgery last April, and my neck where the wire is connected to my Vagus Nerve is scratching the inside of my neck when I turn my head or move my head up. If I press on it, it will...

Created By: Doublell | 2013-03-25 13:11 | 969 Views | 1 Comment

Hello everyone: It's been a while since posting here and I'm rusty at this. I'll get to the point. I'm having inter cranial grids and monitoring April 23rd. I also have my right frontal lobe re...

Created By: mcm | 2013-03-23 08:02 | 1583 Views | 6 Comments

I had surgery almost a year ago, and still have not havd CP siezures, YEAH! I belive that peope who are not epileptic think about what heaven may be like. For epileptics the answer is easy, NO...

Created By: helpingafriend | 2013-03-12 12:21 | 966 Views | 4 Comments

Hi, my name is Paige I've been searching through online epilepsy support groups all morning. My really close friend has severe epilepsy. He's at the end of the line on experimental drugs and now...

Created By: Fawn1981 | 2013-03-06 10:51 | 3865 Views | 14 Comments

Can any of you explain your experience through the Wada test for me?  What was it like having half of your brain put to sleep?  Did you even realize it?  Do you speak with the doctor while the...

Created By: HawkinsMom | 2013-02-16 14:43 | 793 Views | 1 Comment

Background:
My 13-year old son was diagnosed with Frontal Lobe Epilepsy in 2007. Although he has frequent breakthroughs, his doctors (4 over over the years) felt he was "well-controlled"...

Created By: survivor1956 | 2013-01-17 15:07 | 1406 Views | 7 Comments

Has anyone had the MRI Laser Guided tempral lobe surgery?

Created By: jimbo1 | 2013-01-11 14:13 | 1095 Views | 1 Comment

Hi,

 

I'm 29 years old, I was diagnosed with Temporal Lobe Epilepsy when I was 21. My doctor has tried me on pretty much every medication out there and it keeps the major...

Created By: john14.6theway | 2012-12-18 08:20 | 648 Views | 0 Comments

I have been having seizures since I was 8 months old. We have been trying to control my seizures but anything I take I can only do in very small doses because of the side effects. For example one...

Created By: Lizard46 | 2012-11-19 17:59 | 969 Views | 3 Comments

Has anyone else tried the VNS (vagus nerve Stimulator)?  Did it lessen you siezures or make them less intense?

Created By: Bills_Mom | 2012-11-08 12:59 | 1005 Views | 3 Comments

Hello,

I have a question maybe I somebody can answer before I bring it up with my family or sons doctor(s).
My son has Juvenile Myclonic Epilepsy. He is 17 now and has been going...

Created By: alyssa18 | 2012-11-08 07:06 | 766 Views | 0 Comments

Hello ,  My Name is Manny, if their are any Doctors out their or anyone who had problems with the VNS, or Manufacturer.

   My  Daughter started having seizures when she was 18 months old...

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