Topic: Surgery and Devices

Created By: WendyBendy | 2006-08-18 14:49 | 705 Views | 13 Comments

I went to the doctor Tuesday and told him I had 2 more seizures this past month. I have at least 2 a month and have tried Dilantin (still on), Keppra, Topamax, Zonegran (just started), Depakote......

Created By: rsuarez | 2006-08-17 07:57 | 267 Views | 2 Comments

Our 20 yr. old daughter is having a functional hemispherectomy on Sept. 11, 2006. Does anyone have or know of anyone who has had this procedure done? She already has left hemiparisys and suffers...

Created By: danasdad | 2006-08-11 16:30 | 225 Views | 0 Comments

My daughter is being considered for a Corpus Callosotomy. She is 36 years old and has had intractable seizures since early childhood. She has a VNS which she has had for over 10 years.

I...

Created By: shannon1220 | 2006-08-09 23:52 | 8201 Views | 29 Comments

Does anyone have any knowledge or experience with cortext dysplasia or cortical dysplasia? This is what my 10 yr old son has now been diagnosed with pending an mri - he recently had a pet scan...

Created By: dacostan | 2006-08-09 15:56 | 318 Views | 1 Comment

Hello, I was hoping someone out there can help me. My sister, who just turned 30, recently underwent front temporal lobe surgery. 4 months have passed and she isn't having seizures anymore...

VNS
Created By: tbrdman | 2006-08-07 13:57 | 448 Views | 4 Comments

Anyone out there still talking about VNS? I have had mine since Dec. 2004 and believe now that it screwed up my nerves. I didn't even notice it for about 10 months, except for the hoarseness in...

Created By: CLC | 2006-08-03 11:42 | 701 Views | 7 Comments

My little boy (8 years old) will be having a VNS put in on Aug.22. I have been looking for information to tell me more about how it will affect him. He doesn't understand how to communicate hurt...

Created By: Kelly G. | 2006-08-01 11:21 | 321 Views | 2 Comments

I've had seizures for 11 years now. My memory is fading, with names very hard to remember, sentences that come out wrong -'I have to close that,' when it's 'I have to turn that off.' and i'm only...

Created By: jessicarozen | 2006-07-28 21:45 | 456 Views | 7 Comments

Hello,

Our 3-year-old daughter has had seizures since she was 9 mo old. She was diagnosed with infantile spasms. She is significantly developmentally delayed, on numerous medication and...

Created By: ackling17 | 2006-07-24 12:58 | 1619 Views | 21 Comments

i have had complex partial seizures since i was 8. they r controled but not very well, i take lamicatl 200am 200pm and sometimes i get double vision and feel sick from it. also if i miss one...

Created By: ladybug | 2006-07-21 13:02 | 1589 Views | 24 Comments

Hey all,

Well, I have my surgery scheduled. I go in on the 21st of August for brain mapping and have the surgery on the 25th.

I've read all the material out there about surgery AND...

Created By: sallyshredder | 2006-07-14 11:52 | 1499 Views | 10 Comments

Hi there,

I know it's too early to ask, but I was hoping for feedback. I can't help but wonder about the surgery effects, even though the option has not yet come up.

My goal is to...

Created By: maleki | 2006-07-12 08:01 | 303 Views | 0 Comments

hi
i need surgery for my illness epilepsy

since 1986 when i was 17 years my epilepsy was started during one shock in hot whether and tiredness and up to now i have and also i...

Created By: Jonathan82 | 2006-07-09 13:47 | 202 Views | 0 Comments

Has anyone on here had temporal lobe surgery at Johns Hopkins? I will be on August 3rd. Just curious, nervous, etc...

Created By: dgpatel | 2006-06-28 22:12 | 590 Views | 7 Comments

Hello All,

I have had seizures since I was 10... now I am 26. I have been through alot as many of you.... I don't know exactly how I became epileptic.... I thought it was due to a blow to...

Created By: trese291 | 2006-06-20 12:39 | 650 Views | 5 Comments

My 8 yr old son has intractable epilepsy. He is severely developmentally delayed and three seizures meds plus the VNS. The latest "treatment" the doctors want to try is corpus callosotomy. I...

Created By: corgilady | 2006-06-19 19:39 | 398 Views | 4 Comments

Yes they call today to schedule my surgery. My stomach sank as we talked. Quite a reality check when the phone call comes. I hope that the number 7 is luckey for me 7-7-06. Anyone that would like...

Created By: mommy2kyra | 2006-06-19 14:54 | 362 Views | 5 Comments

I had my left temporal lobe resection 3 months ago, and testing begins tomarrow. We will see how successful the surgery was. I am a basket case (for many reasons, which I'm sure you can understand...

Created By: RBLWMN | 2006-06-17 19:41 | 626 Views | 4 Comments

My daughter had the "epilepsy surgery" in October of 2004. It has had wonderful effects for her. She still has absence & simple partials but NO grand mals, thank the Lord.

She was at...

Created By: trulyblessed | 2006-06-15 10:56 | 471 Views | 2 Comments

I am scheduled for plastic surgery and a re-implantation of my VNS device that once again has come unanchored on July 7th. I have had my device installed since September of 2004 with no luck of...

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