Topic: Surgery and Devices

Created By: rsuarez | 2006-09-28 08:42 | 4 Comments

Our 20 yr. old daughter was operated at Miami Childrens Hospital on 9/11/06. We can not say enough for the neuro-surgical team and the neurologists, doctors, and nurses at the hospital. The...

Created By: rosegirl | 2006-09-27 22:57 | 2 Comments

Now I know that I am not having surgery but I have considered it. However it's my frontal lobe that's affected and that's what controls all your emotions. I want to be seizure free but I don't...

Created By: Kelly G. | 2006-09-26 11:44 | 1 Comment

I go in for surgery tomorrow. I just wanted to say thank you to everyone here. The support, the stories, the fact that I know i'm not the only one fighting these stupid seizures. I am not alone. I...

Created By: sdbright | 2006-09-12 14:26 | 8 Comments

My 6 year old son had a right frontal lobectomy on September 23, 2005 for intractable seizures. He didn't start having seizures until Sept. 1, 2005 so I didn't get to learn a lot before surgery....

Created By: MARTAN | 2006-09-11 05:48 | 0 Comments

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Created By: szusd037 | 2006-09-10 18:29 | 7 Comments

Had my surgery Weds out of the hosptial today(Sunday). Doctors told me I did as well as I could possbiliy done. They removed a 6mm tumor or imflamtion plus 2mm around it. Headaches are...

Created By: tinyfly | 2006-09-10 14:42 | 8 Comments

ok, here's the deal, and i'm super freaked out about it so i hope at least one other person has experience with this so i will feel better. For 15 months now i've had the VNS implant, so far...

Created By: Ben Morgan | 2006-09-06 14:28 | 6 Comments

Hi,

I'm a musician with epilepsy. I'm 24 and play the violin and viola and am hoping to have a professional career. I've had complex partial seizures for a dozen years and am running out...

Created By: zanesmom | 2006-08-29 23:31 | 2 Comments

The neurologist called last night to say they discussed my son's case at surgery conference last week and want to proceed to the next step which is placing the grid on his brain to determine...

Created By: szusd037 | 2006-08-29 17:12 | 10 Comments

I am having surgery to remove a 7-8 mm tumor or lesion in my right Temporal lobe next Weds. I have had an increbidly positive attitude about the situation but now I am starting to get a little...

Created By: Peter Bloom | 2006-08-27 20:41 | 2 Comments

My 27 year old daughter has intractable epilepsy and is a candidate for surgery. There is a lot to learn, for her and our family, in approaching this. I'm looking for ideas and resources (...

Created By: forestams | 2006-08-27 15:54 | 5 Comments

So the Doctors say I'll be okay if I decide to have surgery- maybe a small blindspot if they cut up an optic nerve. Questions to those who have had this done- 1. Did you all have headaches?...

Created By: Kelly G. | 2006-08-26 07:56 | 4 Comments

I am ready to choke the people who work for the state and don't seem to care about anyone else. I finally have my surgery planned to help stop my seizures, on Sept 27th at Albany Medical Center...

Created By: catfishwink | 2006-08-23 15:19 | 0 Comments

Hi my name is Dan Winkowitsch I had brain surgery for epileptic seizures 7 years ago at Rochester Min.I am from Dumont ia it is a relief for me that i have not had a seizure for that long of time....

Created By: janeart | 2006-08-22 12:23 | 1 Comment

Hi,
Our neurologists are suggesting we look into surgery for our three year old. She has quite a bit of brain damage on the rt side possibly from stroke (we adopted at 12 mos & have no...

Created By: maryhenley | 2006-08-21 19:10 | 10 Comments

Just checking, I had the test done last week and the bruising is getting worse as is the swelling. Also have a smallish lump at the cathater site. Has anyone else here experienced this following...

Created By: WendyBendy | 2006-08-18 14:49 | 13 Comments

I went to the doctor Tuesday and told him I had 2 more seizures this past month. I have at least 2 a month and have tried Dilantin (still on), Keppra, Topamax, Zonegran (just started), Depakote......

Created By: rsuarez | 2006-08-17 07:57 | 2 Comments

Our 20 yr. old daughter is having a functional hemispherectomy on Sept. 11, 2006. Does anyone have or know of anyone who has had this procedure done? She already has left hemiparisys and suffers...

Created By: danasdad | 2006-08-11 16:30 | 0 Comments

My daughter is being considered for a Corpus Callosotomy. She is 36 years old and has had intractable seizures since early childhood. She has a VNS which she has had for over 10 years.

I...

Created By: shannon1220 | 2006-08-09 23:52 | 29 Comments

Does anyone have any knowledge or experience with cortext dysplasia or cortical dysplasia? This is what my 10 yr old son has now been diagnosed with pending an mri - he recently had a pet scan...

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