Topic: Surgery and Devices

Created By: janeart | 2006-08-22 12:23 | 1 Comment

Hi,
Our neurologists are suggesting we look into surgery for our three year old. She has quite a bit of brain damage on the rt side possibly from stroke (we adopted at 12 mos & have no...

Created By: maryhenley | 2006-08-21 19:10 | 10 Comments

Just checking, I had the test done last week and the bruising is getting worse as is the swelling. Also have a smallish lump at the cathater site. Has anyone else here experienced this following...

Created By: WendyBendy | 2006-08-18 14:49 | 13 Comments

I went to the doctor Tuesday and told him I had 2 more seizures this past month. I have at least 2 a month and have tried Dilantin (still on), Keppra, Topamax, Zonegran (just started), Depakote......

Created By: rsuarez | 2006-08-17 07:57 | 2 Comments

Our 20 yr. old daughter is having a functional hemispherectomy on Sept. 11, 2006. Does anyone have or know of anyone who has had this procedure done? She already has left hemiparisys and suffers...

Created By: danasdad | 2006-08-11 16:30 | 0 Comments

My daughter is being considered for a Corpus Callosotomy. She is 36 years old and has had intractable seizures since early childhood. She has a VNS which she has had for over 10 years.

I...

Created By: shannon1220 | 2006-08-09 23:52 | 29 Comments

Does anyone have any knowledge or experience with cortext dysplasia or cortical dysplasia? This is what my 10 yr old son has now been diagnosed with pending an mri - he recently had a pet scan...

Created By: dacostan | 2006-08-09 15:56 | 1 Comment

Hello, I was hoping someone out there can help me. My sister, who just turned 30, recently underwent front temporal lobe surgery. 4 months have passed and she isn't having seizures anymore...

VNS
Created By: tbrdman | 2006-08-07 13:57 | 4 Comments

Anyone out there still talking about VNS? I have had mine since Dec. 2004 and believe now that it screwed up my nerves. I didn't even notice it for about 10 months, except for the hoarseness in...

Created By: CLC | 2006-08-03 11:42 | 7 Comments

My little boy (8 years old) will be having a VNS put in on Aug.22. I have been looking for information to tell me more about how it will affect him. He doesn't understand how to communicate hurt...

Created By: Kelly G. | 2006-08-01 11:21 | 2 Comments

I've had seizures for 11 years now. My memory is fading, with names very hard to remember, sentences that come out wrong -'I have to close that,' when it's 'I have to turn that off.' and i'm only...

Created By: jessicarozen | 2006-07-28 21:45 | 7 Comments

Hello,

Our 3-year-old daughter has had seizures since she was 9 mo old. She was diagnosed with infantile spasms. She is significantly developmentally delayed, on numerous medication and...

Created By: ackling17 | 2006-07-24 12:58 | 21 Comments

i have had complex partial seizures since i was 8. they r controled but not very well, i take lamicatl 200am 200pm and sometimes i get double vision and feel sick from it. also if i miss one...

Created By: ladybug | 2006-07-21 13:02 | 24 Comments

Hey all,

Well, I have my surgery scheduled. I go in on the 21st of August for brain mapping and have the surgery on the 25th.

I've read all the material out there about surgery AND...

Created By: sallyshredder | 2006-07-14 11:52 | 10 Comments

Hi there,

I know it's too early to ask, but I was hoping for feedback. I can't help but wonder about the surgery effects, even though the option has not yet come up.

My goal is to...

Created By: maleki | 2006-07-12 08:01 | 0 Comments

hi
i need surgery for my illness epilepsy

since 1986 when i was 17 years my epilepsy was started during one shock in hot whether and tiredness and up to now i have and also i...

Created By: Jonathan82 | 2006-07-09 13:47 | 0 Comments

Has anyone on here had temporal lobe surgery at Johns Hopkins? I will be on August 3rd. Just curious, nervous, etc...

Created By: dgpatel | 2006-06-28 22:12 | 7 Comments

Hello All,

I have had seizures since I was 10... now I am 26. I have been through alot as many of you.... I don't know exactly how I became epileptic.... I thought it was due to a blow to...

Created By: trese291 | 2006-06-20 12:39 | 5 Comments

My 8 yr old son has intractable epilepsy. He is severely developmentally delayed and three seizures meds plus the VNS. The latest "treatment" the doctors want to try is corpus callosotomy. I...

Created By: corgilady | 2006-06-19 19:39 | 4 Comments

Yes they call today to schedule my surgery. My stomach sank as we talked. Quite a reality check when the phone call comes. I hope that the number 7 is luckey for me 7-7-06. Anyone that would like...

Created By: mommy2kyra | 2006-06-19 14:54 | 5 Comments

I had my left temporal lobe resection 3 months ago, and testing begins tomarrow. We will see how successful the surgery was. I am a basket case (for many reasons, which I'm sure you can understand...

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