Topic: Surgery and Devices

Created By: anzella_1267 | 2017-03-20 20:19 | 8 Comments

Hi everyone.

I'm looking for advice and stories of people who have had a temporal lobectomy. I'm still concerned because after 6 weeks from my surgery I'm still getting auras...

Created By: Lindsayelf | 2017-03-04 12:06 | 11 Comments

I am having VNS therapy done March 27th. Ive done my research and have watched the video they gave me about it. The only thing im nervous about anesthesia.
I know what side effects that may...

Created By: laphamsmith | 2017-02-11 09:21 | 1 Comment

My daughter is 11 years old and we are considering a left temporal lobectomy. Just wanted to hear others experiences who have had this done. How was recovering? Are you now seizure free? Still...

Created By: IngieT | 2017-02-02 10:49 | 4 Comments

I've had epilepsy since I was 6 and am now 30. I've tried many medications & I've had many doctors due to them moving to other states. My current neurologist is the only 1...

Created By: GetBackJack | 2017-01-25 01:52 | 0 Comments

Hello. I had a temporal lobectomy back in 2007. I think I get a complex partial seizure again once a month. I am thinking about a second operation. I would say they started again about 2009. So I...

Created By: GF70 | 2017-01-19 23:17 | 1 Comment

Is it possible to purchase your own hospital gowns before going to the hospital? Next month, I plan to go to the hospital to do an EEG test and that will require several days of laying the bed...

Created By: GetBackJack | 2017-01-07 04:13 | 1 Comment

Has anyone here become 100% seizure free after a second operation after a temporal lobectomy? I think my auras are complex partial seizures again now. It's hard for me to tell because there...

Created By: candio | 2016-12-24 21:04 | 1 Comment

Has anyone used the Embrace watch?

Created By: yair | 2016-12-21 06:46 | 1 Comment

im 29 and my doctor offered me this device so i have some questions,
how does it affect my voice ?
do i feel it ?
can it be a bother during sex ?

im talking about that...

Created By: audrobinson393 | 2016-12-15 12:43 | 1 Comment

Hey all,

I'm a 24 year old female, have had epilepsy since I was 7 years old and just this year got told I could be a candidate for surgery. I have gone through MRI's which have...

Created By: Mindraker | 2016-12-02 12:43 | 0 Comments

An article was posted about the security of pacemakers and their vulnerability to hackers. (See link below.)

https://www.tripwire.com/state-of-security/featured/under-attack-how-hackers-...

Created By: Cynthia10 | 2016-11-20 00:32 | 2 Comments

Has anyone here had gamma knife done for mesial temporal sclerosis? I've read that there have been studies on it, but can't find where it can be done. If so, where did you have it done...

Created By: txalisa | 2016-10-31 20:43 | 0 Comments

My boyfriend began having seizures a few years ago. Originally doctors believed his seizures were caused by a tumor behind his right hippocampus, and so he had surgery to remove the tumor. Despite...

Created By: Kaylasabba | 2016-10-31 12:13 | 0 Comments

I had the left temporal lobectomy about 20 years ago. They removed my left temporal lobe and hippocampus minus a small area and speech part of my brain . I have been seizure free but still must...

Created By: SarahD11 | 2016-10-29 03:35 | 0 Comments

I recently had intercranial depth electrode surgery and have had some weird feeling side effects such as a stinging tingley feeling. Has anyone else had this surgery done before? If so I would...

Created By: CautiouslyOptimistic | 2016-10-26 03:59 | 8 Comments

Hi there,
Just looking for some advice and people's experiences with right temporal lobe surgery.
Specifically if it stopped seizures completely and if medication was no longer...

Created By: supdog | 2016-10-15 12:43 | 1 Comment

My husband sustained a blow to the right frontal region of his head about 18 years ago. He was just diagnosed with focal epilepsy after he crashed his truck and was completely unaware of the...

Created By: phillips22 | 2016-10-09 11:37 | 2 Comments

I am trying to make the decision to seriously consider surgery. I am getting mixed signals. My auras are scary as hell. I read some say they feel like panic attacks.
Mine feel like I freeze...

Created By: sharmas | 2016-09-22 22:22 | 0 Comments

Hi, We are developing a new wearable non-intrusive device to detect seizures (especially in children) so the parents or guardians can be alerted. I am seeking input from people who know or are...

Created By: Britt86 | 2016-09-22 21:46 | 2 Comments

I have been on many different medications with little success. Depakote has worked extremely well to control my seizures. Course not something you can stay on if you one day want a family and I am...

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