Topic: Surgery and Devices

Created By: candio | 2016-12-24 21:04 | 1 Comment

Has anyone used the Embrace watch?

Created By: yair | 2016-12-21 06:46 | 1 Comment

im 29 and my doctor offered me this device so i have some questions,
how does it affect my voice ?
do i feel it ?
can it be a bother during sex ?

im talking about that...

Created By: audrobinson393 | 2016-12-15 12:43 | 1 Comment

Hey all,

I'm a 24 year old female, have had epilepsy since I was 7 years old and just this year got told I could be a candidate for surgery. I have gone through MRI's which have...

Created By: Mindraker | 2016-12-02 12:43 | 0 Comments

An article was posted about the security of pacemakers and their vulnerability to hackers. (See link below.)

Created By: Cynthia10 | 2016-11-20 00:32 | 2 Comments

Has anyone here had gamma knife done for mesial temporal sclerosis? I've read that there have been studies on it, but can't find where it can be done. If so, where did you have it done...

Created By: txalisa | 2016-10-31 20:43 | 0 Comments

My boyfriend began having seizures a few years ago. Originally doctors believed his seizures were caused by a tumor behind his right hippocampus, and so he had surgery to remove the tumor. Despite...

Created By: Kaylasabba | 2016-10-31 12:13 | 0 Comments

I had the left temporal lobectomy about 20 years ago. They removed my left temporal lobe and hippocampus minus a small area and speech part of my brain . I have been seizure free but still must...

Created By: SarahD11 | 2016-10-29 03:35 | 0 Comments

I recently had intercranial depth electrode surgery and have had some weird feeling side effects such as a stinging tingley feeling. Has anyone else had this surgery done before? If so I would...

Created By: CautiouslyOptimistic | 2016-10-26 03:59 | 8 Comments

Hi there,
Just looking for some advice and people's experiences with right temporal lobe surgery.
Specifically if it stopped seizures completely and if medication was no longer...

Created By: supdog | 2016-10-15 12:43 | 1 Comment

My husband sustained a blow to the right frontal region of his head about 18 years ago. He was just diagnosed with focal epilepsy after he crashed his truck and was completely unaware of the...

Created By: phillips22 | 2016-10-09 11:37 | 2 Comments

I am trying to make the decision to seriously consider surgery. I am getting mixed signals. My auras are scary as hell. I read some say they feel like panic attacks.
Mine feel like I freeze...

Created By: sharmas | 2016-09-22 22:22 | 0 Comments

Hi, We are developing a new wearable non-intrusive device to detect seizures (especially in children) so the parents or guardians can be alerted. I am seeking input from people who know or are...

Created By: Britt86 | 2016-09-22 21:46 | 2 Comments

I have been on many different medications with little success. Depakote has worked extremely well to control my seizures. Course not something you can stay on if you one day want a family and I am...

Created By: melaniebyers | 2016-08-13 06:52 | 0 Comments

I had the MRI hippocampus surgery a week ago. I am noticing strange things. Anyone else have it that will talk to me?

Created By: | 2016-08-03 10:14 | 0 Comments

I have heard about this new monitor which alerts parents or carers when the user is having a seizure. Sounds really good. Does anyone else have any experience or knowledge of it?

Created By: Kaynowayjose | 2016-07-25 21:50 | 2 Comments

Hello everyone, want to see if anyone has went through with surgery for Parietal Lobe epilepsy and what was your outcome? I'm going through tests right now, and its been discouraging. I dont...

Created By: Chrissy54 | 2016-07-18 23:38 | 1 Comment

I had complex partial seizures and recently had a right temporal lobe resection and removal of my hippocampus and amygdala and my seizures have been controlled since then. Within the lat 2 weeks I...

Created By: tchanoine | 2016-07-17 08:09 | 0 Comments

My daughter has had 5 status episodes beginning at 9 months. She has had to be in ICU each time for weeks at a time. We got many second opinions and surgery became an option since the EEG and PET...

Created By: wcras | 2016-06-21 15:49 | 1 Comment

I posted once before about getting double vision right after my temporal lobectomy. No comments. Has no one really never experienced this or has no one really had the surgery for epilepsy....

Created By: wcras | 2016-06-16 23:27 | 0 Comments

Had a right temporal lobectomy and got double vision side unexpectedly. This happen to anyone? If so, did it get better and if so how long did it take? I am so scared and frustrated.