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Topic: Surgery and Devices

Created By: rtkoury@gmail.com | 2015-02-08 11:55 | 229 Views | 0 Comments

I had my first seizure a little over  42 years ago and I was just 3 months old, my parents thought I was dying when I had my first Grand Mal seizure they took me to the ER and the doctors said it...

Created By: Hope331 | 2015-02-02 20:29 | 496 Views | 4 Comments

Hi everyone, I am going through all the tests to determine whether or not I am a candidate for temporal lobe surgery...so far, it's looking like I will be a candidate.  I was just wondering what...

Created By: Hope331 | 2015-01-30 20:07 | 290 Views | 1 Comment

I am going through all the tests to determine whether or not I can have temporal lobe surgery and I will be scheduling the WADA test soon.  Can anyone tell me about their experience with this test...

Created By: shely | 2015-01-29 16:25 | 178 Views | 0 Comments

 

 

 

 

 

 

 

 

 

 

in 2000,i got the vns taken out... it was dead... i am still suffering from the wire that is still in my...

vns
Created By: shely | 2015-01-29 16:19 | 117 Views | 0 Comments
Created By: babble | 2015-01-25 15:05 | 185 Views | 0 Comments

Within the last month I've had 2 left temporal lobectomys, I've been home for one week today.   My medicines are the same plus a few new meds for post surgery.  I'm having several symptoms,  If...

Created By: jackie_lh | 2015-01-25 12:57 | 155 Views | 1 Comment

Very similar story. Initial VNS in 2007 was a miracle--reduced my use of Topomax to 300mg and within 18 months stopped seizures. Formerly they had been intractable. Also told whole system was...

Created By: 5girls | 2015-01-24 20:28 | 141 Views | 0 Comments
Created By: tongsampah111 | 2015-01-16 08:23 | 116 Views | 0 Comments

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Created By: SunsetGazer | 2015-01-14 19:53 | 209 Views | 0 Comments

<p>Hello, Several years ago I underwent a temporal lobectomy due to seizures that worsened after a car accident. My medications were increased in the time between the accident, where the...

Created By: afodey | 2015-01-14 15:28 | 156 Views | 0 Comments

My neurologist just recommended the VNS to me so, really I'm not to informed on it yet. I've had seizures my whole life and was diagnosed as epileptic when I was about 10, so I'm honestly use to...

Created By: anzella_1267 | 2015-01-14 05:50 | 322 Views | 0 Comments

Hi there,
Just looking for some advice and people's experiences with left temporal lobe surgery.
Specifically if it stopped seizures completely and if medication was no longer...

Created By: harrietfsmith22 | 2015-01-12 09:05 | 160 Views | 0 Comments

Anyone know any information on VNS for Peti-Mal seizures or has had this surgery? Tried all medication and seems like VNS is the only option left.

Any advice/ information would be...

Created By: jehobiewan | 2014-12-30 23:11 | 176 Views | 0 Comments

I recently had my VNS replaced (first one was damaged). I am having difficulty with my new VNS and the neurosurgeon does not know what to do except turn it off.  It is helping me so that is not...

Created By: Anahi | 2014-12-18 19:37 | 370 Views | 0 Comments

HI everyone my name is Anahi, 

I was recently told by my neurologist that he recommends I get brain surgery for my seizures that are localized on my right temporal lobe. It being brain...

Created By: ahurse1 | 2014-12-17 11:17 | 200 Views | 0 Comments

I am searching for a solution for my wife who was diagnosed with Epilepsy at age 18.  Seizure frequency was 1 per year.  In late 2013 she underwent a right frontal lobe resection.  The pathology...

Created By: jfurrer | 2014-12-16 11:20 | 211 Views | 0 Comments

Our son Joseph has a "Congenital Migratory Anomaly" which makes his left temporal lobe non-functional.  He has learning delays and 4-5 seizures per day while on medication.  We are seeking...

Created By: jehobiewan | 2014-12-13 02:03 | 200 Views | 0 Comments

I am hoping there is someone else out there that has heard of this.  I had my first VNS in March of 2007.  Aside from swelling and difficulty talking, the surgery went well.  I had to have a...

Created By: sfc10orio@gmail.com | 2014-12-03 08:03 | 267 Views | 3 Comments

Hello,

My daughter has had surgery on her Left Temporal Lobe that controls her right arm on 19 Nov 14. The surgery was successful but she lost control of her entire right arm which requires...

Vns
Created By: Jademunoz | 2014-11-20 15:23 | 249 Views | 1 Comment

Hi, this is my first post so I'm new to this. I'm a 28 yr old female with partial seizures who just got the vns surgery on the 14th. Of this month. Know I can barely talk and sometimes when I take...

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