Topic: Surgery and Devices

Created By: Smilemily | 2016-02-13 21:26 | 0 Comments

Hello,
I was looking into purchasing either the SmartWatch or Embrace seizure alert. Is one better than the other? What have been your experiences with wearable seizure monitors?

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Created By: SeizingLisa | 2016-02-02 18:16 | 0 Comments
Created By: Pignulotta | 2016-01-22 16:26 | 0 Comments

Has anyone had any experience with VNS therapy for seizures ?  I'm considering having it done, but would like to know more.  Any info would be appreciated. Thanks.

Created By: cxmcdan@msn.com | 2016-01-03 23:33 | 1 Comment

I don't know if this is going to help anyone but I had EMU Phase 2 then a laser ablation on my right temporal lobe during the week of Thanksgiving. So far it has been successful but it's only been...

Created By: MorningSeizer | 2015-12-31 02:59 | 5 Comments

Hi everyone,

I'm a 23 y/o female who has had partial complex seizures for nearly 20 years. My pediatric neuro just referred me to an adult neuro after I've started suffering side effects...

Created By: stephenstate | 2015-12-30 18:11 | 0 Comments

I had a right temporal lobectomy performed at the Cleveland Clinic in 2013.  Has anyone had surgery from that amazing place?

 

Created By: davnic13 | 2015-12-03 15:40 | 1 Comment

I am 36 and live in NZ. I have had epilepsy for about 15 years and have been on 6 of different meds over that period with many "cocktail" combinations of them (epilem, tegratol, topamax, lamictal...

Created By: puglover | 2015-11-24 00:27 | 0 Comments

Has anyone had temporal lobe surgery at kaiser in Redwood a City? If yes, how did it go?

Created By: puglover | 2015-11-23 23:54 | 0 Comments

Has anyone had temporal lobe surgery at Kaiser in Redwood City, CA. If so, could you share your experience? Thanks!

Created By: Hope331 | 2015-11-06 14:56 | 0 Comments

Hi everyone, I am having a left anterior temporal lobectomy later this month, and I would love to hear stories from those of you who have had this same surgery......I am keeping my fingers and...

Created By: Hope331 | 2015-11-06 14:54 | 0 Comments

Hi everyone, I am having a left anterior temporal lobectomy later this month, and I would love to hear stories from those of you who have had this same surgery......I am keeping my fingers and...

Created By: Brain Fizz | 2015-11-03 01:16 | 0 Comments

 

 

 

 

I've had epilepsy since 2007. It appeared totally out of the blue with no obvious cause. I was married, had a young son, a career and living a really full and...

Created By: GKhs4632340 | 2015-10-16 01:36 | 0 Comments
Created By: MsJamieDee | 2015-10-15 13:14 | 0 Comments

Hi everyone.  I'm new to the site and wanted to get some advice from any parents that have had VNS done for a younger child.

My daughter is 6 and has just been put on a 3rd medication to...

Created By: tpg2122 | 2015-10-11 11:58 | 6 Comments

Hi, I have struggled with epilepsy since a teen and thinking of taking the leap to epilepsy surgery at my doctor's urging. Where are the best places to do it if you could go anywhere? Live in...

Created By: brittany32893 | 2015-09-30 13:28 | 3 Comments

My name is Brittany, I am 22 years old and was diagnosed with temporal lobe epilepsy when I was 14. After taking several medications and none of them working I am scheduled to have both the Wada...

Created By: Katlynjwilson | 2015-09-26 21:46 | 0 Comments

 

I have had seizures since I was 13 and didn't know that's what they were and thought it was something weird I did. It was a dejavue, gastric rising and loss of awareness events. I had my...

Created By: Hope331 | 2015-09-16 10:53 | 1 Comment

Has anyone ever had surgery complications?  I'm in the waiting process now...I had depth electrodes put in my head in July and they had complications (angiogram, and bleeding around my brain), now...

Created By: zombie girl | 2015-09-11 01:38 | 2 Comments

This is going to sound silly but I got my vns implant 7 months ago and Ive noticed some changes in my body. Mainly a female question but it seems almost like the generator is pushing down on my...

Created By: pfincher@gmail.com | 2015-09-01 14:45 | 2 Comments

Hello,

    Has anyone on here had Temporal Lobe surgery at Tampa General Hospital by Dr. Fernando Vale?  They have confirmed that I am a canidate for this surgery and are setting me up an...

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