Topic: Surgery and Devices

Created By: JP Lzt | 2016-05-31 03:10 | 8 Views | 0 Comments

TLDR: I was 16 when I first discovered that I suffered from seizures, and that I would have to cope with them for the rest of my life. Over the past decade, I have contemplated brain surgery for a...

Created By: Dave fox | 2016-05-28 10:33 | 54 Views | 2 Comments
Created By: slyalys | 2016-05-14 11:32 | 151 Views | 0 Comments

I have one scheduled on Monday. I wrecked my car in January because I had a black out seizure and my doctor said it was time for surgery. My seizures have gone from small de Javu to me blacking...

Created By: mateoc15 | 2016-04-27 07:44 | 99 Views | 0 Comments

I'm looking for a bracelet for the existing magnet for my VNS implant. The super sexy one they provide is... well... not so sexy. Has anyone found anything a little less "invasive...

Created By: hannav21 | 2016-03-06 13:56 | 151 Views | 1 Comment

Hi,
I am a research and in my free-time I am working on developing a device that could detect seizures in kids and alert the parents so that the parents can make sure their kid is safe. We...

Created By: silent04211990 | 2016-03-06 03:52 | 160 Views | 0 Comments

Hi guys my name is Roman, I could not find much information about the laser surgery. So I decided to explain as much as I could and should be easier understanding I made this video for info/...

Created By: justin.bailey01@gmail.com | 2016-02-20 03:50 | 296 Views | 0 Comments

Hello all. I am currently at 1 year and 2 days since brain surgery. This was a long year of medicine experiments to cure epilepsy. Until Dec 7th I was on various meds and struggled deeply with...

Created By: Neuro Man | 2016-02-20 00:59 | 249 Views | 0 Comments

I am 48 years old and was diagnosed with temporal lobe epilepsy when I was 21.  I have complex partial seizures that are not under control.  Seizures are deja' vu feeling and then extreme...

Created By: Misjoey101 | 2016-02-13 23:40 | 273 Views | 0 Comments

Has anyone here tried the RNS? My neurologist is recommending the RNS, not the VNS. He believes it is more effective but, it seems like a new machine so I'm not sure what to think of it. Anyone...

Created By: Smilemily | 2016-02-13 21:26 | 223 Views | 0 Comments

Hello,
I was looking into purchasing either the SmartWatch or Embrace seizure alert. Is one better than the other? What have been your experiences with wearable seizure monitors?

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Created By: SeizingLisa | 2016-02-02 18:16 | 276 Views | 0 Comments
Created By: Pignulotta | 2016-01-22 16:26 | 262 Views | 0 Comments

Has anyone had any experience with VNS therapy for seizures ?  I'm considering having it done, but would like to know more.  Any info would be appreciated. Thanks.

Created By: cxmcdan@msn.com | 2016-01-03 23:33 | 350 Views | 1 Comment

I don't know if this is going to help anyone but I had EMU Phase 2 then a laser ablation on my right temporal lobe during the week of Thanksgiving. So far it has been successful but it's only been...

Created By: MorningSeizer | 2015-12-31 02:59 | 452 Views | 5 Comments

Hi everyone,

I'm a 23 y/o female who has had partial complex seizures for nearly 20 years. My pediatric neuro just referred me to an adult neuro after I've started suffering side effects...

Created By: stephenstate | 2015-12-30 18:11 | 314 Views | 0 Comments

I had a right temporal lobectomy performed at the Cleveland Clinic in 2013.  Has anyone had surgery from that amazing place?

 

Created By: davnic13 | 2015-12-03 15:40 | 469 Views | 1 Comment

I am 36 and live in NZ. I have had epilepsy for about 15 years and have been on 6 of different meds over that period with many "cocktail" combinations of them (epilem, tegratol, topamax, lamictal...

Created By: puglover | 2015-11-24 00:27 | 315 Views | 0 Comments

Has anyone had temporal lobe surgery at kaiser in Redwood a City? If yes, how did it go?

Created By: puglover | 2015-11-23 23:54 | 265 Views | 0 Comments

Has anyone had temporal lobe surgery at Kaiser in Redwood City, CA. If so, could you share your experience? Thanks!

Created By: Hope331 | 2015-11-06 14:56 | 361 Views | 0 Comments

Hi everyone, I am having a left anterior temporal lobectomy later this month, and I would love to hear stories from those of you who have had this same surgery......I am keeping my fingers and...

Created By: Hope331 | 2015-11-06 14:54 | 270 Views | 0 Comments

Hi everyone, I am having a left anterior temporal lobectomy later this month, and I would love to hear stories from those of you who have had this same surgery......I am keeping my fingers and...

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