Topic: Surgery and Devices

Created By: mateoc15 | 2016-04-27 07:44 | 36 Views | 0 Comments

I'm looking for a bracelet for the existing magnet for my VNS implant. The super sexy one they provide is... well... not so sexy. Has anyone found anything a little less "invasive...

Created By: hannav21 | 2016-03-06 13:56 | 100 Views | 1 Comment

Hi,
I am a research and in my free-time I am working on developing a device that could detect seizures in kids and alert the parents so that the parents can make sure their kid is safe. We...

Created By: silent04211990 | 2016-03-06 03:52 | 102 Views | 0 Comments

Hi guys my name is Roman, I could not find much information about the laser surgery. So I decided to explain as much as I could and should be easier understanding I made this video for info/...

Created By: justin.bailey01@gmail.com | 2016-02-20 03:50 | 202 Views | 0 Comments

Hello all. I am currently at 1 year and 2 days since brain surgery. This was a long year of medicine experiments to cure epilepsy. Until Dec 7th I was on various meds and struggled deeply with...

Created By: Neuro Man | 2016-02-20 00:59 | 178 Views | 0 Comments

I am 48 years old and was diagnosed with temporal lobe epilepsy when I was 21.  I have complex partial seizures that are not under control.  Seizures are deja' vu feeling and then extreme...

Created By: Misjoey101 | 2016-02-13 23:40 | 202 Views | 0 Comments

Has anyone here tried the RNS? My neurologist is recommending the RNS, not the VNS. He believes it is more effective but, it seems like a new machine so I'm not sure what to think of it. Anyone...

Created By: Smilemily | 2016-02-13 21:26 | 157 Views | 0 Comments

Hello,
I was looking into purchasing either the SmartWatch or Embrace seizure alert. Is one better than the other? What have been your experiences with wearable seizure monitors?

...

Created By: SeizingLisa | 2016-02-02 18:16 | 204 Views | 0 Comments
Created By: Pignulotta | 2016-01-22 16:26 | 199 Views | 0 Comments

Has anyone had any experience with VNS therapy for seizures ?  I'm considering having it done, but would like to know more.  Any info would be appreciated. Thanks.

Created By: cxmcdan@msn.com | 2016-01-03 23:33 | 295 Views | 1 Comment

I don't know if this is going to help anyone but I had EMU Phase 2 then a laser ablation on my right temporal lobe during the week of Thanksgiving. So far it has been successful but it's only been...

Created By: MorningSeizer | 2015-12-31 02:59 | 370 Views | 5 Comments

Hi everyone,

I'm a 23 y/o female who has had partial complex seizures for nearly 20 years. My pediatric neuro just referred me to an adult neuro after I've started suffering side effects...

Created By: stephenstate | 2015-12-30 18:11 | 248 Views | 0 Comments

I had a right temporal lobectomy performed at the Cleveland Clinic in 2013.  Has anyone had surgery from that amazing place?

 

Created By: davnic13 | 2015-12-03 15:40 | 404 Views | 1 Comment

I am 36 and live in NZ. I have had epilepsy for about 15 years and have been on 6 of different meds over that period with many "cocktail" combinations of them (epilem, tegratol, topamax, lamictal...

Created By: puglover | 2015-11-24 00:27 | 256 Views | 0 Comments

Has anyone had temporal lobe surgery at kaiser in Redwood a City? If yes, how did it go?

Created By: puglover | 2015-11-23 23:54 | 217 Views | 0 Comments

Has anyone had temporal lobe surgery at Kaiser in Redwood City, CA. If so, could you share your experience? Thanks!

Created By: Hope331 | 2015-11-06 14:56 | 315 Views | 0 Comments

Hi everyone, I am having a left anterior temporal lobectomy later this month, and I would love to hear stories from those of you who have had this same surgery......I am keeping my fingers and...

Created By: Hope331 | 2015-11-06 14:54 | 225 Views | 0 Comments

Hi everyone, I am having a left anterior temporal lobectomy later this month, and I would love to hear stories from those of you who have had this same surgery......I am keeping my fingers and...

Created By: Brain Fizz | 2015-11-03 01:16 | 401 Views | 0 Comments

 

 

 

 

I've had epilepsy since 2007. It appeared totally out of the blue with no obvious cause. I was married, had a young son, a career and living a really full and...

Created By: GKhs4632340 | 2015-10-16 01:36 | 299 Views | 0 Comments
Created By: MsJamieDee | 2015-10-15 13:14 | 272 Views | 0 Comments

Hi everyone.  I'm new to the site and wanted to get some advice from any parents that have had VNS done for a younger child.

My daughter is 6 and has just been put on a 3rd medication to...

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