Topic: Surgery and Devices

Created By: Chrissy54 | 2016-07-18 23:38 | 56 Views | 0 Comments

I had complex partial seizures and recently had a right temporal lobe resection and removal of my hippocampus and amygdala and my seizures have been controlled since then. Within the lat 2 weeks I...

Created By: tchanoine | 2016-07-17 08:09 | 52 Views | 0 Comments

My daughter has had 5 status episodes beginning at 9 months. She has had to be in ICU each time for weeks at a time. We got many second opinions and surgery became an option since the EEG and PET...

Created By: wcras | 2016-06-21 15:49 | 128 Views | 0 Comments

I posted once before about getting double vision right after my temporal lobectomy. No comments. Has no one really never experienced this or has no one really had the surgery for epilepsy....

Created By: wcras | 2016-06-16 23:27 | 125 Views | 0 Comments

Had a right temporal lobectomy and got double vision side unexpectedly. This happen to anyone? If so, did it get better and if so how long did it take? I am so scared and frustrated.

Created By: kcounts0630 | 2016-06-14 13:34 | 103 Views | 0 Comments

I was wondering if anyone had problems with their Vns malfunctioning after surgery? I had the new 106 model implant in March 2016. The 106 was a replacement for the old battery which was no...

Created By: wcras | 2016-06-13 20:29 | 111 Views | 0 Comments

I am 5 weeks post right temporal lobectomy. I have double vision and it feels absolutely "dead" down there and we've tried everything. Has anyone else experienced this and did it...

Created By: JP Lzt | 2016-05-31 03:10 | 185 Views | 0 Comments

TLDR: I was 16 when I first discovered that I suffered from seizures, and that I would have to cope with them for the rest of my life. Over the past decade, I have contemplated brain surgery for a...

Created By: Dave fox | 2016-05-28 10:33 | 218 Views | 2 Comments
Created By: slyalys | 2016-05-14 11:32 | 243 Views | 0 Comments

I have one scheduled on Monday. I wrecked my car in January because I had a black out seizure and my doctor said it was time for surgery. My seizures have gone from small de Javu to me blacking...

Created By: mateoc15 | 2016-04-27 07:44 | 179 Views | 0 Comments

I'm looking for a bracelet for the existing magnet for my VNS implant. The super sexy one they provide is... well... not so sexy. Has anyone found anything a little less "invasive...

Created By: hannav21 | 2016-03-06 13:56 | 225 Views | 1 Comment

Hi,
I am a research and in my free-time I am working on developing a device that could detect seizures in kids and alert the parents so that the parents can make sure their kid is safe. We...

Created By: silent04211990 | 2016-03-06 03:52 | 245 Views | 0 Comments

Hi guys my name is Roman, I could not find much information about the laser surgery. So I decided to explain as much as I could and should be easier understanding I made this video for info/...

Created By: justin.bailey01@gmail.com | 2016-02-20 03:50 | 412 Views | 0 Comments

Hello all. I am currently at 1 year and 2 days since brain surgery. This was a long year of medicine experiments to cure epilepsy. Until Dec 7th I was on various meds and struggled deeply with...

Created By: Neuro Man | 2016-02-20 00:59 | 338 Views | 0 Comments

I am 48 years old and was diagnosed with temporal lobe epilepsy when I was 21.  I have complex partial seizures that are not under control.  Seizures are deja' vu feeling and then extreme...

Created By: Misjoey101 | 2016-02-13 23:40 | 396 Views | 0 Comments

Has anyone here tried the RNS? My neurologist is recommending the RNS, not the VNS. He believes it is more effective but, it seems like a new machine so I'm not sure what to think of it. Anyone...

Created By: Smilemily | 2016-02-13 21:26 | 323 Views | 0 Comments

Hello,
I was looking into purchasing either the SmartWatch or Embrace seizure alert. Is one better than the other? What have been your experiences with wearable seizure monitors?

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Created By: SeizingLisa | 2016-02-02 18:16 | 369 Views | 0 Comments
Created By: Pignulotta | 2016-01-22 16:26 | 358 Views | 0 Comments

Has anyone had any experience with VNS therapy for seizures ?  I'm considering having it done, but would like to know more.  Any info would be appreciated. Thanks.

Created By: cxmcdan@msn.com | 2016-01-03 23:33 | 418 Views | 1 Comment

I don't know if this is going to help anyone but I had EMU Phase 2 then a laser ablation on my right temporal lobe during the week of Thanksgiving. So far it has been successful but it's only been...

Created By: MorningSeizer | 2015-12-31 02:59 | 545 Views | 5 Comments

Hi everyone,

I'm a 23 y/o female who has had partial complex seizures for nearly 20 years. My pediatric neuro just referred me to an adult neuro after I've started suffering side effects...

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