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vns implant
Sun, 09/10/2006 - 14:42Topic: Surgery and Devices
ok, here's the deal, and i'm super freaked out about it so i hope at least one other person has experience with this so i will feel better. For 15 months now i've had the VNS implant, so far everything has been great (even got off one of my meds completely!) so last week I start to notice that i can feel the lead in my neck. now you can actually see the lead sticking out. So i went to my nuerologist and they took xrays and are sending them to texas (for cyberonics to look at them). Anyway until we get those results i feel tightness and the choking feeling all over again. Also i asked the technician who took the xrays to let me see them and it look like most of the cord was in the neck, i thought the "excess" cord was suppose to be in your neck?! has anyone else had this experience? they said possibly that the "grounds" holding the lead in place may have broken or something along those lines...any comments would be appriciated, i don't find out for 2 weeks unless it's bad news :(
Comments
Re: vns implant
Submitted by Tjtoday on Sun, 2006-09-24 - 01:29
Keep me informed how are you doing? I do not know much to say. My brother has this vns too, and I have seen so many changes with him, I am reading all I can to learn. Hope all is good for you.
Re: vns implant
Submitted by rosegirl on Wed, 2006-09-27 - 22:47
Well I'd like to congratulate you on getting off your meds. I've had the vns for about 5 yrs and I'm still on 4 meds but congrats to you! I've never heard that happen to anyone(until now) and it never happened to me. I'm no expert so all I can say right now is I wish you the best and keep us posted. :)
Re: vns implant
Submitted by Lauri on Fri, 2008-03-28 - 09:40
may daughters (23) her doctor had suggested a couple of years ago the surgery for her seizures. She doesn't have insurance and she didn't qualify for medicade. We are currently waiting to hear back from the UofM to see about financial support. In the meantime her doctor suggest last week the VNS procedure. Can anyone out there explain to me how it feels? I've read up on it, but would like to hear from someone who has this.
Thanks to you all, God Bless!
may daughters (23) her doctor had suggested a couple of years ago the surgery for her seizures. She doesn't have insurance and she didn't qualify for medicade. We are currently waiting to hear back from the UofM to see about financial support. In the meantime her doctor suggest last week the VNS procedure. Can anyone out there explain to me how it feels? I've read up on it, but would like to hear from someone who has this.
Thanks to you all, God Bless!