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Vns drama

Sat, 04/18/2015 - 21:08

just wondering if anyone else has had drama with a vns implant? I was all for this thing and it did help. Except it had to be turned down because it caused gastroparesis, pain every time it turned on, shortness of breath, sometimes my throat tightens up, etc.  the last 6 wks the muscles around my leads have been spasming throughout the day everyday all day and night, and it causes discomfort as well.  This is getting turned off in a few days.  I'm kind of bummed because on one hand, it worked, but i can't handle the adverse events.  And i don't qualify for any other surgery i guess....

Comments

Yes, the vns is the only one

Submitted by aprylle01 on Sun, 2015-04-19 - 13:34
Yes, the vns is the only one i qualified for.  I was told with my type of epilepsy seizures can start from anywhere.  With the rns, you can only have 1 focal point.  But that was the one i wanted in the first place.

Yea i lucked out and go to a

Submitted by aprylle01 on Sun, 2015-04-19 - 16:03
Yea i lucked out and go to a great place.  I'm just bummed about this vns working/not working and wish there was another option besides meds.

my husband's neuro is

Submitted by cx.kateyiannis@cox.net on Tue, 2015-06-30 - 00:59
my husband's neuro is recommending VNS.  Is there a way that a doctor could figure out if this pain is going to happen or not? Is it due to something specific to YOU, or is related to how the did the implant (ie: did they mess up?)I will be following this post to see what other people have also written about VNS...it's a tough decision to make since the results for people seem to be very random and positiive benefits kind of iffy.

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