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Surgery on a 3-year-old

Fri, 07/28/2006 - 21:45
Hello, Our 3-year-old daughter has had seizures since she was 9 mo old. She was diagnosed with infantile spasms. She is significantly developmentally delayed, on numerous medication and still has between 0 and 6 seizures a night (almost exclusively in sleep). We just found out that she is a surgical candidate and we are hoping that she will have her operation soon at Boston Children's (Dr. Madsen). My greatest concern is for the "invasive monitoring" which sounds awful not to mention our inability to explain any of this to our poor, unsuspecting little girl. It seems that her seizures are originating from the right temporal/frontal regions. Does anyone hae any words of wisdom on this topic? TIA jessicarozen@yahoo.com

Comments

Re: Surgery on a 3-year-old

Submitted by angel_lts on Sat, 2006-07-29 - 07:29
Sometimes with infantile spasms, could be a deficiency. Talk with your doctor about b6. check out this story http://www.epilepsy.com/stories/ps_1064252409.html take care Lisa http://health.groups.yahoo.com/group/epilepsyapproach/

Re: Re: Surgery on a 3-year-old

Submitted by jessicarozen on Sat, 2006-07-29 - 12:05
Thanks for your response. Yes, we tried the pyroxidine challenge with a simultaneous eeg. Wouldn't that have been nice if that was it...

Re: Re: Re: Surgery on a 3-year-old

Submitted by angel_lts on Sat, 2006-07-29 - 13:28
Oh that is a shame. I didnt think they could do brain surgery on someone so young? I have found that omega three has helped me. Still not seizure free but got rid of hundreds of auras, and about nine complex partial seizures a month. best of luck to you and your son. take care Lisa http://health.groups.yahoo.com/group/epilepsyapproach/

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