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seizure surgury
Thu, 11/30/2006 - 13:38Topic: Surgery and Devices
I am going to have left temporal lobe surgury in Jan. or Feb. and they are talking about possible removal of my left hippocampus. Has anyone had this removed. If so, how are you doing, what can I expect? I have had a wada, and pet scan already. The surgery will depend on the grid test which will be next. They are to call within a couple of weeks with the scheduled date. I will take any info you can give me. Are you still on meds? are you seizure free? how long since your surgery? p.S I am also a type one diabetic, anyone been in my shoes?
mulleca of Minnesota P.
Comments
(chumtochatwith) how did you
Submitted by mulleca on Fri, 2006-12-01 - 20:30
(chumtochatwith) how did you do with your diabetes? I am on an insulin pump and they want to disconnect me and give me injections. I have been in control and off of injections for 10 years so allowing a medical team to take over, will be out of my comfort zone. I am in good conrol of it, however, I have been the one doing it. Were you in intensive care very long and unable to manage your own diabetes? How long were your blood sugars elevated afterward?
mulleca
Re: (chumtochatwith) how did you
Submitted by Joan K on Fri, 2006-12-01 - 23:16
Hi-
Hi
I have also been on a pump for many years and control it myself. I have been in surgery twice while on it and what they did was to disconnect the pump during surgery and give me an intravenous of glucose during the procedure and check my numbers during surgury. They had insulin available if necessary. Because I was not allowed to eat for so many hours before surgery, the glucose was almost more important than the insulin. When I regained consciousness they contolled my numbers until my diabetic doctor gave them the OK on using the pump. Most of the nurses did not know how to use the pump anyway. My diabetic doctor talked to the Surgeon and came to see me everyday just to check on things. All of this was discussed by both
doctors about a week before surgery.
Good Luck
Joan
Wow, I am also type 1
Submitted by chumtochatwith on Thu, 2006-11-30 - 19:30
Wow, I am also type 1 diabetic. I had a left temporal lobectomy with hippocampus and amygdala removed also end of September of this year. And I have been totally seizure free since! my meds were decreased and will be slowly weaned over the next year or so. It was a rough year leading up to it for the whole family but I have to say it was well worth it. My seizures were triggered by music and I can now listen to music without any problems! The recovery is rather difficult at first (I had a lot of nausea) but I haven't had any memory loss or any other deficit so that is great. I hope everything goes well for you. If you have any questions, please feel free to ask. Sincerely, Chumtochatwith