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Recovering
Thu, 03/03/2011 - 15:00Hi everybody,
I have had epilepsy since I was 15, never been able to control it so my neurologist sent me to Rush University Medical Center in Chicago Il where a team of amazing neurologists decided that after six different medications surgery would be better. So i did all the tests, the EEG hospital stays, the WADA test, the SISCOM test and then finally figured out that my seizures were coming from my right temporal lobe. I have grand mals, complex partial, and simple partial seizures, the grand mals were pretty well controlled but my other seizures I was having 6 or 7 times a week sometimes a day. Well now I am 25 and my husband and I would like to start a family so I do not want to be on Carbotrol and Keppra while trying to have kids, nor do we want me to be having all those seizures, so my family and I decided surgery would be best. So last month Feb. 3 I had a crainiotomy and they removed 3 in. of my brain. My neurologist already started to lower me off carbotrol.
I was wondering if anybody could tell me how long I am going to feel these rough headaches and the fatigue!?
Thank You
Staci
P.S. One month today and completely seizure free!!!
Comments
Re: Recovering
Submitted by walktall on Wed, 2011-03-09 - 12:12
Hi Kevin,
I was just wondering what the docs said about your muscles feeling like they are crawling. Just recently my arms and legs have started doing that, I have been waking up in the middle of the night with my arms and legs feeling like they have to move. What did your docs say?
Thanks
Staci
Hi Kevin,
I was just wondering what the docs said about your muscles feeling like they are crawling. Just recently my arms and legs have started doing that, I have been waking up in the middle of the night with my arms and legs feeling like they have to move. What did your docs say?
Thanks
Staci
Re: Recovering
Submitted by RTL on Wed, 2011-03-09 - 18:51
Staci,
I don't recall discussing the issue. It's quite probable that I had forgotten all about it by the time of my first post-op appointment because my main concern at that time was the dizziness caused by the Tegretol.
It was entirely my own conclusion that the crawling sensation was a result of the pain meds, in this case Tylenol 3.
Kevin
Staci,
I don't recall discussing the issue. It's quite probable that I had forgotten all about it by the time of my first post-op appointment because my main concern at that time was the dizziness caused by the Tegretol.
It was entirely my own conclusion that the crawling sensation was a result of the pain meds, in this case Tylenol 3.
Kevin
Re: Recovering
Submitted by RTL on Thu, 2011-03-03 - 20:11
Staci,
I had similar surgery in '03 and have detailed my experiences here:
http://users.eastlink.ca/~kehoe/surgery/
Kevin
Staci,
I had similar surgery in '03 and have detailed my experiences here:
http://users.eastlink.ca/~kehoe/surgery/
Kevin