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Post Surgery

Sat, 03/23/2013 - 08:02

I had surgery almost a year ago, and still have not havd CP siezures, YEAH! I belive that peope who are not epileptic think about what heaven may be like. For epileptics the answer is easy, NO SIEZURES IS HEAVEN! I must admit that one thing I did not see coming pre surgery was the anexity and stress of hope and concern that I stay in heaven. I have been talking to a therapist about it and I'm about to start meditation through YOGA. What ever it takes to be siezure free I will try. I never saw this coming. I think that epileptics are the strongest and to me the most respected people there are.

I have one question...Am I still medically considered an epileptic even if surgery has been successful so far?

Comments

Re: Post Surgery

Submitted by tbaldwin on Sun, 2013-03-24 - 22:12
MCM, My post seizure would've been heaven if it had worked! Mine was totally unsuccessful; no reduction of seizures, no reduction of medicines. But; it was successful in causing a huge verbal-memory loss. Often I'm unable to talk or say something back to the person that expects an answer if the answer isn't in memory, even though I thought it up. I hadn't remembered it yet, the voice box is only signaled to speak if it's found within the brains memory. It's a real drag but at least I'm on allot of drugs(prescribed AED's). Timothy Baldwin

Re: Post Surgery

Submitted by babzy on Mon, 2013-03-25 - 21:42
Congradulations on your seizure freedom.I can relate to the stresses of this new glorious life ahead of you. After having surgery 3 yrs ago,I recall going through a phase of anxiety & nervousness of the future. Yoga is a good idea, I dealt with the post surgical anxiety 1 day at a time with reminders that this was my new life. If your meds are being decreased, i think that too may inflict some anxiety on yourself as well. Just remember "This is The New You" and go from there.. In regards to your question, I believe you\we are still considered epileptics. Only now we have control over our seizures.. Keep up the great work and peace to you

Re: Post Surgery

Submitted by GodivaGirl on Sat, 2013-03-30 - 21:36

Hi There.  Congrats on being seizure free.  I had my surgery July 2011 (right temporal) and have been seizure free since.  I can relate to the stress and anxiety of all the "what ifs".  In time that starts to get easier and easier.  Like babyz (posted below) I always take things one day at a time thinking OK, new beginning.  I have heard yoga can be a great thing.  For me any time life seems overwhelming, I grab my iPod and just go for a really long walk listening to some favorite songs.   I also tend to do a lot of writing in notebooks, that's always helped me with stress. To answer your question of epileptic or not, yes I tell people I'm a controlled epileptic.  I actually do what I can to still help out with Purple Day events for epilepsy awareness. 

Hang tough and enjoy life seizure free.  One day at a time it gets easier :)

 

 

Hi There.  Congrats on being seizure free.  I had my surgery July 2011 (right temporal) and have been seizure free since.  I can relate to the stress and anxiety of all the "what ifs".  In time that starts to get easier and easier.  Like babyz (posted below) I always take things one day at a time thinking OK, new beginning.  I have heard yoga can be a great thing.  For me any time life seems overwhelming, I grab my iPod and just go for a really long walk listening to some favorite songs.   I also tend to do a lot of writing in notebooks, that's always helped me with stress. To answer your question of epileptic or not, yes I tell people I'm a controlled epileptic.  I actually do what I can to still help out with Purple Day events for epilepsy awareness. 

Hang tough and enjoy life seizure free.  One day at a time it gets easier :)

 

 

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