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The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Looking for the best VNS facility in the country

Tue, 12/30/2014 - 23:11

I recently had my VNS replaced (first one was damaged). I am having difficulty with my new VNS and the neurosurgeon does not know what to do except turn it off.  It is helping me so that is not the best option.  I am looking for someone who specializes in not just VNS surgery but diagnostics as well.  My VNS is zapping or electrocuting me multiple times per day.  I need help to fix this problem and I really don't know who to turn to or where to go.  Please help me!! I live in Massachusetts but I am willing to travel if need be. 

Jillian 

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