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How has the Neuropace RNS worked for you?

Thu, 10/06/2011 - 22:08
Having epilepsy my whole life and starting medication around 1993, with very little luck from the neurologists, I was finally sent to an epileptologist around 2007. They tried another combination of meds and decided to run me through some testing to see if I was a candidate for surgery as after trying about 11 medications there was no luck and said I had refractory seizures. The Pet scan showed my focal points so they did a Wada test at which point they decided they could not do any resection as there was too much risk and they also said they did not think the VNS would help. They offered me the chance to join in the pivotal phase of the RNS, which has pretty much seemed like it was my only chance so I took it. The implant was done in February of 2009 and just last week had to be replaced as the battery was dying. The double blind portion was no fun at all, not knowing anything. But according to what they are saying now it has shown a decrease in my seizure activity although it still has not completely stopped. They told me I was actually having more seizures than I realized as I was having multiple seizures at night. Overall I feel that it has helped as an adjunctive therapy, however I will be continuing to try different meds until we can stop them. My next step is to start Vimpat after I heal. Has anyone else had this procedure done? And if so, how has your luck been with it?

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