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Help needed for Mom- any seniors out there?????

Mon, 09/19/2005 - 21:50
My 69 y.o.mother had her first seizure four weeks ago, and it was a really bad one. She went into full respiratory arrest and had to be intubated for several days. They gave her a "bolus" of Dilantin and added on Trileptal , then Keppra, and now she is on Dilantin, 100 mg twice a day and Keppra, 750 mg am and 1000 mg pm, no Trileptal. Here is the problem. Within a couple of hours of taking this, she is no longer able to speak, understand speech, or ambulate. In other words, she is a zombie. She has had two falls because of this and now has a subdural hematoma. About the time the medicine needs to be given again, she can talk, understand, and walks much better. I know many of the AEDs are worse for seniors than these two, but has anyone else had these serious side effects?? She is virtually bedbound all the time. She can't even go to the bathroom without help because of this medication. Any help would be appreciated.

Comments

i'm not a sr. but i know

Submitted by tuesdays_jupiter on Mon, 2005-09-19 - 21:58
i'm not a sr. but i know what your talkin' about. I was intially on 1000 mg of Keppra and had some rough side effects for around a month. I acted like i was stoned or drunk and notoriously walked into the same column at school. I ran into doors and walls, but all in all the Keppra got mostly controls the sz (on 2000 mg). I have a prob. w/ them pumping your mama full of stuff on a moderate dosage (no an initally 'low' dose) b/c of 1 sz. that seems a little fishy to me, and if it were my mama, me and the drs. would have a row. Sunshine and Daisies, ~Cass "There is no exquisite beauty without some strangeness in the proportion" -Edgar Allen Poe

Medication Overload

Submitted by grez-monkey on Tue, 2005-09-20 - 00:11
Julie, I feel the same like what Cass said. Your mother has pretty much been shot. Not with a bullet, but with multiple medications at a moderate dosage amount, all at once over the past four weeks. And again, like Cass said, you're saying that your mother only had one really bad seizure? About in the middle of last year I had to go through what's called a crossover, of being slowly weaned off the medication of divalproex, and then started with the slow increase (acquisition period) of the medication keppra to reach the 750 mg dosage twice a day. Was already taking 150 mg lamictal twice a day the whole time before, during and after that crossover. Julie, my suggestion to you is that you need to get your mother to a primary care physician as quick as you can, tell him or her the details of what your mother has gone through and what she is still currently having with her side effects, and then you may be able to get a referral to see a professional neurologist. Here's another idea for you to look into. See if you can contact a pharmacist in your area and explained the situation about all of the medications you mother is on, to that pharmacist. Because whoever did this to your mother needs to have their head examined. It might even be a very good idea to have those people, who did this to your mother, investigated to see how inexperienced they are in handling emergency situations with people having seizures. Your mother's life, as well as anybody else's life, is far more important than the jobs of those so-called medical professionals. Please keep us updated as to the status of your mother, because we need to stick together and share our stories with one another, in order to keep things like this from ever happening again to anyone else. Bruce

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