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Ganglioma Tumor and brain surgery

Fri, 02/18/2011 - 13:17
My husband  Bryan was diagnosed with a Ganglioglioma Tumor two months ago.  He is choosing to remove the tumor and is scheduled for the 8th of March for a Awake Brain Surgery.  Hoping he will also be seizure free and will not have to take meds.  He has had his seizures for 20 years and NEVER been on medication until this month. They are really making him have lots of icky symtoms.  He has tried the Lamotrigine and the Zonegran so far.  Doc says he wants my husband to be on something during his surgery so he is going to try a different med. very frustrating.  He only has the Partial Complex Seizures.  He cannot communicate or understand language for a couple of minutes and gets tired after.  He is fully aware and consious when having one.

Any pointers or questions we should ask the suergon or your Neurologist are appreciated.  Medicine advice and your experiences are useful.  Advice on surgery and post op and pre op are also needed. I want to be prepared for my hubby. I am the research nut as I learned to be 14 years ago as my son has a rare form of Muscular Dystrophy. I do all the medical research and only looking out for the best interest of my husband and our family.

 

Thank you so much for your help and support through this difficult time

Stephanie V

Comments

Hi Stephanie, How is your

Submitted by kdf on Tue, 2017-10-03 - 16:42
Hi Stephanie, How is your husband doing? I just learnt 2 months ago that I have a Ganglioglioma close to my hippocampus in left temporal lobe near the temporal horn. I had one seizure after I gad an allergic reaction and  hyperventilated. I started taking Lamictal just yesterday. They advised me against surgery for now ... I am also a research nut and feel I need to have more information to feel I am in control. 

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