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Topic: Surgery and Devices

Created By: ladybugg31186 | 2015-06-30 23:09 | 22 Views | 0 Comments

I am exactly 1 week postop from having my first VNS implant. It's horrible. That's all i can even manage to say.They had to turn it on immediatly following the surgery as i began having seizures (...

Created By: aprylle01 | 2015-06-27 02:00 | 63 Views | 0 Comments

I just wanted to tell a bit about my vns implant.  I had a vns lead revision 10 days ago.  I had a bit of an unusual complication that developed months after the origional implant surgery.  I...

Created By: GKhs4632340 | 2015-06-16 20:27 | 78 Views | 1 Comment

Hi everyone,

I had my epilepsy surgery four years ago.  Since then, I have been having powerful headache 24/7 to this day.  I have tried both prescription and over-the-counter pain killers...

Created By: hoohaahill@rocketmail.com | 2015-06-09 18:25 | 114 Views | 3 Comments

Hello, this is my first post. My 18 year old daughter will be getting a VNS device in August. We're concerned about side effects and if this will really help her. Does anyone have any thoughts to...

Created By: suzreg | 2015-06-04 00:07 | 109 Views | 1 Comment

Hi, i want to let people lnow about the possible side effect of the VNS.  My daughter had the hiccups for a year....  All, all night.  We ended up doing surgery to remove a tumor in her stomach,...

Created By: sabmother | 2015-05-19 12:04 | 184 Views | 1 Comment

Hi all! This is my first post here but i'm researching for my DH. He had surgery 15 years ago and he was fairly controlled with meds. Then last year he went toxic on his lamictal and had to go...

Created By: AngelaB. | 2015-05-14 12:24 | 188 Views | 2 Comments

Hi everyone. I had a VNS implant put in a couple of years ago. Recently, we noticed that the area around the implant is getting really hard & I now have a visible bump on my chest where the...

Created By: dlmy1978 | 2015-05-13 18:30 | 172 Views | 1 Comment

I was looking for others who have had a right temporal lobectomy with hippocampus removal due to brain damage caused by an encephalitis. My daughter became ill in 2012 because of an mosquito bite...

Created By: Matilda2014 | 2015-05-09 19:00 | 276 Views | 1 Comment

My daughter had frontal lobe epilepsy surgery 6th jan 2015 tonight 4 months later she has had a seizure is this normal or has the surgery been unsuccessful I'm devastated

Created By: Hope331 | 2015-04-27 12:51 | 425 Views | 1 Comment

Hi everyone, I have gotten mixed responses from people, but I really need to hear from those who have undergone surgery.....is surgery really worth it?  Do you feel it has benefited you and made...

Created By: Hope331 | 2015-04-21 11:07 | 348 Views | 0 Comments

Has anyone had a 2 step left temporal lobe surgery?  My neurologist is thinking, that my best option is a 2 step surgery.....the 1st surgery they would go in and put electrodes in my brain, wean...

Created By: aidadjokoviccc | 2015-04-20 01:46 | 184 Views | 0 Comments

Hello everyone, I will be having my second (left interhemispheric) craniotomy on thursday and I was wondering if anyone has any information. Im really scared. I was to return back to school right...

Created By: aprylle01 | 2015-04-18 21:08 | 309 Views | 3 Comments

just wondering if anyone else has had drama with a vns implant? I was all for this thing and it did help. Except it had to be turned down because it caused gastroparesis, pain every time it turned...

Created By: Kodymom | 2015-04-14 22:45 | 200 Views | 0 Comments

Has anyone out there had an MST (multiple subpial transection)? If so can you please tell me your experience. Our neurologists have suggested this procedure for our son. He is 15 and functions...

Created By: Hope331 | 2015-04-13 12:30 | 383 Views | 0 Comments

If anyone has any last minute suggestions on what questions to ask the neurologist/neurogsurgeon regarding possible brain surgery, please let me know.  I am meeting with my neurologist tomorrow to...

Created By: Hope331 | 2015-04-10 13:09 | 375 Views | 0 Comments

Hi everyone, if you have had left temporal lobe surgery, can you please tell me what your life has been like after surgery.....are you back to living a normal life? how long was your recovery?...

Created By: Navyvet90 | 2015-04-09 14:38 | 262 Views | 0 Comments

 

Hello,

I am new here and just looking for some surgery advice, I'll start with a little background.

I was diagnosed with Epilepsy in 2012 at the age of 22, while serving in...

Created By: Hope331 | 2015-04-07 11:43 | 273 Views | 0 Comments

Well, my neurologist got my WADA test results and said I did well on both sides, meaning both my right and left hemispheres are involved in memory support.  You'd think this was a good thing (at...

Created By: dnel0680@gmail.com | 2015-04-01 16:00 | 322 Views | 0 Comments

My name is Doug, I'm 39 and have had epilepsy my whole life. On the 10th of this month I'm having Lazer Ablation Surgery. I'm pretty nervous, have done a lot of reading on it but was woundering if...

Created By: Hope331 | 2015-03-29 22:29 | 373 Views | 0 Comments

 

hi everyone, I will be having the WADA test in a few days, and would like to hear some of your experiences with this test...were you sore afterwards, and if so, how long?  We're you...

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