Topic: Surgery and Devices

Created By: Ginger1984 | 2017-07-23 20:27 | 0 Comments

Hello,
I had brain surgery to install the NeuroPace device April 5th. Since then my grand mals have gone from once every month to ever 2 two months to having one every 2 weeks! My doctor...

Created By: Ksbabysweet82 | 2017-07-05 17:09 | 1 Comment

On May 19th the father of my children passed away due to a seizure he had surgery on March 21st to get vns to help with his seizure but it didn't do anything because he no longer is with us....

Created By: Spellbound | 2017-07-01 10:32 | 1 Comment

I have had epilepsy all my life (almost 40 years). As of right now, it is relatively under control via medication and a VNS. For a variety reasons I have been depressed lately. I know that...

Created By: Broooke denver | 2017-06-23 01:52 | 2 Comments

I am getting a VNS in August and I keep having people ask me if I tried Marijuana. I'm so excited, I've taken 6 different meds in my lifetime and finally no new drugs. But all these...

Created By: Epilepsyuser24 | 2017-06-07 08:08 | 4 Comments

So I'm about to get this double brain surgery which is when they put grids on my brain in the first one and make me seize with it on and then find the spot they want to take out and take them...

Created By: Micci | 2017-06-06 16:30 | 0 Comments

I am now to the foundation and it looks there is a wealth of information here.
I am being faced with surgery to remove two lesions in my brain. I met with my neurologist yesterday. She said...

Created By: kcounts0630 | 2017-06-03 10:34 | 0 Comments

Yesterday I started physical therapy due to severe lower back pain. My neuro recommended the physical therapy. His theory is less pain reduction in seizures. I have a vns but failed to remember...

Created By: Ejhinton114 | 2017-05-24 21:49 | 3 Comments

My neurologist suggested having a Laser Ablation Surgery & I am looking for someone who has had or knows someone that underwent this procedure. Any information will be helpful &...

Created By: Laureen | 2017-05-19 02:24 | 0 Comments

We have been offered the possibility of getting a partial resection of the Corpus Callosum surgery for our 15 year old. I would like to hear of your experiences with this surgery, if it has...

Created By: ef4alamo | 2017-05-18 21:40 | 0 Comments

Hello I was wondering if any one ever had a VNS device put in them to help prevent drop seizures. My doctor wants me to have one put in me to help prevent my drop seizures. Also does it help...

Created By: audrobinson393 | 2017-05-16 12:19 | 2 Comments

Hi!

Sorry for the vanity question, but I'm wondering if anyone has had the SEEG test/surgery and if they have to shave your head?

Thank you!!!!

Created By: Jlares0616 | 2017-04-30 22:51 | 1 Comment

I'm seeking for some sort of answer to what recently happened to me. I went through a VNS surgery 2years ago and my epileptologist went on to increase the frequency as time passed by. Right...

Created By: yumiko | 2017-04-24 15:28 | 2 Comments

Hi
My 10 year-old daughter has Epilepsy. She has had seizures twice in the past and both of them were at night.
I have been monitoring her at night using a baby monitor but it has been...

Created By: rrdutt | 2017-03-30 13:23 | 0 Comments

Hello...I'm fairly new to this site since yesterday..I got diagnosed in my 20's. I'm 41 now and life has been very hard as I'm sure many of you know. I haven't driven...

Created By: Bluedaisy383 | 2017-03-29 22:42 | 2 Comments

My son is 6 and has run the gammet of medications, yet still have 20+ seizures a day. We have an appointment on April 12th to discuss the VNS or the Ketogenic diet. In my research, it seems that...

Created By: ddca1990 | 2017-03-25 16:19 | 1 Comment

Has anyone had to have their VNS taken out and if so why? I wish to heck up and down that I would NOT have got it! how about you others?

Created By: anzella_1267 | 2017-03-20 20:19 | 8 Comments

Hi everyone.

I'm looking for advice and stories of people who have had a temporal lobectomy. I'm still concerned because after 6 weeks from my surgery I'm still getting auras...

Created By: Lindsayelf | 2017-03-04 12:06 | 11 Comments

I am having VNS therapy done March 27th. Ive done my research and have watched the video they gave me about it. The only thing im nervous about anesthesia.
I know what side effects that may...

Created By: laphamsmith | 2017-02-11 09:21 | 0 Comments

My daughter is 11 years old and we are considering a left temporal lobectomy. Just wanted to hear others experiences who have had this done. How was recovering? Are you now seizure free? Still...

Created By: IngieT | 2017-02-02 10:49 | 4 Comments

I've had epilepsy since I was 6 and am now 30. I've tried many medications & I've had many doctors due to them moving to other states. My current neurologist is the only 1...

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