My story

I am a graduate student pursing a degree to become a school counselor, LPC (license practicing nurse), Sac, student assistant coordinator, and a drug and alcohol counselor. I will complete my education Spring 2019. I was diagnosed with focal sezuire this June. Before my diagnoses, I was really active. I was always postive and happy. I had three jobs and a full time student. Never been a problem. I lived on my own and very independent. After my diagnoses, everything changed. I was put on medication. My mood changed everyone noticed I'm alawys tierd. Not as upbeat. I quit two jobs. I fear every day something will happen. I live minute you minute. If I have a good day it is an achievement. My spells I call them becuase I still don't know the difference between auras and sezuires. I have a headache. Not a normal one. Become weak. Breathing hard. Light headed. And no responsive but aware (is this a seizure). I snap out of it and I'm normal. Secondly, I recently was upset and became non responsive but aware, weak for an hour. I couldn't talk as if my mouth was forced shut. I could only nod. According to my bf. My complexion changed. ( is this a seizure too). It was difficult to start the new semester. I was not obligated but I told my professors and my advisors and they are all working with me to complete my degree. At work they are all understand as they are all in the same field. However, they treat me as a delicate flower not trying to stress me out or worry me fearing, which I hate. But they do it with love and concern. My family had a hard time understanding. They acted as it was no big deal. I do not live with them. They were not even worried about me which was unacceptable to me. But it is life. My support system is my boyfriend. And his family. Out of love and fear I pushed my boyfriend away I did not want him to deal with this for his rest of his life and interfer with his career. But he stayed and is there with me all the time ( grateful) and I'm soon to be married. My medication seems to give me a lot of side effects that I never had. My lymph nodes get swollen randomly. Tierd, moody. I have no other diagnoses. So that's my story. I hope to learn and advocate for this condition.