Community Forum

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

Learn more about #DareTo Go the Distance

Topic: Share Your Story

Created By: Rmed7 | 2017-09-19 19:21 | 0 Comments

Hello I am taking lamictal XR 300mg. I had a blood test done and the doctor said that everything was ok. He just looked at the results fast and said everything looked fine, but then I was given at...

Created By: Dianarlove19 | 2017-09-16 02:13 | 0 Comments

I am a graduate student pursing a degree to become a school counselor, LPC (license practicing nurse), Sac, student assistant coordinator, and a drug and alcohol counselor. I will complete my...

Created By: KWokydow | 2017-09-15 07:57 | 1 Comment

My name is Dillon and I have grand mal seizures. My epilepsy wasn't something I was born with, it's a result of a head trauma to my left frontal lobe that I got when I fell asleep at the...

Created By: Cynthia.deleonromo | 2017-09-14 15:29 | 0 Comments

Hi everyone I'm Cynthia I'm 21 and just got diagnosed with epilepsy. It's very hard for me at the moment. I can't seem to find help I can't get a doctor to see me without...

Created By: Makea94 | 2017-09-13 14:26 | 2 Comments

Hi everybody,
I m new on this chat and I I m greatful to be here :) I want to talk to you about something called photosensitivity. Has anyone else this in combination with epilepsy? I ve red...

Created By: Daryen | 2017-09-13 00:29 | 2 Comments

At age three i was diagnosed with epilepsy. I am currently 21 and 7 months pregnant with my first child. If someones opinion, which is better for a first time birthing idea? C-section or Natural?...

Created By: bbmackram | 2017-09-12 19:42 | 1 Comment

Hello everyone,
My name is Bianca I am 27 years old, this is my story. I was 8 years old when I had my first seizure. I remember going to a mini market place with my mother and aunt. I was...

Created By: audia4b8 | 2017-09-12 13:39 | 0 Comments

Hey everyone i am new to this forum because i don't really know where else to go, Im 20 years old tall and pretty fit but ive been having seizure like symptoms happening to me when i stand up...

Created By: Rainwater | 2017-09-09 11:41 | 1 Comment

Hi, my username is Rainwater. I had my second Tonic Clonic seizure in June, and I decided to take alcohol out of my diet. I have not had another seizure since I made the change. I began a...

Created By: columbo681979@yahoo.com | 2017-09-07 20:00 | 0 Comments

Back then it bothered me. I was a teen. Now, today it still does because I am afraid to talk to any woman. Will she freak out when I tell her about my side effect. She'll be a shame about...

Created By: douglaslee | 2017-09-06 22:46 | 0 Comments

Because of my seizures, I'm unemployed and living with my parents. My mother is extremely obsessed with me not leaving the house. My time outside the home is 4 hours per week at best. Do...

Created By: Tyler968 | 2017-09-06 21:15 | 2 Comments

I have seizures once every 6-9 months, they come without warning I'm on 1000mg Divalproex Acid, 800 mg carbamazepine, 150mg lamotrigine. I'm in bed every night by 9, up at 6AM for work....

Created By: AndyH | 2017-07-24 16:33 | 1 Comment

Just thought I would share my story since I only have nocturnal seizures and they didnt start happening till after i got back from the Gulf War around 1994. I didnt even know I was having them...

Created By: freak | 2017-07-04 21:29 | 3 Comments

I can't say my epilepsy struggle wasn't a difficult one. I had my first seizure at the age of 5, and since then, my religious family has treated me like a worthless sinner. I was blamed...

Created By: nana123 | 2017-06-29 03:09 | 0 Comments

Thanks for the good information.

Created By: T0K07 | 2017-06-27 03:57 | 2 Comments

Hello everyone
Thanks for pick up me logged in. In a good forum.

Created By: johnnytrad | 2017-06-21 14:56 | 2 Comments

Hi all,
I thought I had this beat...I thought wrong.
Just when I thought I was out....
When I was 17 I got into a bad accident - head on collision with a tree. Not long after I...

Created By: Courtneyreidenbach | 2017-06-05 07:44 | 1 Comment

Hi, ive recently been diaagnosed with epilepsy, my first bout being life threatening se. I was driving on the thruway, woke up a week later strapped to a bed in icu. I thought i had only had the...

Created By: ynot | 2017-05-21 20:45 | 5 Comments

Hello, I can't believe how this is such an epidemic, until this hits home and it has our family traumatized right now, but I have to say we feel fortunate because so many people seem to have...

Created By: Amany | 2017-05-21 17:24 | 6 Comments

I need help ,
My son is 11 years old now, he had febrile convulsions when he was 3 years old then another time when he was 6 years, the last time was from 6 months ago and we discovered by...

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
24/7 helpline