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We Have a Celebrity!

Tue, 10/10/2006 - 16:25
I know that on other communtities , many were kind of bummed that Elton John had not done much for Epilepsy Awareness. Considering he has Epilepsy, I've found many to have been somewhat insulted about it. However, after being given some information - I verified that we do have one of our own. Amy Lee, the lead singer of Evanescence, has started an Epilepsy Awareness project. It took me some time to hunt down the information regarding why she had chosen Epilepsy, but I finally got it. She has this very kind user in their chatroom (Kaydee, I think - I forgot) who was able to help me out. It seems that Amy's little brother had been diagnosed with Epilepsy and she, too, felt like many have when first hearing about this. People only know of the 'one type' of Epilepsy, so once she realized he was still her brother :) she has made it a personal goal to educate people about Epilepsy. I tried to check out her forums, but like many fansites these days, you have to pay for it. I just wanted to post a thank you, but hey, my meds are expensive so maybe one day she will find herself here to see this message. Who knows?! Anyway, here is the link for those interested: [url]http://outoftheshadows.com/[/url] There was more information on a MySpace page by a fan, however, that website is not friendly at all with anyone who suffers with any photosensitivity problems. If you are able to, I forgot the site - but it's on myspace somewhere. Maybe search "Epilepsy" and see what you find. I just wanted to share with everyone, because it's nice to see when people are trying to help.

Comments

Re: We Have a Celebrity!

Submitted by Seruzies on Fri, 2008-04-18 - 15:06
I've never been a fan of Elton John or his music, but I'm sorry to hear he has this horrid disease.

Re: We Have a Celebrity!

Submitted by norabreanne on Wed, 2008-06-18 - 02:57
That is very interesting to know! It always makes me feel a little better to know that there are others that are going through the same challenges that I am!! ~Nora

Re: We Have a Celebrity!

Submitted by Anonymous on Tue, 2006-10-31 - 20:14
Thanks very much for the update! We love hearing this good work! Epi_help

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