The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Our VNS Story

Wed, 03/03/2010 - 21:23

My husband had a Vagus Nerve Stimulator placed two weeks ago.  While  researching this procedure, we noticed that there are not a lot of useful personal experiences readily available on the internet.  We have started a blog to document his experience with this device.  We will keep it updated so that everyone on the internet has access to a non-biased story and experience for VNS.

 

Check us out at MattsVNS.Blogspot.com 

Comments

Re: Our VNS Story

Submitted by Spike. on Thu, 2010-03-04 - 02:18

Here's a weblink to the "VNS Message Board". http://s4.invisionfree.com/VNS_Message_Board/index.php?act=idx

Bruce. *I'm not a doctor, but the information I share is what I've either learned and or experienced due to having epilepsy myself. http://communityforums.epilepsysupportgroup.com

Here's a weblink to the "VNS Message Board". http://s4.invisionfree.com/VNS_Message_Board/index.php?act=idx

Bruce. *I'm not a doctor, but the information I share is what I've either learned and or experienced due to having epilepsy myself. http://communityforums.epilepsysupportgroup.com

Re: Our VNS Story

Submitted by DM on Fri, 2010-03-05 - 02:39

My son 11 yrs. old  had his VNS implanted Dec. 2007.  We are very happy with it.  It has given him better quality of life. I could go on and on with specifics But I'm not sure what you would like to know.

Would be happy to answer any questions. Feel free to email me.

Mom of "DM"

My son 11 yrs. old  had his VNS implanted Dec. 2007.  We are very happy with it.  It has given him better quality of life. I could go on and on with specifics But I'm not sure what you would like to know.

Would be happy to answer any questions. Feel free to email me.

Mom of "DM"

Re: Our VNS Story

Submitted by triniti on Sat, 2010-04-17 - 14:36

What a great blog! Thank you for doing that! We are considering VNS for our 3 year old that is developmentally delayed. The seizure meds. are snowing her. I think she would be completely different off or reduced meds. We are a little apprehensive though because there have been bad reports. Of course there are bad reports with everything. I will continue to read your blog while we make our decision. I hope it continues to do well and I hope it gets better over time for you!

Meredith

What a great blog! Thank you for doing that! We are considering VNS for our 3 year old that is developmentally delayed. The seizure meds. are snowing her. I think she would be completely different off or reduced meds. We are a little apprehensive though because there have been bad reports. Of course there are bad reports with everything. I will continue to read your blog while we make our decision. I hope it continues to do well and I hope it gets better over time for you!

Meredith

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.