Hi everyone. i have a two year old who has seizures that have not been controlled by the past three medicines: trileptal, keppra and zonogram. The doctor is guessing Dravet syndrome. My son is 2 years old and has about four seizures a day now and has delays only in his speech. He understands everything we say. From what i read of Dravet syndrome, children develop this very early in infancy. Alex just started having seizures at 19 months and delays are not severe. Doctor is saying seizues and cognition will get worse and worse!! We are having such a difficult time believing that our son is going to deteriorate from this point on. I would appreciate any input from someone who has a child with similar symtoms or has some knowledge of this seizure disorder.