Topic: Parents & Caregivers

Created By: kelly3 | 2015-09-27 20:38 | 0 Comments

My healthy third year old son had his first seizure while we were driving about a month ago. It lasted for about 8 mins (approx). We took him to the emerency and they did some blood work and said...

Created By: Christina K | 2015-09-27 15:21 | 0 Comments

Would love some advice from you guys.  My son is 5 with a diagnosis of severe autism and very severe learning disability.  He has been unable to focus or engage to even learn the simplest of tasks...

Created By: ttj384 | 2015-09-22 14:29 | 1 Comment

Hi! My son was recently diagnosed with absence seizures. He is 6 years old. His doctor prescribed Ethosuximide(zarontin) and I'm wondering, how well does this medication works? Has any of your...

Created By: mime4jesus | 2015-09-20 12:01 | 2 Comments

A year ago, our six year old son had an eight hour episode of continuous seizures that landed him in the ICU at Yale for a few days.  They put him on Keppra twice a day, and he hasn't had another...

Created By: Lovekaden | 2015-09-18 22:13 | 0 Comments

Hi does anyone know how much genetic testing for epilepsy runs? Ive heard it's very expensive 

Created By: Lovekaden | 2015-09-15 08:23 | 0 Comments

Hello my son is almost 4 and has been diagnosed with epilepsy for a little over a year now..for the past two months he's been having a seizure mainly non convulsive every week but he has had two...

Created By: Cam's Mom | 2015-09-14 12:00 | 1 Comment

Hello All,

My 9 year old son has absence seizures and in his second week of medication for them. Can anyone tell me if the seizures themselves or the medication cause bad headaches? He's...

Created By: momofhope | 2015-09-14 10:51 | 2 Comments

Hi! I'm a little confused and hope someone can help. In the last week my  9 year old daughter has had what she calls a "vision". It is recurring and is very frightening and violent. It doesn't...

Created By: dessieh7 | 2015-09-12 14:23 | 1 Comment

Hi,

My son is 4 years old, he was diagnosed with epilepsy about a year ago after having about 4 seizures (grand-mal) and an EEG. Since then he was put on Keppra which did very well for him...

Created By: krismar3 | 2015-09-10 22:52 | 0 Comments

My daughter is 10 years old. Since she was around two she's had behavior issues. She has been diagnosed with ADHD, ODD (she's now outgrown this), anxiety, and has OCD tendencies. The medications...

Created By: jlewinthal | 2015-08-31 18:59 | 1 Comment

Have any of you had a history of Colic or Prolonged Crying as an infant? To the parents, did your epileptic child have or had colice or prolonged crying? 

 

 

Created By: Rjhsteel | 2015-08-28 03:59 | 0 Comments

Edward was born 2 weeks ago. It was supposed to be a time of joy. We, are children and friends and family were looking forward to seeing him.
Now, after 14 days, (we are still here in Great...

Created By: Chasingpirates | 2015-08-16 23:15 | 1 Comment

I hope some of you can provide insight to a worried mama! It's long so bear with me!

My daughter was recently seen at ACH through the ER. Her pediatrician sent her there for an MRI to rule...

Created By: lauralove5 | 2015-08-16 12:45 | 0 Comments

Hi,

 

I hope that somebody might have an idea as to why my daughter keeps dropping out of "large" ketosis (per keto sticks) and into "small" ketosis.  

 

She is 5 and...

Created By: aarchie21 | 2015-08-14 00:46 | 0 Comments

It's so hard watching my daughter go through this! She started having seizures when she was 2 days old. She is now almost 5 months and the doctors still have no answers for me or a way to control...

Created By: mykal_t45@yahoo.com | 2015-08-12 14:52 | 0 Comments

Dear all,

Just wanted to see if any other parents' have had a similar experience. Our daughter has had 4 episodes in the last 10 months. Basically, every time it has happened it's been when...

Created By: Lovekaden | 2015-08-12 08:04 | 0 Comments

Does anyone do anything specific or have a certain machine to help your child during a seizure to keep them from losing oxygen during the seizure   or while waiting for the ambulance to come

...
Created By: momofboyz | 2015-08-07 10:26 | 3 Comments

Looking for some input.  My 6 year old son was recently diagnosed with absence seizures, our neuro believes they are genetic since my husband had them growing up.  My husband was never propery...

Created By: momtothree | 2015-08-05 11:21 | 2 Comments

My two-year-old son had his first unprovoked tonic-clonic seizure in April, then he had a febrile (clonic) in June, and another unprovoked clonic just a few days ago. We made an appointment with a...

Created By: LJS | 2015-08-04 00:15 | 1 Comment

My 8 year old daughter is on Depakote. It makes her very emotional & lately, very hormonal. She seems obsessed with boys & kissing (not acting on it, just thinking & talking about it...

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