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Topic: Parents & Caregivers

Created By: tobias | 2014-10-26 19:03 | 320 Views | 0 Comments

My husband and I have been married for 28 years.  He has been epileptic the entire time.  So nothing new there.  However, in the last few years it has gotten worse.  He can't drive, is depressed a...

Created By: Navywife16 | 2014-10-25 19:45 | 319 Views | 1 Comment

I currently have three children.... And one on the way. When it comes to a chronic illness, I thought our family Socrates  that off the list with my oldest son. He was born with a rare genetic...

Created By: Aclifton | 2014-10-23 04:29 | 370 Views | 0 Comments

My 10 year old son starting having grand mal seizures (during his sleep) back in January. He was very healthy up to that point. MRI finding stated there was a right parietal cortex lesion...

Created By: wandering1 | 2014-10-20 23:09 | 355 Views | 1 Comment

My daughter, 4 years old, was diagnosed with absence seizures just a little over a month ago.  She's taking the generic of Zarontin and the seizures have seemingly been controlled.  However, we've...

Created By: Lbugio | 2014-10-20 20:32 | 366 Views | 1 Comment

Our son was diagnosed with Grand Mal seizures at 17 as a junior in high school it was very difficult to adjust to not being able to drive and the side effects of meds (Keppra) being 20 now he has...

Created By: mwilson@northernforest.org | 2014-10-20 14:49 | 335 Views | 0 Comments

My 10 year old son was on Keppra for a few years following major brain surgery. When he was 7, a 48-hour EEG found no seizure activity so we took him off Keppra at his doctor's suggestion. We...

Created By: Ajaye | 2014-10-11 10:30 | 412 Views | 1 Comment

Thank you first if all for taking the time to read this as I am new to this community and need some support. With that said, here is my story and all replies are welcome.

my son has had one...

Created By: katiepablo@gmail.com | 2014-10-11 10:23 | 357 Views | 2 Comments

My little tiny 3 year old has been diagnosed with Epilepsy after a multiple seizures in one day, and the final seizure of the day being a 4 year SE. I am completely traumatized by the experience,...

Created By: Lainysmom | 2014-10-06 11:34 | 420 Views | 4 Comments

My 17 year old daughter is unable to wake for school. This started in January 2014. Extreme fatigue, unresponsive when trying to wake her, sleeps from about 10pm until 10-11am or later. Currently...

Created By: wandering1 | 2014-09-30 08:57 | 327 Views | 0 Comments

My 4 year old daughter was diagnoses with absence seizures. She's been put on liquid Zarontin since Sept. 11th and it a battle. We've tried it all. Every food item every drink. We've changed the...

Created By: Beans2008 | 2014-09-23 13:31 | 348 Views | 0 Comments

I've been doing this for quite some time and am looking for help again.  About us... my son is 6.  He's had seizures forever, since the day he was born.  Our story has been intractable seizures,...

Created By: carolynw4@yahoo.com | 2014-09-20 23:23 | 379 Views | 0 Comments

We are going to do another EEG for my almost two year old. She had one a year ago but would not nap during it.

 

The EEG lab said no more than 5 hours of sleep for her the night...

Created By: ketalovec@gmail.com | 2014-09-18 21:47 | 324 Views | 6 Comments

My daughter is 6 and so far has had two seizures since she was four. I found out after the first one that her brain is smoother than most children her age. To make matters worse I found that she...

Created By: brittneydulin@cableone.net | 2014-09-18 17:07 | 309 Views | 0 Comments
Created By: brittneydulin@cableone.net | 2014-09-17 19:21 | 393 Views | 8 Comments

At the beginning of the summer my daughter was diagnosed with atypical absence mad clonic seizures ( or epilepsy since the cause of the seizures is unknown.) We went for the first EEG scheduled by...

Created By: papabear299@yahoo.com | 2014-09-17 11:07 | 372 Views | 3 Comments
Created By: roxy33343@gmail.com | 2014-09-16 13:25 | 367 Views | 0 Comments

Hello! My 2 year old was just diagnosed with epilepsy. His last seizure happened during the day, but I am so worried another will happen when he is in bed and we aren't close by. Being that they...

Created By: tlc77 | 2014-09-16 11:38 | 460 Views | 1 Comment

My 8 year old son's seizures (mostly nighttime) are being controlled by Lamictal.  He takes 37.5mg (1 1/2 tablets) in the morning and 400mg (4 tablets) at night. Unfortunately he has terrible...

Created By: wandering1 | 2014-09-15 16:49 | 375 Views | 2 Comments

We are a bit overwhelmed to say the least.  Our beautiful healthy, month away from 4 yrs old, daughter just stared having unresponsive staring spells and her eye brows would twitch. A trip to the...

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