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Topic: Parents & Caregivers

Created By: carolynw4@yahoo.com | 2014-09-15 15:08 | 302 Views | 3 Comments

Hi Everyone,

I'm new here.

My almost two year old either had her 2nd seizure or 2nd pallid breath holding spell last night, and was in tears last night because I know that means...

Created By: AngieHettinger | 2014-09-09 19:18 | 336 Views | 3 Comments

Hello all, I am all new to this and looking for some help, support, and guidance.

 

My daughter who is now 8 was diagnosed with adolescent absent seizures.  She would have multiple...

Created By: ashleyhavard01@gmail.com | 2014-09-06 20:48 | 320 Views | 2 Comments

Hi.. I am hoping someone can tell me what to expect as we try to get my daughter's seizures under control- she's 3 and started having complex partial seizures after a head injury.. A very mild...

Created By: mlgmom | 2014-09-04 10:46 | 335 Views | 2 Comments

Hello everyone,

My 17 y.o. daughter began having seizures 2 years ago. They were 30 minute grand mal seizures. She was finally put on Keppra this past April (2014). Her seizures are now...

Created By: pamela.swader@asu.edu | 2014-08-31 19:45 | 348 Views | 2 Comments

My daughter is 7 and was diagnosed with epilepsy about a year and 1/2 ago. I wanted to ask her neurologist if we could try a 3 day eeg test on her because they still dont know what sets off her...

LKS
Created By: shaylam | 2014-08-25 22:50 | 295 Views | 0 Comments

Hello all just wondering if there is a forum for LKS or if anyone has any resonse to our story? Have a great day!

Our son just turned 5 and developed and reached all milestones normally,...

Created By: seb123 | 2014-08-23 16:50 | 339 Views | 1 Comment

My 10 year old son is newly diagnosed with Epilepsy and is currently taking Kepra.  The medication level has put us to where the visible seizures have stopped, but he is having, 2 or 3 times a day...

Created By: Maydoy | 2014-08-23 09:33 | 299 Views | 1 Comment

Hi,  My 24 year old son has had serious epilepsy for 6 years now after a head injury.  The seizures are mainly of a night time.  We have tried various remedies (mostly alternative remedies with...

Created By: b.epstein@ferrarapmc.com | 2014-08-18 22:05 | 350 Views | 4 Comments

I'm open to ALL suggestions on how to hide the medicine in something.  I was using Danimals Smoothies.  It takes him up to 90 minutes to drink it and he cries the whole time. I feel terrible. ...

Created By: thecombsklan06@yahoo.com | 2014-08-17 00:04 | 397 Views | 2 Comments

My daughter has a rare genetic disorder which the doc's feel are causing her sudden onset seizures.  First witnessed one in April of this year.  They have suggested that she wear a Medical I.D...

Created By: tx_mom | 2014-08-16 19:56 | 466 Views | 1 Comment

My 13 yrs old with no prior seizures history started having tonic clonic seizures last month. His CAT scan, oxygen levels, electrolytes are normal. His MRI was normal while sleep deprived EEG...

Created By: hunnie_bee_79@yahoo.com | 2014-08-15 00:26 | 334 Views | 1 Comment

Hi all. I didn't know where else to turn so I googled and found this forum. My 2 yr old son had a minor seizure at 6 months old then yesterday had a major seizure. He was laying down napping and I...

Created By: Crewby | 2014-08-14 19:53 | 325 Views | 1 Comment

We just had our second EEG in 3 weeks for my 4 yr old son. We got the report from his 23 hr EEG today and it says "extremely frequent independent bicentral temporoparietal BECTS like spike wave...

Created By: tashyluv | 2014-08-14 16:51 | 292 Views | 1 Comment

First of all let me tell you a bit of background.  Last year my daughter was diagnosed with generalised epilepsy and we figured it is more of the "myclonic" type.  She was put on sodium valporate...

Created By: ewilliams1979 | 2014-08-12 11:11 | 417 Views | 1 Comment

I was just curious if there's anyone else out there who has weaned their child off medication (per nuero's request).  We were supposed to wean my 8 year old off Keppra in April, but I have...

Created By: mssmoak07@yahoo.com | 2014-08-11 17:57 | 298 Views | 1 Comment

Hi I'm new to this group. I have a two year old son that has been battling with epilepsy since he was 9months. At one point my son was on six different medications, he's know on three. He's takes...

Created By: cassandran | 2014-08-11 01:35 | 300 Views | 2 Comments

My son was diagnosed with generalized epilepsy just over a month ago. He has t/c seizures and has gone t/c status. They put him on valproic acid, started at 150mg 2x a day and now he is up to...

Created By: Kate5 | 2014-08-10 20:20 | 279 Views | 0 Comments

Hi my name is Kate and my sister started having partial seizures that spread back in March.  Despite numerous trips to the doctors, testing, and medication changes she still is experiencing...

Created By: lagbfn@gmail.com | 2014-08-08 14:30 | 298 Views | 1 Comment

My elder daughter (19 years old) has Juvenile Mycolonic Epilepsy, she was diagnosed 3 years ago, now.  Younger daughter (almost 16) has been having some myoclonic type episodes since about May (...

Created By: skelsey268 | 2014-08-07 12:16 | 270 Views | 1 Comment

My son is 20yrs old and had a stroke in march 2014.  He has been c/o tingling or a buzzing feeling that starts in one part of his head and goes to another part and is gone.  It's really weird when...

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